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Common Questions

  • Thumb avatar default

    I think I waited to long to cut my hair before I started to loose it. It's now matting together! So strange !! Now I will shave it but fear it is going to hurt like heck. Anyone else wait?

    Asked by anonymous

    Patient
    almost 6 years 5 answers
    • View all 5 answers
    • André Roberts Profile
      anonymous
      Stage 1 Patient

      I didn't cut my hair short prior to shaving. If you use 'no more tangles' & hold your hair at scalp, you can try to brush out the clumps. I did this once after washing it. After I could stand the hair everywhere, my husband buzzed it with clippers then shaved it bald with his razor. Didn't hurt...

      more

      I didn't cut my hair short prior to shaving. If you use 'no more tangles' & hold your hair at scalp, you can try to brush out the clumps. I did this once after washing it. After I could stand the hair everywhere, my husband buzzed it with clippers then shaved it bald with his razor. Didn't hurt at all. My head felt so much better after it was gone. Prayers to you.

      Comment
    • anonymous Profile
      anonymous
      Learning About Breast Cancer

      I waited until last moment also...then I started cutting when it was looking very thin. My head was a bit sore, but it was fine.

      Comment
  • Thumb avatar default

    Did anyone have permanent hair loss after chemo?

    Asked by anonymous

    stage_4 Patient
    about 5 years 4 answers
    • View all 4 answers
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I know of one person who never had her hair come back. She used to be here quite frequently.

      Comment
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      There is a support group on line called Taxotears for women who this has happened to . It does happen to a small minority who go through chemo.

      Comment
  • André Roberts Profile

    I seem to be getting a headache & body stiffness every Monday. I'm thinking it's from the fossomax I take on sat. Anyone else?

    Asked by anonymous

    Stage 1 Patient
    almost 6 years 1 answer
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Hi Andre I was taking fossamax for two months and noticed my jaw was hurting stopped taking it no more pain in my jaw. Do take Vitimin D3 and calcium to protect my bones. Prayers to u IJ

      2 comments
  • Thumb avatar default

    Can anyone tell me if they got constipated while on taxotere and cytoxin?

    Asked by anonymous

    about 4 years 5 answers
    • View all 5 answers
    • sharon s Profile
      anonymous
      Learning About Breast Cancer

      I took a probiotic every day. Still do six mths out.

      2 comments
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Yes, Miralax is a miracle. Have a bottle on hand. Take care, Sharon

      1 comment
  • Thumb avatar default

    I had a slip disk back in March but it was just mild and I could tolerate the pain now after finishing 4 taxols my entire right side is shooting with pain! It's the same side as the slip disk I've tried pain killers they aren't helping

    Asked by anonymous

    Learning About Breast Cancer
    over 4 years 5 answers
    • View all 5 answers
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      I think I would go to a spine doctor. I have had epidurals for a degenerating disc, before, during, and since treatment for breast cancer. The chemo may have made it worse, or it could be another issue. A series of epidurals finally gave me relief. Gabapentin might be something to ask your...

      more

      I think I would go to a spine doctor. I have had epidurals for a degenerating disc, before, during, and since treatment for breast cancer. The chemo may have made it worse, or it could be another issue. A series of epidurals finally gave me relief. Gabapentin might be something to ask your doctors also. It helped me slightly. I know it can be horribly painful, and hope you can get some relief.

      Comment
    • Trisha Muller Quinn Profile
      anonymous
      Survivor since 2014

      You poor thing it's a double whammy!!! While I didn't have back problems , I had dramas with my knees!! Pain meds , heat , massage and TIME ..... Sorry !!! Hopefully someone else will have a solution for you !!! Good luck

      Comment
  • Thumb avatar default

    Lumpectomy/lyphectomy on Monday how long before the swelling 'starts' to subside? I am a DD normally, so now one is VERY large. Ice everyday almost all day. Thanks in advance

    Asked by anonymous

    Stage 2A Patient
    over 6 years 3 answers
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I was a C cup they took a 7.3 mm mass. It was about 10 days before the drain went out. 5 weeks the swelling was gone.

      Comment
    • Jacquie B Profile
      anonymous
      Learning About Breast Cancer

      Ouch. I am a small c cup and didn't swell to much but was very sore and did get a build up of old blood. I had to have more tissue removed, then all was much better. Good luck.

      3 comments
  • jenny rios Profile

    my mom had her last radiation last month and now she is taking tamoxifen .. Its her first week and she is feeling exhausted, nausias and has body aches and chills is that normal??

    Asked by anonymous

    Learning About Breast Cancer
    over 6 years 3 answers
    • Lisa Taylor Profile
      anonymous
      Survivor since 2011

      Yes that is normal you just have to force yourself to get up and walk! The more exercise you get in the better you will feel (maybe 10 minutes a day)

      Comment
    • anonymous Profile
      anonymous
      Survivor since 2012

      That sounds normal to me. It all gets somewhat better with time but if you don't see some improvement in a week or so be sure and let her doctor know.

      Comment
  • Thumb avatar default

    Has anyone ever been mis-diagnosed?

    Asked by anonymous

    over 4 years 2 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Oh yeah....."you are fine, see you next year." That was after 15 mammograms on one breast. Surprise! 7 months later I found the lump. I should have demanded an MRI, my doctor wanted one but breast center said not enough reason to have one. This is why I tell every woman who has a...

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      Oh yeah....."you are fine, see you next year." That was after 15 mammograms on one breast. Surprise! 7 months later I found the lump. I should have demanded an MRI, my doctor wanted one but breast center said not enough reason to have one. This is why I tell every woman who has a questionable mammogram to demand further testing. Don't settle for "Come back in 6 months or a year". You have to be your own best advocate! Take care, Sharon

      2 comments
    • Cha ro Profile
      anonymous
      Learning About Breast Cancer

      My mom's primary doc told her that one of his patients was told she had BC & went through some treatments before finding out it was benign. Scary to think if it happened the other way around.

      4 comments
  • Martha caban Profile

    I was just diagnosed yesterday with DCIS after a surgery when all the abnormal growth was removed. I need to see a oncologist and a radiation oncologist. We are waiting to find out about the hormone reactivity. If anyone can suggest me what it is best?

    Asked by anonymous

    Learning About Breast Cancer
    over 2 years 3 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Martha,
      You do need to be seen by an oncologist as advised. You are in the diagnostic area right now and have to be getting all the pertinent facts. Nobody can tell you what is best for you as that is what your care givers are trying to discover right now. You are on the right path.
      Take...

      more

      Martha,
      You do need to be seen by an oncologist as advised. You are in the diagnostic area right now and have to be getting all the pertinent facts. Nobody can tell you what is best for you as that is what your care givers are trying to discover right now. You are on the right path.
      Take care, Sharon

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      Everyone's makeup of their cancer is different so a plan will be devised just for you. What one may do you may or may not. I am convinced I made the right decisions for me.

      Comment
  • julie s Profile

    For those of you who have had a lumpectomy did you have drains?

    Asked by anonymous

    Stage 2A Patient
    over 6 years 14 answers
    • View all 14 answers
    • Cheryl Wornham Profile
      anonymous
      Learning About Breast Cancer

      Hit wrong button had a lumpectomy no drains

      Comment
    • Cheryl Wornham Profile
      anonymous
      Learning About Breast Cancer

      No I had a lumecto

      Comment
  • Thumb avatar default

    I need to vent. Please forgive me. My husband is getting more attn with a hurt back than I ever got after my dx of BC. Granted, my dx was not life threatening, but neither is his. Not sure where my anger is coming from.

    Asked by anonymous

    Learning About Breast Cancer
    almost 6 years 8 answers
    • View all 8 answers
    • André Roberts Profile
      anonymous
      Stage 1 Patient

      Life threatening? Yes it is. Glad you found it early enough that you have a good out come. Cancer is cancer no matter what. You have a right to be pissed. Cancer trumps back ache! Don't let anyone make you feel belittled cuz your not on your death bed. You are a strong woman who won against...

      more

      Life threatening? Yes it is. Glad you found it early enough that you have a good out come. Cancer is cancer no matter what. You have a right to be pissed. Cancer trumps back ache! Don't let anyone make you feel belittled cuz your not on your death bed. You are a strong woman who won against breast cancer! You are very fortunate. Give your husband a pat on the butt & tell him to suck it up, lol! Prayers to you.

      Comment
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I think you should be upset but I think that it apples and oranges. There is no comparison except they both hurt and can come back. I know when I was in pain and not sure I was ever going to get my life back I lashed out. It is hard to be the lashee. That is one of the reasons I think being the...

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      I think you should be upset but I think that it apples and oranges. There is no comparison except they both hurt and can come back. I know when I was in pain and not sure I was ever going to get my life back I lashed out. It is hard to be the lashee. That is one of the reasons I think being the care giver is the hardest job in the world. You need the ability to let things roll of your back. I'm just not very good at that but thank god my husband was. Vicadin makes my normally god guy into a raving maniac and he thinks he is fine. I hate vicadin unless I'm taking it then I'm fine just fine.

      Comment
  • tiffany weber Profile

    Biopsy today, I have a sick feeling in my stomach... I do not feel good about this... Now I wait

    Asked by anonymous

    Learning About Breast Cancer
    over 6 years 10 answers
    • View all 10 answers
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      Yes, waiting is the hardest part. Please hang in there. Let us know what is going on. Prayers for you and your family.

      1 comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Tiffany,
      So often these turn out to be ok. You have taken the correct steps in finding out what is causing your symptoms. You are much closer to the answer. No matter how this turns out.... whether you get the "All Clear" call or not, at least you will know. I am praying for this to turn out...

      more

      Tiffany,
      So often these turn out to be ok. You have taken the correct steps in finding out what is causing your symptoms. You are much closer to the answer. No matter how this turns out.... whether you get the "All Clear" call or not, at least you will know. I am praying for this to turn out good. If not, you deal with it as it comes. This is so much better than just ignoring your symptoms. It is hell to wait.... Hang in there darlin' you only have a couple of days to wait. Sending positive thought, wishes, and prayers. Take care, Sharon

      1 comment
  • Fats ferreira Profile

    advice pls, mom had tnbc stg 1, had lumpectomy on 1.8mm, got good clean margins of 2cm all round, been doing cmf chemo, two more infusions left, she's tired had enough of it, and now doesn't want rads, anyone decide against radiation?

    Asked by anonymous

    Family Member or Loved One
    almost 6 years 7 answers
    • View all 7 answers
    • Thumb avatar default
      anonymous
      Survivor since 2006

      Please tell your Mother that the worse is over after she completes chemo . Radiation is a breeze:) However ; since she was diagnosed with Triple Negative which is a very aggressive cancer I would stay on course and complete the radiation. Although the ultimate decision is left up to her. I'm a...

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      Please tell your Mother that the worse is over after she completes chemo . Radiation is a breeze:) However ; since she was diagnosed with Triple Negative which is a very aggressive cancer I would stay on course and complete the radiation. Although the ultimate decision is left up to her. I'm a 6 year 5 month TNBC survivor and I did it all chemo and radiation . Couldn't take a chance of thinking about if I had a reoccurrence by not following my oncologist recommendation if I would have any regrets since the only treatment for TNBC is chemo and or chemo/radiation . Unfortunately they don't have a 5 year pill for us to take which puts us at a higher risk for reoccurrence within 5 years . Your Mother was diagnosed in a lower stage than I was and should have no problem with remaining cancer free pass the 5 year mark. Good luck to her and your family. I'll be praying for all of you. Just don't ever stop believing don't lose her hope and faith and most importantly stay encouraged .
      Love and Blessingsy

      Comment
    • julie s Profile
      anonymous
      Stage 2A Patient

      I'm tn too... Had to do rads as no other treatments avail (hormone blockers, etc) tell your mom radiation is a piece of cake!

      Comment
  • anonymous Profile

    Has anyone done nipple tattooing, if so did who did it for you? I have 2 really good tattoo artists I use on a regular basis, would it be out of the ordinary to ask one of them?

    Asked by anonymous

    Stage 2A Patient
    about 6 years 7 answers
    • View all 7 answers
    • Leah Fortune Profile
      anonymous
      Stage 4 Patient

      It's alittle early but have them check into it maybe practice

      Comment
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I would have it done by an artist every time. Go in to a doctor or an artist knowing what you what. It is your body get what you want and need. My tattoo artist works with 3 plastic surgeons and does ALL of their tattooing. I'm working with her to find some decortive add ons to my nipples to...

      more

      I would have it done by an artist every time. Go in to a doctor or an artist knowing what you what. It is your body get what you want and need. My tattoo artist works with 3 plastic surgeons and does ALL of their tattooing. I'm working with her to find some decortive add ons to my nipples to hide some of the scars. What I see onYou Tube about nipple tattoos makes me crazy. Using a washer to measure my areola NOT HAPPENING!!!! I want an artist to give me the statement that my I deserve. My body is not about the insurance payment it is about what I look at every day and the journey that got me to this place. I am a warrior living in and with God's grace.

      Comment
  • Thumb avatar default

    I went to Doctor . She came back in the room and made a mammogram appointment and handed me a paper on Inflammatory Breast Cancer....Can I really have it? So scared

    Asked by anonymous

    Learning About Breast Cancer
    over 6 years 7 answers
    • View all 7 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Inflammatory breast cancer is uncommon. I am extremely saddened by the cold and callused behavior of your doctor, but I am not surprised. Try not to go to the --dark-side--
      Even with a mammogram you probably won't get a complete diagnosis. The day of the mammogram, they may also do an...

      more

      Inflammatory breast cancer is uncommon. I am extremely saddened by the cold and callused behavior of your doctor, but I am not surprised. Try not to go to the --dark-side--
      Even with a mammogram you probably won't get a complete diagnosis. The day of the mammogram, they may also do an ultrasound, and possibly a biopsy. Believe me, it is the waiting for the tests that is the torturous part. I know you are terrified, and I wish I could say the words that could diffuse some of that. You ARE doing all the right things. You had a doctor check you and now getting the proper testing. I know doctor's can't get wrapped up in sentimentality but for heaven's sake, a bit of compassion seems to be called for. I think we all have had stories of lack of caring but be assured, we all care about what is happening to you right now and how you feel. We have all been there.... and we are alive and have empathy for what you are going through. I wouldn't try to read up on inflammatory breast cancer right now. It will just scare you even more than you already are. When to you have your mammogram? If I were you, I would also request an ultrasound and a biopsy to make sure you know what is going on at a cellular level. Try to stay busy, get some exercise even it taking some little walks. Believe me, we know how you are feeling. Please keep in touch with us. If you have questions, PLEASE let us know. We will pray for you, darlin' hang in there and take care, Sharon

      Comment
    • Lynn H Profile
      anonymous
      Learning About Breast Cancer

      Hopefully your next step is an MRI followed by a biopsy. I was diagnosed Oct 2008 with Inflammatory BC and luckily seem to be cancer free now. Stay away from Internet searches-every case is different. Good luck to you.

      Comment
  • Mary G Profile

    Struggling once again, hair is growing very slow. I look like a boy and don't feel attractive at all. I tried adding color and it looks worse. I feel ugly and ashamed and am having anxiety about a presentation at work and going to my sons graduation.

    Asked by anonymous

    Survivor since 2013
    almost 5 years 13 answers
    • View all 13 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Mary, please don't be so hard on yourself. Hair will come back as I can attest, in fact it seems mine has grown faster than it ever did. I was bald in June 2013 and had my first haircut in March 2014. I know friends are trying to cheer you up and make like things have never happened but we all...

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      Mary, please don't be so hard on yourself. Hair will come back as I can attest, in fact it seems mine has grown faster than it ever did. I was bald in June 2013 and had my first haircut in March 2014. I know friends are trying to cheer you up and make like things have never happened but we all know it takes time. I've run into so many people, some I don't even know and they ask me how I'm doing. I went to an all school reunion in Sept., 2 weeks after completing rads., and when people saw my nametag they asked how I was. I've sorta blogged about my year in the alumni paper so they knew the scoop if they read it. Be kind to yourself and all will be OK, take care. Betti

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Been there done that!!! I list my wallet and had to have anew picture taken 3 minths after my last chemo and 1 month after rads. I don't even recongnize that person. The big BUT is I thank God she came and made
      me well that she found the strength to endure the hard journey. Give her a great...

      more

      Been there done that!!! I list my wallet and had to have anew picture taken 3 minths after my last chemo and 1 month after rads. I don't even recongnize that person. The big BUT is I thank God she came and made
      me well that she found the strength to endure the hard journey. Give her a great big yourself a big hug and be glad you the strength to be a beautiful warrior and the future
      is a reality take a selfie and look at in a year and I promise you will see your beauty.

      Comment
  • Stephanie S Profile

    I'm struggling with sleep due to leg pain & hot flashes, mostly at night. Finished taxol 2 weeks ago.. When did others start to have relief?

    Asked by anonymous

    Stage 3A Patient
    about 6 years 5 answers
    • View all 5 answers
    • julie s Profile
      anonymous
      Stage 2A Patient

      I did TAC.. It was probably about a month before I really felt better. Positive thoughts and prayers coming your way!

      1 comment
    • Rita Jo Hayes Profile
      anonymous
      Survivor since 2009

      My Ono doc put me on citalopram for both of those problems. I had them severely. This helped tremendously! Good luck.

      Comment
  • Thumb avatar default

    when getting chemo every 3weeks when does hair start falling out

    Asked by anonymous

    Learning About Breast Cancer
    almost 5 years 11 answers
    • View all 11 answers
    • anonymous Profile
      anonymous
      Learning About Breast Cancer

      Yes im on a tc mix but no shot i told my dr i didnt want the shot unless my blood got so low and she could show me where it did a week later she did my levels and i was not that low thankgod i didnt want them

      3 comments
    • Thumb avatar default
      anonymous
      Patient

      For me it was day 21:( when it started..

      Comment
  • kim c Profile

    I went years without a vertigo episode. Now I've had two episodes since being diagnosed in October. Because I've had it before, the docs are just ignoring it. I think they should be more cautious and get an MRI. Trying to get up the nerve to insist on it.

    Asked by anonymous

    Stage 1 Patient
    about 6 years 5 answers
    • View all 5 answers
    • julie s Profile
      anonymous
      Stage 2A Patient

      You will need to be your own advocate and insist. Even if its for your own peace of mind, demand any and all tests that are even remotely appropriate.

      1 comment
    • terri best Profile
      anonymous
      Stage 2B Patient

      Julie couldn't have said it better. You know your body better than anyone else. I had an MRI of both breasts after I was diagnosed. When I met with my oncologist after my lumpectomy I requested a PET scan and Oncotype test. I wanted to have all the information in front of me to help determine...

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      Julie couldn't have said it better. You know your body better than anyone else. I had an MRI of both breasts after I was diagnosed. When I met with my oncologist after my lumpectomy I requested a PET scan and Oncotype test. I wanted to have all the information in front of me to help determine whether or not chemo was the way to go. A sentinel node biopsy showed one node involved. The PET ruled out any other cancer in my body. The Oncotype determined that I did need chemo. Best of luck to you.

      Comment
  • Cheri Garrison Profile

    I have had a bruised reddish place on my left breast it's the size of an egg..I have had it for 3 weeks now..concern!

    Asked by anonymous

    Learning About Breast Cancer
    over 4 years 5 answers
    • View all 5 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Now Cheri, why are you waiting? Please call your doctor and get an appointment. We have no way of knowing what this is. Try not to go to the dark side and think this is cancer. There are lots of other things it could be but only your doctor can identify it. Be brave darlin' and make an...

      more

      Now Cheri, why are you waiting? Please call your doctor and get an appointment. We have no way of knowing what this is. Try not to go to the dark side and think this is cancer. There are lots of other things it could be but only your doctor can identify it. Be brave darlin' and make an appointment. . Take care, Sharon

      Comment
    • mary alexander Profile
      anonymous
      Learning About Breast Cancer

      You should call a doctor. The sooner you do it the less anxiety you will have in the long run . There is a mountain of support for cancer patients if it turns out to be cancer. Take care and God Bless.

      Comment
  • jenny rios Profile

    Is normal that after 2 weeks that my mom had a lumpectomy the breast has bruisedes and is swollen?

    Asked by anonymous

    Learning About Breast Cancer
    over 6 years 6 answers
    • View all 6 answers
    • Jan Jones Profile
      anonymous
      Learning About Breast Cancer

      My whole breast was black after the lumpectomy from bruising. But by the radiation treatments the bruising was gone. Can't say how long, this was 12yrs ago. It is great that you are giving your loved one all this love and support!!!

      Comment
    • Erin Timlin Profile
      anonymous
      Survivor since 2011

      Yes. My breast conservation surgery (which was technically a lumpectomy) caused more tenderness, pain and bruising (holy cow, it was awful!) than the mastectomy I eventually had.

      Comment
  • André Roberts Profile

    Happy New Year to all of you wonderful women. I hope you have happiness, love, comfort, hope, prosperity & most of all good health. Thank you for being there for me. Prayers to you.

    Asked by anonymous

    Stage 1 Patient
    about 6 years 2 answers
    • Jk Joyce Profile
      anonymous
      Survivor since 2012

      Thanks and praying for the same for you.

      Comment
    • Morgan Moser Profile
      anonymous
      Stage 2B Patient

      Happy New Year Gorgeous Pink Sister!!! Continue to rock in 2013!!!

      Comment
  • RENAE RATLIFF Profile

    I KEEP GETTING A RASH UNDER MY LEFT BREAST...COULD THAT BE A SIGN OF EARY STAGE BREAST CANCER!!!

    Asked by anonymous

    Learning About Breast Cancer
    about 5 years 4 answers
    • View all 4 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Renae,
      There are SO many other things it could be and breast cancer would be very far down the list. Please do not be afraid to go to your doctor and have this checked out. Sounds uncomfortable. Take care, Sharon

      1 comment
    • anonymous Profile
      anonymous
      Survivor since 2013

      It could be caused from my different things if it doesn't go away have a fr check it out

      Comment
  • Thumb avatar default

    Please forgive my question. I have breast cancer and my mind is going. I find that when I read a good book I am distracted, even laugh, so what book are you reading Medical, fiction? Read "outlander series" by D. Gabaldon

    Asked by anonymous

    Stage 2B Patient
    over 6 years 4 answers
    • View all 4 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      I think chemo messes with your brain and you end up forgetting things, getting confused, lack the ability to concentrate, etc. When I was going through chemo, the only thing I found I could do was computer solitaire. Forget reading.... Now, 5 years later, I am back to normal as of a long time...

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      I think chemo messes with your brain and you end up forgetting things, getting confused, lack the ability to concentrate, etc. When I was going through chemo, the only thing I found I could do was computer solitaire. Forget reading.... Now, 5 years later, I am back to normal as of a long time ago. I am reading the book "2030" a futuristic book about a time when cancer has been cured and people are living a L-O-N-G time. That is the rub...
      the "Olds" are using all the resources and the young folks are pretty upset about it. Entertaining to me.... because I am a ~fossil~ . The other books I have read .... more entertainment are the two "Blockwatch" books by Cinda Christie. Fun little books especially if you live in the pacific NW. About a cranky retired Boeing worker who takes on the job as Blockwatch Captain for his neighborhood. Sounds boring but I found them to be very entertaining and could hardly wait for the sequel to come out. Hang in there darlin' you will get better. Take care, Sharon

      3 comments
    • Dawn Sullivan Profile
      anonymous
      Stage 3A Patient

      I love the Stephanie plum series by Janet Evonovich. My husband calls them my giggle books.

      1 comment

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