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Any HER2 Stage 2 invasive on here? Wondering what your treatment plan looks like.

Maureen french Profile
Asked by

anonymous

Learning About Breast Cancer 8 months
 
  • Betti A Profile
    anonymous
    Survivor since 2013
    Everyone's cancer is unique to them so treatment plans are made for you and you only. It sounds (if I'm reading your post correctly) you are triple positive so that may change things too. Read all you can about your situation and ask your doctor(s) questions to clarify it for you. You will be OK.
    8 months Comment Flag
  • judy plymale Profile
    anonymous
    Learning About Breast Cancer
    I am triple positive. Stage 2a. Bilateral mastectomy 3 years ago. 6 rounds TCH ( since that time hey have added another chemical) , radiation, 1 year of Herceptin and now 10 years of daily meds. All is good so far. No evidence of recurrence.
    8 months Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I'm HER2 , stage 2a IDC. Just finished 6 TCHP. I have unilateral mastectomy in 3 weeks.
    8 months Flag
    • Maureen french Profile
      anonymous
      Learning About Breast Cancer

      I was diagnosed last week. Scared out of my wits. 40yr old. Oncon recommending THP, every week for 12 weeks and then AC for 2 cycles, then surgey, then radiation. I am 4.5cm invasive ductal, no nodes. Additionally I am ERpos and PRpos low...

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      I was diagnosed last week. Scared out of my wits. 40yr old. Oncon recommending THP, every week for 12 weeks and then AC for 2 cycles, then surgey, then radiation. I am 4.5cm invasive ductal, no nodes. Additionally I am ERpos and PRpos low percentage but still positive for those two.

      What made you decide to do Mast and not Lumpectomy?

      8 months Flag
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I was diagnosed in Nov. at age 43. I have no nodes involved they believe, grade 3. I have lots of tumors in that breast so my docs recommended mastectomy but I was going to choose it anyway. I know it's scary. I've read everything I can get my...

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      I was diagnosed in Nov. at age 43. I have no nodes involved they believe, grade 3. I have lots of tumors in that breast so my docs recommended mastectomy but I was going to choose it anyway. I know it's scary. I've read everything I can get my hands in about my type of cancer and that has helped tremendously. There is so much to it all. You will get through this. Chemo is hard but doable! They give you lots of meds to combat things. Ask me anything I'm happy to tell you how it's been for me. It's different for everyone though.

      8 months Flag
    • Bev Warn Profile
      anonymous
      stage_2b Patient

      Hi when u say HER2, is it negative or positive as that will be a consideration in treatment. I was only diagnosed 4 weeks ago so no expert but there are heaps of pathology and other variations that guide treatment. Are you hormone positive or...

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      Hi when u say HER2, is it negative or positive as that will be a consideration in treatment. I was only diagnosed 4 weeks ago so no expert but there are heaps of pathology and other variations that guide treatment. Are you hormone positive or negative for starters? I have grade 3 idc with node involvement. HER2 neg and hormone positive. I had a mastectomy 5 days ago and i was just to have the sentinel node removed for checking, which is the usual first ie just the sentinel. But when i woke he had done an auxillary node dissection as several looked suspicious. I have been told that i will go on anti hormone meds for a minimum of 5 years (as hormone pos)and will know about chemo in about a week. Remember hormone status of the cancer is not the same as HER2 neg or pos.
      I would not lie to you and say the mastectomy did not hurt, and still does somewhat, as did the auxillary dissection. The latter for pain is less of an issue if they only take the sentinel node. But it is tolerable pain if you speak up. I am day 5 and still have pain when i try to lift my arm but i do still have drains in. The drains are normal. I also have phantom nipple pain lol i kid you not. Its a piercing sensation. Again though we are all different and as a paraplegic i have to pull on my arms, chest and upper body a lot ie to try and turn in bed etc. So mine may be hurting more for that reason. Best advice i found was to write down all your questions so you dont forget and always have someone with you to absorb the answers. And try really hard, and i know it is hard, not to try and think too far ahead in relation to what happens next. All the best bev

      8 months Flag
    • Maureen french Profile
      anonymous
      Learning About Breast Cancer

      I am HER2 . Thank you for sharing your story. Hang in there. The phantom thing I never would have thought about!

      8 months Flag
    • Maureen french Profile
      anonymous
      Learning About Breast Cancer

      I go for my first chemo this Wednesday starting to sink in a little.

      8 months Flag
    • Maureen french Profile
      anonymous
      Learning About Breast Cancer

      Anonymous- after your surgery are you doing more Herceptin cycles?

      8 months Flag
    • Jennifer A Profile
      anonymous
      Learning About Breast Cancer

      Hi this is anonymous! I fixed it so my name shows now. Yes I just had my first Herceptin only and it was great. As for the chemo just pay attention to your body and don't be afraid to call the phone number they give you to call if you are having a...

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      Hi this is anonymous! I fixed it so my name shows now. Yes I just had my first Herceptin only and it was great. As for the chemo just pay attention to your body and don't be afraid to call the phone number they give you to call if you are having a side effect and don't know what to do. That's why they are there.

      8 months Flag
    • Maureen french Profile
      anonymous
      Learning About Breast Cancer

      Thank you Jennifer. The anticipation and lack of routine has me all
      Discombobulated. I have other stuff going on in my life that is making it even more daunting. So I am trying to find a way to stay positive and to fight! I just am having a hard...

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      Thank you Jennifer. The anticipation and lack of routine has me all
      Discombobulated. I have other stuff going on in my life that is making it even more daunting. So I am trying to find a way to stay positive and to fight! I just am having a hard time finding the fight in me right now. I feel the best today I have felt in the last four weeks. I didn't cry once so that is a plus! I know I will get through this I just feel alone.

      8 months Flag
    • Bev Warn Profile
      anonymous
      stage_2b Patient

      Yes the whole phantom thing came as a shock. I woke from a deeo sleep with sudden niplle pain that made me cry out. Half aslerp, i grabbed at me "breast " then cried when i clutched and nothing was there. Since then though i did look it up and...

      more

      Yes the whole phantom thing came as a shock. I woke from a deeo sleep with sudden niplle pain that made me cry out. Half aslerp, i grabbed at me "breast " then cried when i clutched and nothing was there. Since then though i did look it up and although nit as common as phantom limb it does happen . The brain doesnt know its gone and continues to send signnals 🤥

      8 months Flag
  • Paulett  Bankich  Profile
    anonymous
    Learning About Breast Cancer
    I've just been diagnosed with Invasive Ductal Carcinoma Her2. I don't know what stage yet. I know it's Grade III but not sure what that means. I have petscan Wednesday. Get my port Friday. Begin chemo July 25th
    5 months Flag
    • Maureen french Profile
      anonymous
      Learning About Breast Cancer

      Good luck to you! It gets easier, with time.

      5 months Flag

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