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I have been diagnosis with DCIS. Either a Mastectomy with anti estrogen or double mastectomy no meds. What is your experience on either going with no reconstruction or with? Pain -time healing -regrets? I am 52

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anonymous

almost 5 years
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  • Betti A Profile
    anonymous
    Survivor since 2013
    I was diagnosed 2 years ago with IDC and DCIS in my left breast. I chose a unilateral mastectomy without reconstruction having just turned 62. My surgeon told me that was my best option since the 2 areas were right next to each and took up a fairly large area. She told me she couldn't guarantee getting all of it, clean margins, and leaving me much tissue since I'm not very large. I didn't want any further surgeries, either. The path. report showed a 3rd area of cancer (LC I think) that had never been mentioned in all my testing. I forgot to ask her where it was in relation to the other 2 as she was going to talk with the Radiology people. I found in reading the op. report she noted I would have been very disfigured if I had chosen a lumpectomy. I'm on an Estrogen blocker for at least 5 years since I also opted to leave my right breast and it has remained free of disease. I don't have any regrets in my decision, but each person needs to do what they feel is the right thing for them. Oh, I also did chemo. and rads.
    almost 5 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      My comment is not regarding your treatment . Every time you say you are "62" , I think, oh, Betti is young like me, as I am 58. Hopefully, we are middle aged, with another 25 or so years to go.

      almost 5 years Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      I wasn't commenting on yours as I had written mine first I think. I don't think of me as being now 64 and plan on living a long time (lol).

      almost 5 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      Haha. No, I wasn't clear. I didn't think you commented on mine. I was just trying to say something about our ages, and your answer was about your treatment, so I was a little off topic , that's what I was trying to say.

      almost 5 years Flag
  • Lou Cam Profile
    anonymous
    Survivor since 2013
    A lot would depend on the biology of your tumor, your family history, how wide spread, or if you have a genetic mutation. For DCIS, stage 0 breast cancer, without the above factors, if the DCIS is hormone positive, it is usual to take anti hormones when you receive lumpectomy, with or without radiation. With mastectomy, it may or may not be given, depending on your individual factors, such as mentioned above or young age. My mother had DCIS and had a lumpectomy followed by radiation twice a day for 5 days. For IDC, I had a partial mastectomy, 6 weeks of rads, and take Femara. I also have an implant. It comes down to a personal choice, and what you are most comfortable with, and what your doctor recommends.
    almost 5 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I had a double mastectomy for a couple if reasons. I didn't want to worry about it and I did have reconstruction so I felt like my breasts would have looked funny if I didn't do both. Just had my exchange surgery and the real implants look good! I had fat grafting too.
    almost 5 years Comment Flag
  • Gillian Ashworth Profile
    anonymous
    Learning About Breast Cancer
    I was diagnosed w stage 1 IDC/DCIS over a year ago. My doctor recommended a lumpectomy but I opted for a double mastectomy with reconstruction. I was diagnosed at 32, I didn't want to worry about mammograms for the rest of my life. The surgeries went well, my reconstruction is good. I'll have some more fat grafting in a few months to fix them a little then I should be all finished. My first surgery (double mastectomy) was the worst - managed well with pain meds and was back to normal after 4-5 weeks. All other surgeries have been a breeze. I had chemo and herceptin & am on tamoxifen for 5 years. Go with what you feel you'll be most comfortable with. I contemplated a lumpectomy but I just wasn't comfortable with it. Really good luck to you!
    almost 5 years Comment Flag
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Mastectomy no reconstruction, absolutely painless healing. So happy I chose this way. I was 59. Expanders, and reconstruction....a painful drawn out procedure. Absolutely personal choice. I wanted to get back to my life as soon as possible. I have small breasts so boobs have never been a priority of mine. My husband just wanted me well. Get s consult with a plastic surgeon about reconstruction. Good for doing your homework. My prosthesis is very comfortable and I would never think of going without it. Feels like it is part of me. Go to a specialty store and look at the prosthesis and bras. They bounce and feel real. Take care, Sharon
    almost 5 years Flag
    • Theresa Ward Profile
      anonymous
      Learning About Breast Cancer

      Thank you Sharon. When I think of getting a implant I am a 36D breast and that just seems like a whole lot of pain stretching mine skin to match the other breast if I keep right breast. My lung is damaged to bad to have anymore radiation. This...

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      Thank you Sharon. When I think of getting a implant I am a 36D breast and that just seems like a whole lot of pain stretching mine skin to match the other breast if I keep right breast. My lung is damaged to bad to have anymore radiation. This makes me wonder if I shouldn't do both so I will never have to wish when I still had a choice why didn't I take it!

      almost 5 years Flag
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Theresa, LOTS of women think just like you do. Therefore there are many more double mastectomy's. Ask your oncologist and surgeon about it. It is completely within reason to have that type of surgery done, especially if it gives you peace of...

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      Theresa, LOTS of women think just like you do. Therefore there are many more double mastectomy's. Ask your oncologist and surgeon about it. It is completely within reason to have that type of surgery done, especially if it gives you peace of mind. I asked my surgeon and oncologist about doine a double, they both said no. The type of breast cancer I had wasn't going to return in my other breast, it would go to my lungs, liver, brain.... or more fun places like that. So.... I just did one. I know reconstruction is a long process and not comfortable at all. BUT.... I am just going by 7 years of stories by women who have gone through it. Most are happy once it is done. Then there are the ones who turn out with "Franken-Boobs" and have to have additional surgeries. Hang in there and take care, Sharon

      almost 5 years Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    Why is a lumpectomy not on your radar? What about a partial lumpectomy. Chop and dice as you go. Next time hope it's on breast tissue. It might get you another round of years without cancer in an organ. Do what feels right. I didn't have the gene. I didn't have fam history. I am young. The tamoxiphen is fine for me. No problems. I do have a young daughter. Best and hugs
    almost 5 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I was also diagnosed 3 years ago. DCIS non invasive stage 0. I had a lumpectomy with radiation which was the best choice but was diagnosed in the same breast 2 years later . I had a double mastectomy last year with immediate reconstruction because I didn't want to stress over mammograms anymore. Breast & uterus cancer runs on both sides of my family. I had reconstruction for implants. It was painful for the first week. The drains were a little uncomfortable but manageable. Recovery wasn't bad just long. Your really sore from the expanders. . reconstruction takes longer because the expanders have to be filled to reach your size than another surgery to do implant exchange. I was put on Tamoxifen hormone blocker with no side effects. I'm currently 48. The only regret I have is having the lumpectomy. If I wasn't so afraid after diagnosis of losing my breast I would have had the mastectomy. Making decisions that will effect your life is tough because where no Dr just ordinary peopletrying to understand what's happening. It took 6 months for mastectomy & reconstruction. Prayers to you. I look & feel fabulous I'm returning back to work next month after being out for 11 months.
    almost 5 years Comment Flag

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