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Just got the call yesterday telling me I have ductal cancer in excised biopsy- now awaiting scheduling for MRI and further Path results - what should I be doing, preparing for?? Any suggestions?

Lauralee B Profile
Asked by

anonymous

Stage 1 Patient almost 7 years
 
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Lauralee, We all know the fear and terror you are experiencing right now. You have no idea what your future will be. This is pretty much your lowest, most dreadful, dark corner you will find yourself. As time goes along, you will gain more information, about this disease and how you are going to be treated. I can assure you, even with this seemingly dire diagnosis, you will see light-at-the-end-of-the-tunnel. You will come back out into the sunshine. Since you had the misfortune to receive this diagnosis, I am sincerely happy you found this group to help you through your treatment. We are all here to support each other. We all understand and are either in active treatment or have been through it. I can already give you some good news.... you have the most common form of breast cancer. You still have some other pieces of your diagnosis to be discovered.... grade, stage, etc. You have found a good, safe, place with us. Right now, you need to be extremely kind to yourself because it's a journey you are about to embark on. You will have a bunch of tests. You will have some or all of the following tests, MRI, CT Scan or PET Scan, Bone Scan, MUGA, and lots of bloodwork. None of these are painful more than a poke with a needle, so please don't stress about them beforehand. Approach this all with a warrior spirit, faith, and a whole lot of humor. I had Invasive ductal carcinoma and was treated 5 years ago. Even though many of us have had a similar diagnosis, each of our cancers are uniquely different. Thankfully, your doctors can tailor your treatment for your particular cancer. We may have had similar teatments but they are different. We will share our experience but it many not be exactly how you are going to react to the seemingly same treatment. Hang in there and take care, Sharon
    almost 7 years Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    Calm down, fear of the unknown, and waiting are the hardest part of the treatment. You are on the road to being well. The best thing you can do now is exercise eat a well rounded diet and doing the things that make you the happiest. I threw myself into my work, gardened, rode my horse. Never underestimate the old fashioned bubble bath I would add a glass of wine and some music. God Bless your journey
    almost 7 years Flag
    • Thumb avatar default
      anonymous
      Stage 1 Patient

      Thank you --Yes, the unknown is the biggest boogeyman right now, for sure. I am trying to determine what to do about selecting a doc - the surgeon that did the biopsy I have only met twice, and she is who I am waiting to get further path reports...

      more

      Thank you --Yes, the unknown is the biggest boogeyman right now, for sure. I am trying to determine what to do about selecting a doc - the surgeon that did the biopsy I have only met twice, and she is who I am waiting to get further path reports from, and set up MRI appt through, BUT - I am thinking I want to go back through my gyno and see if I can get an appt with a doctor at a particular clinic that is well thought of. Who becomes my primary doctor as you go through treatment?

      almost 7 years Flag
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      my primary doctor stayed my doctor. I got my referral to the oncologist and radiation oncologist through the surgeon. I went to my primary and my gyn to ask their opinion on my next move. I waited untill I had the full path report, to take with...

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      my primary doctor stayed my doctor. I got my referral to the oncologist and radiation oncologist through the surgeon. I went to my primary and my gyn to ask their opinion on my next move. I waited untill I had the full path report, to take with me. As it turned out they all sent me to the same place. I know how scarry this time is and out of control you feel. Please hang in there things won't be as bad as you are imagining at this point. The survival rate gets better every year and the meds to manage side effects from chemo(if you need it) make it so you can still have your activities. Treatment is not a picnic but it is doable. You have found a great place for support and hugs. I think when they give you a dx of breast cancer they also issue you big girl warrior panties.......you are stronger than you ever thought you were and always remember you know your body better than anyone else. God Bless your journey

      almost 7 years Flag
  • Roxann C Profile
    anonymous
    Stage 1 Patient
    Get a small digital recorder that costs $29.99 and take it with you to every doctor appointment to record the information. Doctors don't mind and helps you tremondously when you forgot what they said and need to rehear it. From the get go keep get a notebook file folder and learn to keep on your documents in one carry all case. You will need it to help organize for insurance and other drs appointments. You need to build yourself a medical team that includes surgeon, plastic surgeon, oncologists, internal medicine, dermatologist (needed for skin radiation problems, check for skin cancer),. Also don't forget to see your dentist and eye doctor as soon as possible...if you need chemo they will want to treat any dental or eye problems before chemo to avoid the problem getting worse. You should also consider getting genetic tested to check if you carry the BRCA 1 or BRCA 2 gene. This will be a factor to consider in treatment options.
    almost 7 years Comment Flag
  • André Roberts Profile
    anonymous
    Stage 1 Patient
    Lauralee this is the hardest part. Waiting. That's really all you can do at this point. After all your test results, your Dr will have a treatment plan designed for your particular case. Stay positive. Your gonna be ok. We are all here for you. Prayers to you.
    almost 7 years Comment Flag
  • Sheryl Love Profile
    anonymous
    Stage 2A Patient
    Learn about cancer, remain calm, and lean on your support system. Get lots of rest and do things that make you happy!
    almost 7 years Comment Flag
  • Cancer Survivor Profile
    anonymous
    Stage 3B Patient
    Just take a day at a time... One appointment after another. Just know the doctors are going to provide you with all the info you need. Stay strong and remember to let your friends and family help support you. For me, God was my strength each and every day. Prayers to you.
    almost 7 years Comment Flag
  • Roberta S Profile
    anonymous
    Stage 2B Patient
    I was diagnosed 3weeks ago with IDC also. I went on a no sugar and no carb diet immediately and then just waited for all my testing which seemed like forever. My surgery is finally scheduled for 02/08. Hang in there!! :)
    almost 7 years Flag
    • Thumb avatar default
      anonymous
      Stage 1 Patient

      Thank you for sharing, and for your insight. Who has become your primary doctor on this, the surgeon, your gyno, oncologist?

      almost 7 years Flag
    • Roberta S Profile
      anonymous
      Stage 2B Patient

      It seems right now it's my surgeon but after my surgery Friday it'll be my oncologist bc he is the one who decides the treatment. He will be more involved then. My surgeon says I will be spending alot of time with both. Lol
      Feel free to talk to me...

      more

      It seems right now it's my surgeon but after my surgery Friday it'll be my oncologist bc he is the one who decides the treatment. He will be more involved then. My surgeon says I will be spending alot of time with both. Lol
      Feel free to talk to me anytime since we are both new at all this :)

      almost 7 years Flag
    • Thumb avatar default
      anonymous
      Survivor since 2012

      Roberta, remember you need some good carbs for the body to operate properly. Besides, some of the treatment zaps your energy.

      almost 7 years Flag
    • Roberta S Profile
      anonymous
      Stage 2B Patient

      I know but I haven't started treatment yet. It's just the diet before the surgery to hopefully shrink the tumor naturally. After surgery I will def have to adjust my diet. One step at a time I guess :) thx!!

      almost 7 years Flag

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