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anonymous Profile

anonymous

Stage 1 Patient

Current City
Southern Illinois
Your Story

I'm 51 with no family history of breast cancer, but have been dealing with benign lumpectomies and hold-your-breath-for-the-results mammograms since I was 29. I've recently been diagnosed with IDC, ER+\PR+, Stage 1. (Mammogram was Jan 9, 2013, biopsy 1/16, "you have cancer" on 1/22.). Plus, thanks to the follow-up MRI, there were *more* scans and biopsies because of other areas of concern that showed up. To complicate matters, the original cancer care team faced issues of either scheduling delays or equipment failures (hospital finding out they'd lost part of the biopsy gun AFTER prepping me for an MRI biopsy and getting the I.V. in my arm, or calling two days later to let me know the MRI machine was now malfunctioning), so we finally moved my care to another group entirely, 70 miles away, and have things moving forward on a MUCH faster track. It was such a relief to be able to get in with the new team on the same day we called them, and we had a triple biopsy going on the next working day to check on the MRI issues. (Those results were benign, but naturally a follow-up mammogram indicated worrisome calcifications...) On the lighter side, apparently this was the first time anyone had laughed through an entire biopsy for them before and had the surgeon going through Monty Python routines while we were taking samples. :-) Two months after the diagnostic mammogram, we finally have the information we need to get on with my fight. And I am ready. We're still early in my journey here, but we know we're in good hands medically now. I've always been in the best hands to carry me along -- my fiance' has been my rock every step of the way and has been by my side for every appointment and nerve-wracking phone call that did or didn't come. We also know that we're greatly blessed by our friends and family who have been lifting us up in prayer, and especially by God who continues to see us through each moment and carry us both. We know we are not alone, and we are deeply grateful.

Update: Had a double mastectomy on 4/2/13, and pathology revealed that the main tumor was really invasive lobular carcinoma, with a side of DCIS. The calcifications on the right side also turned out to be a number of pre-cancerous areas, and the sentinel nodes both came back clean. Oncology results were great - NO CHEMO!! Will just need Arimidex for five years. In the meantime, just had the expanders put in for the start of reconstruction... and as rough as it as been trying to adjust to the "new normal", it helps to know that we're well down the road to healing, and we know just how fortunate we are.

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