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Common Questions

  • Thumb avatar default

    treatment options for invasive lobular carcinoma

    Asked by anonymous

    Learning About Breast Cancer
    over 5 years 2 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Marianne is right....treatment for breast cancer.... nearly any breast cancer depending on size, stage, grade, node involvement, hormonal status, is surgery, lumpectomy or mastectomy, chemotherapy, hormone blocking drugs, and/or radiation. The treatment plan is adjusted for your unique type of...

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      Marianne is right....treatment for breast cancer.... nearly any breast cancer depending on size, stage, grade, node involvement, hormonal status, is surgery, lumpectomy or mastectomy, chemotherapy, hormone blocking drugs, and/or radiation. The treatment plan is adjusted for your unique type of cancer and its cells. Stick with us here... we have all been through a variety of treatments and can share out experiences. We can't predict how you will react to any of the treatments because we are all so different. Hang in there darlin' we are all sister's here. Take care, Sharon

      1 comment
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I'm stage 3 ILC ER no nodes 7.3 cm mass taken in lumpectomy. I had surgery then chemo then radiation now 5 years tamoxifen(could not tolerate AIs). Your treament should be taylored to your needs. There is a lot of good information on breastcancer.org

      Comment
  • Carla Victor-rawson Profile

    Starting radiation this week, is it common practice to be lying prone having your breast and arm pit radiated ? They attempted to have me lying on my back but said there was a fold and didn't want me to get blisters . Just want make sure they get it all!

    Asked by anonymous

    Learning About Breast Cancer
    almost 6 years 6 answers
    • View all 6 answers
    • Jk Joyce Profile
      anonymous
      Survivor since 2012

      I layer flat too and looked at a pretty design on the ceiling. Trust the radiologist....they know best for you. Good luck!

      2 comments
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I was on my back my arms over my head. I held handles they positioned my arms. They also had my turned my head. Those to things streched the folds out. Turning my head also kept the radiation from catching the bottom part of my throat. God Bless on your journey through rads.

      2 comments
  • Ann Bossier Profile

    Anyone had mondor's syndrome after surgery? It's a trombophlebitis on the chest wall due to surgery?

    Asked by anonymous

    Survivor since 2012
    over 4 years 2 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      I've never heard of it and consulted "Google". First and foremost it is RARE! It sounds as if it is a blood clot in a superficial vein caused from the trauma of surgery. It can happen after having breast augmentation, in fact that is the case sited or any type of breast surgery. I would just...

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      I've never heard of it and consulted "Google". First and foremost it is RARE! It sounds as if it is a blood clot in a superficial vein caused from the trauma of surgery. It can happen after having breast augmentation, in fact that is the case sited or any type of breast surgery. I would just follow the directions and treatment by your surgeon. Take care, Sharon

      Comment
    • Ann Bossier Profile
      anonymous
      Survivor since 2012

      I am not really worried. It is indeed very rare. It is now a year after my mastectomie. I started to have pain on the lateral side of my ribs and felt like a kind of chord. Iam now taking anti inflammatory drugs and its much better. Its a benign condition .

      Comment
  • Grace Klimek Profile

    I lost my husband 1 yr 3 months after we were married at the age of 20 with a 6 month old precious baby girl who is now 23 and was diagnosed with MS in 2012 as a mother nothing is worse than not being able to make your child better!

    Asked by anonymous

    Learning About Breast Cancer
    over 4 years 2 answers
    • Grace Klimek Profile
      anonymous
      Learning About Breast Cancer

      I have control to take this cancer away , I am in control on my cancer it is not in control of me so I am taking my life and fighting to live not just get by with fear of the unknown

      Comment
    • Leah Fortune Profile
      anonymous
      Stage 4 Patient

      You can do this

      Comment
  • Thumb avatar default

    small tumor, 2 nodes involved, HER-, positive for PR and ES, onco :good prognosis, my OBGYN said: you have maybe 10 years left, live those. HOW do I find these idiots of professional health care takers?

    Asked by anonymous

    Stage 2B Patient
    almost 6 years 8 answers
    • View all 8 answers
    • Roz Potenza Profile
      anonymous
      Patient

      WHAT? WHAT?? WHAT??? They said what to you??? Are you kidding me?? That's ridiculous. Color me outraged! Unless you are 90 years old you certainly have a great prognosis with treatment. If you are 90 then I can buy the 10 year scenario. Please don't let one stupid doctor and one really...

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      WHAT? WHAT?? WHAT??? They said what to you??? Are you kidding me?? That's ridiculous. Color me outraged! Unless you are 90 years old you certainly have a great prognosis with treatment. If you are 90 then I can buy the 10 year scenario. Please don't let one stupid doctor and one really stupid comment get you down. We are here for you. I am Estrogen positive with one lymph node involvement and I got chemo, radiation and plan on being around for a long time. The docs told me I was in 100% remission. You go girl!!

      2 comments
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      This absolutely drives me crazy! Your OB/GYN sounds like the type who thinks they are GOD or has some special power to see into the future. What a horrible thing to do to a patient.... to present that patient with a limit on their life! No human (doctor or not) can predict how many years we...

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      This absolutely drives me crazy! Your OB/GYN sounds like the type who thinks they are GOD or has some special power to see into the future. What a horrible thing to do to a patient.... to present that patient with a limit on their life! No human (doctor or not) can predict how many years we will live. To me, this doctor has done a major disservice to you and your mental well being. The thing I found out when I was first diagnosed with breast cancer was all the positive stories out there..... amazing, uplifting stories were shared with me. Time and time again, I would hear of women who had dire diagnosis' of breast cancer who were still kicking-it years after they were told things did not look good.
      Darlin' please, please, throw this comment into the trash where it belongs. We are here to prove that one wrong. We are your sisters who just keep waking up each morning and living wonderful lives through thick and thin. Put on those big girl panties and become the warrior that is within each one of us. Fight the fight home-girl! Take care, Sharon

      Comment
  • anonymous Profile

    Day 4 of TC and looks like I have had an allergic reaction red chest and face and neck all with red bumps ? Is this common ? Not worried yet .

    Asked by anonymous

    Patient
    about 5 years 5 answers
    • View all 5 answers
    • Stephanie S Profile
      anonymous
      Stage 3A Patient

      I had the same thing, I took an over the counter allergy medicine and it worked great! Even with the allergy medicine they had me take before infusion I still needed the allergy pills. Hope that helps!

      Comment
    • cindy stephenson Profile
      anonymous
      Learning About Breast Cancer

      Sounds like a taxotere rash - I got it too with first round - let dr know - will prolly add more decadron

      Comment
  • anonymous Profile

    On my way to the hospital for my lumpectomy:( scared but I know I have a lot of people praying for me. Lets get this journey started!

    Asked by anonymous

    Stage 1 Patient
    about 5 years 14 answers
    • View all 14 answers
    • Brandi Mixon Profile
      anonymous
      Survivor since 2012

      Good luck and prayers for you!!

      1 comment
    • Life is Good! Profile
      anonymous
      Survivor since 2003

      It's normal to be scared.... But you have a great attitude! Another step closer to the finish line. Wishing you a smooth recovery. Please keep us posted on how you are doing. We care about you!

      1 comment
  • Kimberly Levesque Profile

    I am currently on tamoxifen (2 months) and the hot flashes are a killer... Talked to my onc and he wrote a sricp for Effexor... I have read many of your posts about it, but I'm feeling a little reluctant... Am I being ridiculous?

    Asked by anonymous

    Patient
    over 4 years 6 answers
    • View all 6 answers
    • Becky Lynn Profile
      anonymous
      Stage 1 Patient

      I take mine in the morning -- 75 mg. works like wonders!

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Kimberly,
      I would give it a try because when it works, it relieves you of most of the hot flashes. I tried it, and other than it didn't help me, I had no adverse side effects. You are not being ridiculous because you are concerned about medication. BUT.... if you have been through...

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      Kimberly,
      I would give it a try because when it works, it relieves you of most of the hot flashes. I tried it, and other than it didn't help me, I had no adverse side effects. You are not being ridiculous because you are concerned about medication. BUT.... if you have been through chemotherapy, there are a boatload of side effects but we don't hesistate to take those drugs. Give it a try.... it might help. Take care, Sharon

      Comment
  • Shaun Franklin Profile

    Is having stiffness and joint pain normal after finishing chemo 4 months ago and radiation 2 months ago?

    Asked by anonymous

    Learning About Breast Cancer
    almost 6 years 2 answers
    • K G Profile
      anonymous
      Survivor since 2011

      My survivor sisters and I just talked about this the other day. All of us are on Tamoxifin, one is not. We all have joint stiffness-mostly in our hips. I think stretching and being active helps relieve some of that.

      Comment
    • dorothy harder Profile
      anonymous
      Survivor since 2011

      Are you on a hormone blocker? If so, yes.

      Comment
  • toni chillious Profile

    I just received my surgery date for and double mastectomy with reconstruction expanders, can anyone tell me how long will the hospital stay will be?

    Asked by anonymous

    Learning About Breast Cancer
    over 5 years 12 answers
    • View all 12 answers
    • Life is Good! Profile
      anonymous
      Survivor since 2003

      It's hard to believe, but I was only in the hospital for 23 hours... most women I know stayed one night, too. Best wishes for a smooth surgery and recovery. Keep the questions coming! We are here for you!

      Comment
    • Cindy Rathbun Profile
      anonymous
      Learning About Breast Cancer

      I was in for two nights for bi-lateral mastectomy with expanders placed. I was told to expect one night stay, but it became two nights. I felt pretty good. The drains were out in a week. The less you move your arms or use them, the faster you will complete the drainage process. Best wishes!

      Comment
  • Thumb avatar default

    I an currently on AC and just lost my hair. I have noticed the top of head is sore. Is there anything I can do to help with this?

    Asked by anonymous

    Learning About Breast Cancer
    over 5 years 5 answers
    • View all 5 answers
    • Leah Fortune Profile
      anonymous
      Stage 4 Patient

      After shaving I used the aquaphor it helped.

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I used Aveeno the blue one. God bless. Try a lint roller to remove the stragglers.

      Comment
  • Roxann C Profile

    Anyone know a good book on how to live after cancer?

    Asked by anonymous

    Stage 1 Patient
    over 5 years 7 answers
    • View all 7 answers
    • teresa clark Profile
      anonymous
      Learning About Breast Cancer

      Hi Roxann,
      I have two that I ordererd that I heard about on another forum. One is called "Now What? A Patient's Guide to Recovery after Mastectomy" and the other is "The Breast Reconstruction Guidebook." I should get them today and I'll try to remember to come back and tell you what I think. ...

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      Hi Roxann,
      I have two that I ordererd that I heard about on another forum. One is called "Now What? A Patient's Guide to Recovery after Mastectomy" and the other is "The Breast Reconstruction Guidebook." I should get them today and I'll try to remember to come back and tell you what I think. If you go to Amazon.com and do a search for either of these, it comes back with a whole lot of suggestions. I ordered mine used and got both of them for less than $15. I'm a "planner" and will have my mastectomy next month so I'm hoping that these do the trick for me. Let me know what you find, too! Teresa

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Roxann,
      I always go to my friend, Mr. Google and just typed in, "how to live after having breast cancer book" Up popped a bunch! I don't have a specific because I am not much of a reader. I have to admit, the last think I wanted to do after I completed treatment was be reminded of it. I just...

      more

      Roxann,
      I always go to my friend, Mr. Google and just typed in, "how to live after having breast cancer book" Up popped a bunch! I don't have a specific because I am not much of a reader. I have to admit, the last think I wanted to do after I completed treatment was be reminded of it. I just wanted to forget it. I really think I needed to heal both my body and mind. Honestly, it wasn't until I found this forum, that I have been able to really come to grips with the experience. Roxann, hopefully, you can find a empowering book and share it with us. It will probably do us all a lot of good. Great questions. God's blessings to you. Take care, Sharon

      Comment
  • ivy leahan Profile
  • André Roberts Profile

    This is it. It's been a year. #36, LAST HERCEPTIN! Whoo Hoo!

    Asked by anonymous

    Stage 1 Patient
    over 5 years 17 answers
    • View all 17 answers
    • Life is Good! Profile
      anonymous
      Survivor since 2003

      Yippee! You are a Strong Pink Sister! Thanks for inspiring and encouraging others! Celebrate, Pink Sister!

      1 comment
    • P C Profile
      anonymous
      Stage 0 Patient

      Awesome,

      1 comment
  • Bethany Herr Profile

    I am having a bi lateral mastectomy on tues. What is the best thing for me to take to the hospital to wear and to wear at home?

    Asked by anonymous

    Patient
    over 5 years 7 answers
    • View all 7 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Bethany,
      Andre' really said it all. Keep up with your pain medication. If you skip a dose, your body may have to play catch-up to get the medication built back up in your system. Once home, listen to your body. It will let you know what it needs. Drink fluids, nap when you need, keep taking...

      more

      Bethany,
      Andre' really said it all. Keep up with your pain medication. If you skip a dose, your body may have to play catch-up to get the medication built back up in your system. Once home, listen to your body. It will let you know what it needs. Drink fluids, nap when you need, keep taking your pain medication as you need. If you are by yourself, I would try to have soup on hand for yourself. Hopefully, you can round-up some pals, or family members to help you around the house. Take the time that is takes to get over this surgery. So many women get antsy and feel the need to get back into the superwoman roll. We all heal at different rates. Hang in there darlin' and take care, Sharon

      Comment
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I agree with Andre and Sharon I would add use good old diaper pins, for the drains. They have different tops( for the drain schedule) and they don't open as easy as safety pins.

      Comment
  • lori hansen Profile

    I start chemo on Monday July 22nd and then the next day have neulasta shots. How bad is this???? I'm terrified!!

    Asked by anonymous

    Learning About Breast Cancer
    about 5 years 8 answers
    • View all 8 answers
    • Life is Good! Profile
      anonymous
      Survivor since 2003

      The unknown is scary. It will be a roller coaster ride but you can do it! Usually day 3 and 4 were the toughest after chemo. I did not have side effects from the shot. Wear comfortable clothes and button up shirt for easy port access. Take a jacket or small blanket... It is sometimes cold in...

      more

      The unknown is scary. It will be a roller coaster ride but you can do it! Usually day 3 and 4 were the toughest after chemo. I did not have side effects from the shot. Wear comfortable clothes and button up shirt for easy port access. Take a jacket or small blanket... It is sometimes cold in the infusion room. Some bring an iPad or magazines to pass the time. Take the anti nausea drugs as prescribed. Even if you feel ok. They work better if you don't wait until you feel sick to take them. Allow people to do things for you. Use plastic utensils to help with the metal taste you may have. Rest when you need to. Eat small meals and snacks. Drink lots of water! Do something that brings you joy each day! Check out the look Good feel better program. Keep the questions coming. We are here for you!

      Comment
    • Brandi Mixon Profile
      anonymous
      Survivor since 2012

      Everything life is good said is right on!! I never got to go to the look good feel better because it was always offered on the days I was getting chemo!! But I've heard it is great. Call your nearest American Cancer Society to find out when they offer the program. Make friends with those around...

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      Everything life is good said is right on!! I never got to go to the look good feel better because it was always offered on the days I was getting chemo!! But I've heard it is great. Call your nearest American Cancer Society to find out when they offer the program. Make friends with those around you in the infusion room because more than likely they will be there every time you are. The nuelasta shot is no big deal. It did cause me to have some leg cramping but nothing that couldn't be handled with some pain mess! You are going to get through this great!!!

      Comment
  • anonymous Profile

    I had a lump ectomy. Feb 4 should my breast still be swollen or feel burning or pins off and on hitting my one breast ?

    Asked by anonymous

    Learning About Breast Cancer
    over 3 years 1 answer
    • Trisha Muller Quinn Profile
      anonymous
      Survivor since 2014

      Burning and pins and needles feeling .....Nerve Pain ....My feels like a stabbing pain sometimes ..... I don't know how much of your Breast was taken .. But make sure there is no infection in the wound .... And always seek advice from your doctor ..:))) good luck

      Comment
  • L A Profile

    Have finished treatment in September, still don't feel comfortable to drink anything with milk, like coffee as ER and PR 100% positive. Any advice on this?

    Asked by anonymous

    Learning About Breast Cancer
    over 4 years 9 answers
    • View all 9 answers
    • André Roberts Profile
      anonymous
      Stage 1 Patient

      I too am positive. Was never told not to avoid dairy. Only told not to have 100% soy products daily. Soy in moderation is fine. Don't drive yourself crazy with your diet. Live life. Prayers to you.

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I've been having milk since I completed treatment, nothing was said not to. Ask your doctor about it and see what they say.

      Comment
  • Melissa Costello Profile

    I had my ultrasound guided biopsy and they took it of my tumor and node.Hurt like hell.Radiologist said the node was suspicious looking and I see dr. on the 14 to go over next steps. He said also that it will come back malignant. So my journey begins!

    Asked by anonymous

    Learning About Breast Cancer
    over 5 years 6 answers
    • View all 6 answers
    • diane anderson Profile
      anonymous
      Stage 2B Patient

      I found the waiting to see doctors and getting a plan to be the most stressful part of the journey. After about a month or so of tests, procedures and appointments and many sleepless night, the oncologist had a plan and it moved very fast from there. I got a port Monday, chemo on Tuesday this...

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      I found the waiting to see doctors and getting a plan to be the most stressful part of the journey. After about a month or so of tests, procedures and appointments and many sleepless night, the oncologist had a plan and it moved very fast from there. I got a port Monday, chemo on Tuesday this week and I actually feel better, relieved that something is being done. I will have surgery after chemo. Ask for meds if you think you need them! Stress and anxiety are part of journey. Peace and best wishes to you Melissa.

      Comment
    • Evelyn Heilbrunn Profile
      anonymous
      Survivor since 2012

      Yep, and so it begins. Stay with us, Diane. We've all been there one way or the other and are here to answer questions, give advice, or offer a virtual shoulder to cry on. Thoughts are with you!

      Comment
  • Thumb avatar default

    Going for chemo in a week.. Should I get a port? Is it too late for it?

    Asked by anonymous

    Stage 2A Patient
    over 5 years 12 answers
    • View all 12 answers
    • Thumb avatar default
      anonymous
      Stage 2A Patient

      Thank u... I will def ask for one :)

      Comment
    • Rosanna Wieder Profile
      anonymous
      Stage 2B Patient

      Definitely get port! You will be so glad you did.

      Comment
  • janet blue Profile

    i sometimes feel a sharp pain in a parts of my breasts.am i safe?

    Asked by anonymous

    Learning About Breast Cancer
    almost 2 years 2 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      We are never safe from breast cancer. We can't tell you what is causing this you need to have this checked out by your doctor to rule out breast cancer. Most of these things are just changes in breast tissue due to hormones, but sometime they are due to cancer. Never ignore signs and symptoms...

      more

      We are never safe from breast cancer. We can't tell you what is causing this you need to have this checked out by your doctor to rule out breast cancer. Most of these things are just changes in breast tissue due to hormones, but sometime they are due to cancer. Never ignore signs and symptoms in your breast that keeps bothering you. Take care, Sharon

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      Any changes to one's body should be checked by their doctor.

      Comment
  • S M Profile

    I can finally share with you what happened last Friday, I was supposed to start chemo but as we met with the oncologist, she went over my pet scan and said I have 3 spots in bone. So no chemo or rads . Arimidex.

    Asked by anonymous

    Stage 3A Patient
    over 5 years 11 answers
    • View all 11 answers
    • susan Richmond Profile
      anonymous
      Learning About Breast Cancer

      I had this exact same thing happen to me!:(. Prayers my friend!!! The tamaxifon didn't work and the bone mets kept spreading. So, I'm on chemo now and radiation right now hoping to get rid of the awful bone pain I'm having! Need to talk just let me know!;) good luck!!!! Prayers are with you!!!

      Comment
    • A Mc Profile
      anonymous
      Learning About Breast Cancer

      Stay positive, keep fighting! I will keep you in my prayers;)

      Comment
  • Thumb avatar default

    Is it to my benifet to have a radical mastectomy having fourth stage breast cancer which spread to my bones throughout my body ?

    Asked by anonymous

    Learning About Breast Cancer
    almost 5 years 3 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      I don't know if a true radical mastectomy will do any more good than a modified. Since this has already spread, having surgery that is as ....well, radical, will probably to do more harm than any good. Your oncologist may suggest doing some limited chemotherapy before you have surgery to...

      more

      I don't know if a true radical mastectomy will do any more good than a modified. Since this has already spread, having surgery that is as ....well, radical, will probably to do more harm than any good. Your oncologist may suggest doing some limited chemotherapy before you have surgery to shrink your tumors. I have seen that do a lot of good. Talk to your surgeon and oncologist. At this point your surgeon would be able to surgically remove all the tumors. You will probably have a combination of chemotherapy, hormonal, surgery, and radiation. Hang in there.... I have heard of a true radical mastectomy leaves you with permanent impairment because muscles and underlying structures removes. Get a second and third opinion before you proceed. I can tell you, I would never have that type of surgery done. Take care, Sharon

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I have the same dX breast cancer with mets to my bones. I had a bilateral mastectomy with reconstruction and chemo and almost in remission

      Comment
  • Thumb avatar default

    Is it reasonable to work throughout cancer treatment? I am not sure what to expect.

    Asked by anonymous

    Learning About Breast Cancer
    over 4 years 8 answers
    • View all 8 answers
    • Thumb avatar default
      anonymous
      Stage 2A Patient

      It depends upon your treatment. I had a lumpectomy and radiation and worked throughout. I was out a total of 3 days for lumpectomy and two days for re-excision and did my radiation through lunch every day. If you are having mastectomy and/or chemo I know it would be very different.

      Comment
    • Thumb avatar default
      anonymous
      Stage 3C Patient

      Everyone is different. If you have the ability to work and in your off time you can rest a lot it can be done. Every person and every job and family situation is unique. I'd say go for it but have a plan B just in case. Taking care of your body during this time is number one priority.

      Comment
  • Thumb avatar default

    Do you need expanders if you have a flap?

    Asked by anonymous

    Learning About Breast Cancer
    almost 6 years 3 answers
    • Mary Chase Profile
      anonymous
      Learning About Breast Cancer

      It also depends on the flap. With a latissimus dorsi flap they often use an I plant to augment the flap because there isn't as much tissue in that area of the body. But it's an implant and expanders are not used.

      Comment
    • julie s Profile
      anonymous
      Stage 2A Patient

      They use your tissue

      Comment

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