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Common Questions

  • latoya young Profile

    First round of chemo tomorrow. Feeling a little anxious. Mostly nervous about the side affects.

    Asked by anonymous

    Stage 2A Patient
    over 7 years 7 answers
    • View all 7 answers
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      You will do it!!! We are warriors!!!! Use the meds for side effects and flush your system with water or whatever you want. The hair is the worst!!! You will survive that too. God Bless your journey. Stay in touch here

      Comment
    • Evelyn Heilbrunn Profile
      anonymous
      Survivor since 2012

      Oh, boy. This is probably one of the most nervous times you'll have. I was so afraid of the side effects!

      But I'll tell you, it wasn't nearly as bad as I thought it would be. Believe me, it's no walk in the park. Everybody has some combination of the side effects you've heard of. I had...

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      Oh, boy. This is probably one of the most nervous times you'll have. I was so afraid of the side effects!

      But I'll tell you, it wasn't nearly as bad as I thought it would be. Believe me, it's no walk in the park. Everybody has some combination of the side effects you've heard of. I had very little nausea and vomiting, but I lost all my hair -- including eyebrows and eyelashes, which is really weird. I felt like I had the flu and on top of it that I got hit by a truck.

      Try to take it one treatment at a time. Take a goody bag. Since my treatments were in the morning, my bag had my laptop, needlepoint, a sandwich, snacks, and always M&M's! Sometimes I ate it all, sometimes I didn't want much at all. The treatments last a while so bring something to keep you busy. Nap if you want to (I saw several people with eyeshades!).

      The good thing about the side effects is that your doctors should give you any medication you need to treat them. My doc was VERY generous with everything. I was told that there was no reason I should suffer if I didn't have to.

      Best of luck to you, and keep us posted!

      Comment
  • Roberta S Profile

    Can you have surgery during chemo? They didn't put expanders in and now my clock is ticking for insurance reasons until 2014. So I need things done this year for 100% coverage. Chemo won't be finished until the end of July.

    Asked by anonymous

    Stage 2B Patient
    almost 7 years 6 answers
    • View all 6 answers
    • Wanda S Profile
      anonymous
      Stage 1 Patient

      Hello Roberta. I believe not. I have expanders in and my PS confirmed that I have to wait minimum 6 weeks after last chemo to switch to implants due to allowing white blood count to recover as well as wait until your body have the ability to heal wounds due to chemo.

      1 comment
    • Lorraine Hill Profile
      anonymous
      Patient

      Hope it goes well with insurance company ! X

      Comment
  • Connie Leon Profile

    anyone have returning cancer after having treatmen

    Asked by anonymous

    Stage 1 Patient
    about 7 years 7 answers
    • View all 7 answers
    • Thumb avatar default
      anonymous
      Survivor since 2011

      Yes, Connie, I had a recurrence after treatment (15 months). It was devastating because I really had not pulled myself together from the original diagnosis. I'm so thankful to God that it was contained and had not spread. I think the second 'hit' by cancer is worse because you know what to...

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      Yes, Connie, I had a recurrence after treatment (15 months). It was devastating because I really had not pulled myself together from the original diagnosis. I'm so thankful to God that it was contained and had not spread. I think the second 'hit' by cancer is worse because you know what to expect the second time around. The way I see it, we smacked that cancer really hard and I dare it to show up again. It is easy to let it get you down...don't let it. I am more grateful everyday for the life I have been given and I

      3 comments
    • Lisa S Profile
      anonymous
      Stage 4 Patient

      Yup I'm a two-timer. I had a year before it came back again. First Time around I had mastectomy chemo radiation and hormonal tx. Now it's back in my lymph nodes it was in my liver but chemo got it out and I have 2 small tumors in one lung. I'm taking xeloda and its working for now. It's scary...

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      Yup I'm a two-timer. I had a year before it came back again. First Time around I had mastectomy chemo radiation and hormonal tx. Now it's back in my lymph nodes it was in my liver but chemo got it out and I have 2 small tumors in one lung. I'm taking xeloda and its working for now. It's scary but I do what I have to and enjoy what I can.

      3 comments
  • Thumb avatar default

    If I didn't get mouth sores after chemotherapy will it mean I won't lose my hair.?

    Asked by anonymous

    Learning About Breast Cancer
    over 4 years 4 answers
    • View all 4 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Mouth sores and hair loss from chemo have no correlation. The typical chemotherapy's cause temporary hair loss. I never had mouth soreness but lost my hair. Typically what can happen is your scalp becomes a bit sore, tingly, or sensitive. Your hair will start to come out in clumps. Once I...

      more

      Mouth sores and hair loss from chemo have no correlation. The typical chemotherapy's cause temporary hair loss. I never had mouth soreness but lost my hair. Typically what can happen is your scalp becomes a bit sore, tingly, or sensitive. Your hair will start to come out in clumps. Once I shaved my head, I no longer had the sore scalp. You do NOT have to shave your head but opt to hang on to what hair you have left. Lots of ways to disguise it.... scarves, hats. Ask your hairdresser for help. I thought the loss of hair was the worst thing about cancer treatment. It all grew back within a year for the last chemotherapy. My hair started to drop at day 14. Take care, Sharon

      4 comments
    • Betti A Profile
      anonymous
      Survivor since 2013

      Everyone is different and what side effects they get or don't get. I lost most of my hair but didn't get any mouth sores. It also depends on the chemo. drugs.

      Comment
  • angelia jones Profile

    What does it mean to have 34 lymph nodes removed and 31 came back positive for cancer ?

    Asked by anonymous

    Learning About Breast Cancer
    about 7 years 5 answers
    • View all 5 answers
    • angelia jones Profile
      anonymous
      Learning About Breast Cancer

      I have had breast cancer now for 6 years. Chemo first then double breast removed and 31 nodes positive for cancer my cancer dr said I would have cancer for the rest of my life. I have had 26 rounds of radiation and still have cancer my tumor markers are at 14.9. So we wait. I was just wondering...

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      I have had breast cancer now for 6 years. Chemo first then double breast removed and 31 nodes positive for cancer my cancer dr said I would have cancer for the rest of my life. I have had 26 rounds of radiation and still have cancer my tumor markers are at 14.9. So we wait. I was just wondering if anyone has had a similar experience

      Comment
    • Evelyn Heilbrunn Profile
      anonymous
      Survivor since 2012

      As the other women have said, it means your cancer has spread beyond your breast. You had a lot of positive nodes. You're in for a lot of intensive testing, including a lot of scans, blood work, and possibly some additional biopsies in other areas of your body.
      You probably will have a long...

      more

      As the other women have said, it means your cancer has spread beyond your breast. You had a lot of positive nodes. You're in for a lot of intensive testing, including a lot of scans, blood work, and possibly some additional biopsies in other areas of your body.
      You probably will have a long treatment course -- many rounds of radiation and/or chemo. Remember that the whole idea is to get rid of all cancer cells in your body. It will be tough. Keep your eyes on the prize -- recovery! Best of luck to you.

      1 comment
  • fareeha kaleem Profile

    my mother was diagnosed with stage 2 breast cancer one year back...after getting her treatment (surgery,chemo and radio therapy) she suffered with dry cough very often specially at the time she is sleeping...is there any serious problem?

    Asked by anonymous

    Learning About Breast Cancer
    over 3 years 5 answers
    • View all 5 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I've read where some develop Pneumonia from some of the treatments, has she told her doctor about it?

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      It could be several things she should be talking to her oncologist or a pulmonary doctor. Mine was from radiation and required medication to clear up.

      Comment
  • Thumb avatar default

    Anyone taking hormone suppressing drugs and experiencing hot flashes reluctant to take Effexor because it is considered an antidepressant? Not sure I want to take it and add another pill to my inventory.

    Asked by anonymous

    Stage 1 Patient
    over 6 years 11 answers
    • View all 11 answers
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I've been on tamoxifen for over a year. I finally got out of my own way and asked for some help. Today is the first day and it is only 37.5. I'm looking forward to no night sweats even if I have to take another pill. It's really hot here today and I don't have air conditioning so it is hard to...

      more

      I've been on tamoxifen for over a year. I finally got out of my own way and asked for some help. Today is the first day and it is only 37.5. I'm looking forward to no night sweats even if I have to take another pill. It's really hot here today and I don't have air conditioning so it is hard to tell if it's helping yet.

      3 comments
    • Thumb avatar default
      anonymous
      Stage 1 Patient

      Thanks Lisa! By the way, I bought the chillow and tried it for two nights. I think I went to bed too early because I found that the coldness wore off before the end of the night and at the point when the hot flashes seem to stop. I did put it in the refrigerator as directed for the coldest...

      more

      Thanks Lisa! By the way, I bought the chillow and tried it for two nights. I think I went to bed too early because I found that the coldness wore off before the end of the night and at the point when the hot flashes seem to stop. I did put it in the refrigerator as directed for the coldest setting. Maybe I need to leave it in the refrig for an hour and not use it until ready to go to sleep. Thanks again for your advice. I will get my prescription filled next week (only because the pharmacy I use is closed on the weekends and likely will close early today).

      1 comment
  • Thumb avatar default

    Is it reasonable to work throughout cancer treatment? I am not sure what to expect.

    Asked by anonymous

    Learning About Breast Cancer
    about 6 years 8 answers
    • View all 8 answers
    • Thumb avatar default
      anonymous
      Stage 2A Patient

      It depends upon your treatment. I had a lumpectomy and radiation and worked throughout. I was out a total of 3 days for lumpectomy and two days for re-excision and did my radiation through lunch every day. If you are having mastectomy and/or chemo I know it would be very different.

      Comment
    • Thumb avatar default
      anonymous
      Stage 3C Patient

      Everyone is different. If you have the ability to work and in your off time you can rest a lot it can be done. Every person and every job and family situation is unique. I'd say go for it but have a plan B just in case. Taking care of your body during this time is number one priority.

      Comment
  • Keri Underwood Profile

    . The closer it gets to surgery (tuesday)and the more research the more confused I get. I have always planned on having lumpectomy followed by radiation . I am wondering why radiation & should I do a mastectomy?

    Asked by anonymous

    Learning About Breast Cancer
    over 6 years 10 answers
    • View all 10 answers
    • Thumb avatar default
      anonymous
      Survivor since 2012

      Lumpectomy is followed by radiation. I don't regret my choice a year and a half out from surgery.

      Comment
    • Karen G Profile
      anonymous
      Stage 2A Patient

      I started with lumpectomy and Sentinal node biopsy. I don't regret doing my lumpectomies eventhough I ended up with a Mastectomy.

      Comment
  • Natallia  Moore Profile

    I'm stage III. Doctor prescribed chemo before surgery. Why is that? Is it possible to shrink tumours and save the breast?

    Asked by anonymous

    Learning About Breast Cancer
    about 6 years 5 answers
    • View all 5 answers
    • Leah Fortune Profile
      anonymous
      Stage 4 Patient

      It's also to see if you are responding to chemo

      Comment
    • sharon s Profile
      anonymous
      Learning About Breast Cancer

      If it was more aggressive and fast growing they would likely flip the treatment and get it out

      Comment
  • Dikra Saleh Profile

    Is this feeling of breathlessness common after chemotherapy?

    Asked by anonymous

    Learning About Breast Cancer
    over 4 years 4 answers
    • View all 4 answers
    • Gillian Ashworth Profile
      anonymous
      Learning About Breast Cancer

      I felt the same. I'm much better now, 1 year later. I did check with my Oncologist where he ordered images which were clear, thankfully. It's definitely something to speak to your doctor about. Best of luck.

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      I would definitely talk to your oncologist about this. Some chemotherapy's can raise problems with your heart. He/she may want to refer you to a cardiologist. Take care, Sharon

      3 comments
  • malik yousuf Profile

    what treatment is advised in triple negative breast ca after chemo surgery and radiation

    Asked by anonymous

    Learning About Breast Cancer
    about 6 years 5 answers
    • View all 5 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Your doctor(s) will advise what treatment(s) will best be suited for you. Everyone's plan is individualized so what you may be advised to do is different for someone else with the same type.

      Comment
    • André Roberts Profile
      anonymous
      Stage 1 Patient

      There isn't anything more for triple negative then what you questioned. Surgery, chemo & radiation. ER positive has a hormone blocking pill that is taken for 5 to 10 years. Do know that triple neg cancer responds very well to chemo. Prayers to you.

      Comment
  • Thumb avatar default

    My hair is almost covering my scalp but still have the longer white hair too how long does this last? Anyway to make it look better and not so fuzzy?

    Asked by anonymous

    Learning About Breast Cancer
    over 6 years 2 answers
    • Leah Fortune Profile
      anonymous
      Stage 4 Patient

      Mine is just covering my scalp. Some of my fuzzy's were falling out so I shaves them. Now everything is pretty even.

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I believe mine is starting to return, 2 months after chemo. I asked a gal who I made an appointment with for a face wax and she thought it looked like it even though I had never met her. She said it looks like it's coming in white but then my hair was pretty much gray before this so guess time...

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      I believe mine is starting to return, 2 months after chemo. I asked a gal who I made an appointment with for a face wax and she thought it looked like it even though I had never met her. She said it looks like it's coming in white but then my hair was pretty much gray before this so guess time will tell. I don't want to do anything with it for now unless it really becomes unruly and then we shall see. Actually right now it's fairly soft compared to a few weeks ago when it felt like stubble.

      2 comments
  • Thumb avatar default

    I just found out that my Christian friends knew about my breast cancer and did not help, nor ask me - I don't want to have anything to do with God or Christianity anymore. This is disgusting.

    Asked by anonymous

    Stage 2B Patient
    almost 7 years 20 answers
    • View all 20 answers
    • Thumb avatar default
      anonymous
      Stage 2A Patient

      Your friends are not God...He would not have done that. I have had the same experience but I don't blame God...Everyone is responsible for their actions and choices.

      Comment
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      As long as you are full of anger and self pity you will not be able to look in the mirror and see the strength and beauty looking back at you. A child of God and he never gives us more than we can handle. With the cancer diagnoses comes a very rocky journey physical, emotinal, and spirtual. I can...

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      As long as you are full of anger and self pity you will not be able to look in the mirror and see the strength and beauty looking back at you. A child of God and he never gives us more than we can handle. With the cancer diagnoses comes a very rocky journey physical, emotinal, and spirtual. I can tell you we have or are in the same place. 2 years and 2 months later I am cancer free and I am blessed to LIVE with this community of the strongest women and their caregivers in the world. Change churches, find a breast cancer support group, and check in here for love and support. God Bless your journey. Honey... Put on your big girl warrior panties and kick some cancer but...I got your back

      Comment
  • guri dhaliwal Profile

    When partial masectomy done and tissue sent to lab for testing. One lymph node taken from right breast has a spot which is cancer about 2mm . Whats best to have done. Lymph nodes removal or radiation and chemotherapy wil do the job???

    Asked by anonymous

    Learning About Breast Cancer
    over 7 years 5 answers
    • View all 5 answers
    • Erin Timlin Profile
      anonymous
      Survivor since 2011

      I'd have the nodes removed. I had at least 2 positive, 14 removed overall. The nodes are still what scared me the most since that's what indicated spread beyond the breast. Node removal isn't painless BUT it may be worth it in the end. Good luck!

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Guri,

      I had a mastectomy, with 5 sentinel nodes removed. I then had chemotherapy and hormone blocking drug for 5 years. The cancer found in the node was very tiny. The surgeon said she could go back in and remove all my lymph nodes BUT, the chance of finding any more cancer was about 7%. ...

      more

      Guri,

      I had a mastectomy, with 5 sentinel nodes removed. I then had chemotherapy and hormone blocking drug for 5 years. The cancer found in the node was very tiny. The surgeon said she could go back in and remove all my lymph nodes BUT, the chance of finding any more cancer was about 7%. She said there was a possibility the surgery could be so damaging that she would not recommend it for me. I live a very active lifestyle riding and driving horses. It would have killed me if I had ended up with lymphedema and somehow severly limited. My oncologist agreed and I was grateful for their thoughtful advise and looking at my overall big picture. I am 5 years out with no reocurrance. It is something you, your surgeon and oncologist have to determine for you. There are some women who would have said.... 7% is even a risk they didn't want to take. I was willing to "roll the dice". Finding that little bit of cancer in one lymph node did not change my treatment plan. I was always slated for chemo. Take care, Sharon

      Comment
  • Chiyo  Kacinel  Profile

    Trying to send question but do not see that it was sent?

    Asked by anonymous

    Learning About Breast Cancer
    8 months 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Lessen side effects of what?

      3 comments
    • Chiyo  Kacinel  Profile
      anonymous
      Learning About Breast Cancer

      Are there drugs to take to lessen sideffects?

      Comment
  • Kim Paczkowski Profile

    My lumpectomy is a week from today and i didn't think to ask how long the surgery usually lasts. I'm feeling really vein but i'm feeling really insecure about how my breast will look after the surgery. I'm sure this is normal any suggestions?

    Asked by anonymous

    Patient
    over 7 years 7 answers
    • View all 7 answers
    • Jk Joyce Profile
      anonymous
      Survivor since 2012

      I had a lumpectomy and three weeks later had to have another surgery to remove more margins. My right breast is about two cups smaller than the left....but it does not bother me a lot cause I am alive. :)

      Comment
    • Jennifer Vance Profile
      anonymous
      Learning About Breast Cancer

      I just had mine 4 weeks ago, and it definitely is not as bad as i thought it could be. I am 27 and always loved my breasts and as a result I was really worried. Now you can't even tell with a bra on and wearing nothing the one with the lump removed just sits a little higher and is a little...

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      I just had mine 4 weeks ago, and it definitely is not as bad as i thought it could be. I am 27 and always loved my breasts and as a result I was really worried. Now you can't even tell with a bra on and wearing nothing the one with the lump removed just sits a little higher and is a little smaller. The lump they took was 2.4 cm and margins were clear so they took a good chunk. But I have to remember this is a testament to my strength and perseverance. Also the smurf nipple from the dye with the sentinel node biopsy was pretty funny. I also just have to remember any future boyfriend probably won't even notice :)

      Comment
  • Linda Rastliff Profile

    Essential thrombocytopenic i have it taking 500mg hydrea. Could it be from?.Chemo.stage 3 ducal carcinoma breast cancer. Osteomyelitis reaction fron provia.

    Asked by anonymous

    Learning About Breast Cancer
    3 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      Have you discussed your concerns with your doctor(s)? That is where I would start.

      Comment
  • Laila Amri Profile

    Does frequent self-examination and pressure on breast lumps help spread cancer in it.. because I notice a lump on my breast and I keep examining it and touch since 3 day and today when I wake up I feel its smaller !!

    Asked by anonymous

    Learning About Breast Cancer
    3 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      Have you seen your doctor about it? I've never heard of spreading cancer by doing a self exam. Perhaps it's a cyst that will come and go (from my experience but don't think it was doing that from self exams). Make an appointment with your doctor as some testing may be needed to determine what...

      more

      Have you seen your doctor about it? I've never heard of spreading cancer by doing a self exam. Perhaps it's a cyst that will come and go (from my experience but don't think it was doing that from self exams). Make an appointment with your doctor as some testing may be needed to determine what it may be.

      1 comment
  • Thumb avatar default

    How do you know if your cancer spreads to another part of your body? Im having memory issues.

    Asked by anonymous

    Learning About Breast Cancer
    4 months 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Have you discussed your concerns with your doctor(s)? Some chemotherapy medications cause what they call "chemo brain" and short term memory loss is basically what it is-is my understanding.

      Comment
    • Jennifer  Orsborne  Profile
      anonymous
      stage_2b Patient

      Yes mine spread to lympnodes. Keep a notebook handy you are dealing with an overwhelming amount of information and stress. Write everything down and keep it with you. My binder has everything I need at my fingertips and I keep it organized so my family can find things and write questions they have

      Comment
  • Deborah Clark Profile

    Just diagnosed with DCIS and haven’t met with surgeon yet. That’s coming up this Wednesday. Feeling scared and a little depressed . Any thoughts on lumpectomy vs mastectomy?

    Asked by anonymous

    Patient
    4 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I had an area of IDC with an area of DCIS right next to it and decided at my age (62) I was going to do a mastectomy and my Surgeon agreed that was my best choice. In the surgical specimen was a 2nd area of IDC and 1 of LCIS so am glad I went that route as neither of those had been mentioned. ...

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      I had an area of IDC with an area of DCIS right next to it and decided at my age (62) I was going to do a mastectomy and my Surgeon agreed that was my best choice. In the surgical specimen was a 2nd area of IDC and 1 of LCIS so am glad I went that route as neither of those had been mentioned. Also, in reading the operative report the Surgeon said due to the 2 areas we knew about I would have been disfigured with a lumpectomy due to the size. Work with the Surgeon and see what he/she recommend, but that final decision is yours.

      3 comments
  • Lisa  Hart Profile

    I have just been diagnosed with stage 1and one centimeter mass I’m being sent to surgeon for care is there anything I need to ask ?

    Asked by anonymous

    Learning About Breast Cancer
    4 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      My main question was what type of surgery is best in my case. If you have a nurse navigator they are a wealth of things to ask and mine also asked some questions for me when I forgot what I was going to ask.

      Comment
  • Kim Reid Profile

    Can you have triple negative breast cancer along with metastatic?

    Asked by anonymous

    Learning About Breast Cancer
    4 months 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm not a doctor but would think any cancer not only breast can become metastatic. Have you discussed this with your team?

      Comment
    • Veronica Harvey Profile
      anonymous
      stage_4 Patient

      I am Triple negative, Stage 4 and yes, metastatic also

      Comment
  • Sharyn McKenna Profile

    I had a double mastectomy with a dflap(?) for the reconstruction. It is now October and i still have pain in my chest bone. Meds do not help, have been seeing a hypnotist for the pain butnothing is helping. Did anyone else have this pain?

    Asked by anonymous

    Learning About Breast Cancer
    4 months 2 answers
    • Sharyn McKenna Profile
      anonymous
      Learning About Breast Cancer

      I had the double mastectomy in December 2018, sorry that i forgot to mention that before.

      Comment
  • Tiffani  Estep Profile

    I have not been dianosed with breast cancer but had the gene test and came back positive for PALB2. I have been recommended to have the double mastecomy and i just so confused on should i do it or not

    Asked by anonymous

    Learning About Breast Cancer
    4 months 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      You say you haven't been diagnosed with BC but had genetic testing. If you are unsure seek another opinion and if need be a third. Gather as much information as you can and make your decision from there.

      Comment
    • Irene Kane Profile
      anonymous
      Learning About Breast Cancer

      I have had a mamagram ultrasound and a biopsy i ha e been called ba k as i have c1which means indaquit doea anyone no what will tgey do now.

      1 comment

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