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I just had bilateral mastectomy with reconstruction 30 days ago. I still have the tissue expanders in. I am still in a lot of pain. Is this normal? If so, how long does it last.? The pain is 24/7 with no relief.

Kristine Fonseca Profile
Asked by

anonymous

Stage 2A Patient over 7 years
 
  • Erin Timlin Profile
    anonymous
    Survivor since 2011
    I had a right mastectomy with an expander just over 2 weeks ago and after 2 days I was on regular tylenol and eventually ibuprofen. I took the havy duty stuff -- vicodin or valium -- at night. I only had one side, but it seems extreme to be having constant pain after 30 days. If you haven't tried the valium ask your doctor, as it acts as a muscle relaxer and can help a lot!
    over 7 years Comment Flag
  • Anne Marie jacintho Profile
    anonymous
    Survivor since 2003
    Kristine have you made your doctor aware of your constant pain? I had reconstruction at the time of my mastectomies. My breast or chest area felt tight like my breast was engorged when I was breast feeding I took Vicodin for pain every 4-6 hours that first week then Advil was enough for the pain. I have no experience with tissue expanders. I had to lay with my head elevated propped up on pillows sitting on a recliner was best as soon as I laid flat I could feel the pressure in my chest. I also felt better wearing an ace wrap around my chest instead of a bra it felt better to have that firm support. Give your doctor a call and make him aware of your pain
    over 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    The pain does last quite a while but does get better with time. The uncomfortable tight felling and sawness does stay. I am told it is instant relief when you have your exchange. I have had my expanders is for 6 months and will be having my exchange in in 5 weeks.
    over 7 years Flag
    • Sandra Hostetler Profile
      anonymous
      Learning About Breast Cancer

      THE EXPANDERS ARE A TOTAL DIFFERENT FEELING THAN THE IMPLANTS. THE IMPANTS SEEM TO FEEL HEAVY COMPARED TO REAL BREAST TISSUE . I GUESS IT WILL TAKE TIME GETING USED TO THEM. I AM SO PLEASED OF HOW THEY HAVE TURNED OUT.:) NEW AND IMPROVED SAFE...

      more

      THE EXPANDERS ARE A TOTAL DIFFERENT FEELING THAN THE IMPLANTS. THE IMPANTS SEEM TO FEEL HEAVY COMPARED TO REAL BREAST TISSUE . I GUESS IT WILL TAKE TIME GETING USED TO THEM. I AM SO PLEASED OF HOW THEY HAVE TURNED OUT.:) NEW AND IMPROVED SAFE BREAST. I FEEL BLESSED TO HAVE A GREAT PLATIC SURGEN.

      over 7 years Flag
  • Patricia  Armendariz-Tallon Profile
    anonymous
    Survivor since 2010
    I have had a bilateral mastectomy and reconstrution with expanders also. I didn't have to much pain but it is because of expander being behind the chest wall. I had failry large breasts and there was a lot for the surgeon to work with, that makes a big diference!! I did end up having the right expander removed due to an infection and that was in 2010! I am debating on just have the left one removed also because I am tired of surgeries!! Good luck and in time it will get better. My surgeon perscribed flexaril, and ativan. it helped. Sister to Sister May you be Blessed!!
    over 7 years Flag
    • Sandra Hostetler Profile
      anonymous
      Learning About Breast Cancer

      PAT GIVE IT SOME TIME TO HEAL AND THINK ABOUT IT FOR A LONG TIME BEFORE YOU DO THAT. MY FRIEND HAD THE SAME PROBLEM REAL BAD INVECTION WITH THE EXPANDERS.AND THEN SHE HEALED UP AND A YEAR LATER IS NOW HAVING SURGERY TO PUT THE IMPLANTS IN. SHES...

      more

      PAT GIVE IT SOME TIME TO HEAL AND THINK ABOUT IT FOR A LONG TIME BEFORE YOU DO THAT. MY FRIEND HAD THE SAME PROBLEM REAL BAD INVECTION WITH THE EXPANDERS.AND THEN SHE HEALED UP AND A YEAR LATER IS NOW HAVING SURGERY TO PUT THE IMPLANTS IN. SHES HAPPY ABOUT IT.

      over 7 years Flag
  • Ruth Brajevich Profile
    anonymous
    Learning About Breast Cancer
    I would talk to your doc too. I had bilateral mastectomy with reconstruction
    over 7 years Comment Flag
  • Isabel Souchet Profile
    anonymous
    Survivor since 2010
    I had a lot of pain with the expanders. There wasn't much they could do. I took pain relievers at times but I was uncomfortable for months through my chemo. Unfortunately I developed scar tissue n they had to be removed. I would call your surgeon and go see him.
    over 7 years Comment Flag
  • blair greiner Profile
    anonymous
    Learning About Breast Cancer
    I had a bilateral mastectomy 3 weeks ago and I was just about to post the same question! I only slept 2 hours tonight. Laying down is so painful. The very first thing my oncologist told me was "the expanders are very uncomfortable and once you have your implants you will feel much better. Even waking up from surgery women have told him what a difference they felt"
    over 7 years Comment Flag
  • Trish Watt Profile
    anonymous
    Learning About Breast Cancer
    I too, had a bilateral mastectomy and just celebrated one year postoperative. Yes, there is pain when you have expanders but my plastic surgeon just told me if I had too much pain he would either take some saline out so the skin could stretch or delay the next filling a week or so. Just like pregnancy, everyone's skin stretches differently. Keep in touch with your surgeon/nurse, they will be more than happy to help you through this. This is a LONG process but so worth it. It took a little over a year to complete the whole process....nipple surgery and tattooing included. No one told me how long this took but my surgeon did say we would be very good friends through this...lol! Advil or ibuprofen was all i needed during the day and vicodin at night. The trick is to stay AHEAD of the pain. Take something as soon as you feel uncomfortable, that way the pain does get bad. My nurse had me take ibuprofen an hour before the saline injections and that helped a lot.
    over 7 years Flag
    • Trish Watt Profile
      anonymous
      Learning About Breast Cancer

      I meant the pain DOESN'T get bad

      over 7 years Flag

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