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  • Gianna  Rose Profile

    I was diagnosed with Stage 3 They are doing the strongest chemo The red Devil.I just got a ultrasound and tumors haven’t shrunk.My friend who is a nurse says chemo shrinks tumors.It is killing you But not doing what it’s meant Thinking of refusing last

    Asked by anonymous

    Patient
    11 months 4 answers
    • View all 4 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Have you discussed this with your team? I know one wants to give up but perhaps there is something else that can be used. Take care of yourself.

      Comment
    • Leigh Anne F. Profile
      anonymous
      Survivor since 2014

      What time of cancer were you diagnosed with? The Red Devil is def. evil. But you should be doing other types of chemos too to help kill the cancer. This is very treatable!

      Comment
  • Ailene L Profile

    Got results of 2nd biopsy, NON-cancerous papilloma. Surgeon advises lumpectomy of DCIS area and this papilloma followed by radiation. Can anyone share lumpectomy and radiation experience? How long was recovery? How much did your breast change? Any advise?

    Asked by anonymous

    stage_0 Patient
    11 months 3 answers
    • Merri Sedgwick Profile
      anonymous
      stage_1 Patient

      I had a lumpectomy on 5/15/17, with one sentinel node removed. I went back to work 2 weeks later. I did 16 radiation treatments which were no big deal. I had a slight sunburn under the breast and a very mild reddening on the surface, but that was the extent of it. The breast looks amazing, and...

      more

      I had a lumpectomy on 5/15/17, with one sentinel node removed. I went back to work 2 weeks later. I did 16 radiation treatments which were no big deal. I had a slight sunburn under the breast and a very mild reddening on the surface, but that was the extent of it. The breast looks amazing, and the scar is barely visible. I don’t notice any difference in the shape or size. The only issue I’ve had is my armpit, as it is still numb, and I feel a pulling when I raise my arm. I’m going for an OT evaluation after Thanksgiving. I do, however, have good range of motion in the right arm and I don’t have any lymphema. The breast itself is sore, and I can’t sleep on my stomach or that side, but at my 6 month checkup last week the surgeon said that it’s still very early and it will get better. The worst part was the surgical bra I had to wear for 12 days after surgery! Good luck!! Keep in touch

      6 comments
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I had lumpectomy & 35 radiation treatments in 2012. My lumpectomy did not effect my breast shape to much but everyone's cancer is different. My recovery was super easy but my margins weren't clear & I had to have a 2nd surgery 5 days after the 1st. Radiation started a month an 1/2 later because...

      more

      I had lumpectomy & 35 radiation treatments in 2012. My lumpectomy did not effect my breast shape to much but everyone's cancer is different. My recovery was super easy but my margins weren't clear & I had to have a 2nd surgery 5 days after the 1st. Radiation started a month an 1/2 later because your incision has to heal before radiation can be done. The whole process took 5 months but I stayed out of work for a year. Some women go back to work shortly after surgery & work through radiation treatments. I had no radiation side effects other than a sun burn & that went away after treatments stopped.

      1 comment
  • Victoria Fermin  Profile

    Ho all my hisyology report came back negative to all adjuvant test , all my 24 lymph nodes negative , my surgical margin negative for tumor ( up to 7mm away) lymphovascular invasion Absent but Dcis is present , that is the type of cancer her2triplenegsti

    Asked by anonymous

    Patient
    11 months 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      It sounds like you need to be sitting down and discussing your case with your doctor(s). Everyone's cancer is unique to them so I am guessing there is some reason they want you to have chemo. If you're not comfortable with what is being said then make an appointment for a 2nd opinion.

      Comment
    • Victoria Fermin  Profile
      anonymous
      Patient

      Progesterone negative but after all that they suggested chemo still aboit 6 sessions , should I take or not take , for me I don't want to seeing all my test is negative y do chemo to create some that is not there.

      Comment
  • Thumb avatar default

    I was told, after having an ultrasound, that I have dilated ducts under my nipple/areola area. I’ve been having some pain, and warm sensations in my breast, but no discharge. Can ductal carcinoma present in this manner, without any nipple discharge?

    Asked by anonymous

    Learning About Breast Cancer
    11 months 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      That sounds like something you need to be asking your doctor about and we aren't doctors on this site. I'm guessing there could be other issues causing the dilated ducts other than cancer.

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Thanks. I’ve been referred to a breast surgeon.

      Comment
  • Lindsay LAW Profile

    I have been recently diagnosed, what comes first? Chemo, surgery, radiation? I'm told I need all of it but not in what order I will get it.

    Asked by anonymous

    Learning About Breast Cancer
    11 months 7 answers
    • View all 7 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Everyone's cancer is unique to them so treatment plans are individualized for each person. My Onc. wanted me to have some chemo. prior to surgery but my Surgeon nixed it. I had surgery, chemo, rads., and am now on a hormone blocker since my tumor was Er/Pr+.

      Comment
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      Lindsay,
      Your doctors should be explaining your treatment timeline. Every cancer is different, and treatment schedules are also different. I'm sure you have consults scheduled, and all should be made clear. Write questions down so you don't forget something. It also helps to take someone...

      more

      Lindsay,
      Your doctors should be explaining your treatment timeline. Every cancer is different, and treatment schedules are also different. I'm sure you have consults scheduled, and all should be made clear. Write questions down so you don't forget something. It also helps to take someone with you to write down all information given. It can be overwhelming, and you may not remember everything. Good luck

      Comment
  • Ailene L Profile

    Trying to decide whether to have reconstructive surgery after planned mastectomy. Any good articles, books, or resources suggested? I’d appreciate thoughts from those that had reconstruction.

    Asked by anonymous

    stage_0 Patient
    11 months 9 answers
    • View all 9 answers
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I also had a double mastectomy
      w/immediate reconstruction. It made more sense than having to come back 4 a 2nd surgery. Yes it hurt like crap because expanders were inserted & filled with 20cc of saline but I said what doesn't kill me will only make me stronger. My Dr filled them @ 40cc each...

      more

      I also had a double mastectomy
      w/immediate reconstruction. It made more sense than having to come back 4 a 2nd surgery. Yes it hurt like crap because expanders were inserted & filled with 20cc of saline but I said what doesn't kill me will only make me stronger. My Dr filled them @ 40cc each visit to relieve the skin stretch pain until I reached a 34b my original cup size. I had a 2nd surgery to remove the expanders & put in the implants. You choose between silicon & saline implants only diff is 1 is softer than the other. You speak to your Dr about the size you want. I had my nipples removed & tattooed back on. Yes my breast have no feeling but they look great & my husband doesn't care as long as I'm alive. You will have drains inserted into your chest walls but they weren't a problem & my hospital gave me awesome bras to hold the drains. The scars are fading & I sometimes feel uncomfortable because they're not like my original breast but @ the end of the day I'm 5 years still living & very happy. Live Love Life.

      1 comment
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      Hello Aliene,
      I had a bilateral mastectomy with immediate reconstruction. I could not be happier with the outcome. The new "breasts" are small, only so much skin to go around. They fill out my clothes, and I never have to wear a bra again! Keep in mind they have no feeling, and they could...

      more

      Hello Aliene,
      I had a bilateral mastectomy with immediate reconstruction. I could not be happier with the outcome. The new "breasts" are small, only so much skin to go around. They fill out my clothes, and I never have to wear a bra again! Keep in mind they have no feeling, and they could not spare my nipples. I had 3D nipples tattooed in the plastic surgeons office. Took about 30 minutes, felt nothing and they are amazing. It has been 14 months and the scars are beginning to fade. I had implants not the flap procedure. There can be more complications with the flap procedure, although the thought of an insurance paid "tummy tuck" was tempting. The surgery is twice as hard since you have two areas to heal.
      I have a work out friend who had a mastectomy with no reconstruction. She is fine with her decision, but does admit to wearing prosthetic, breasts when she is dressed up. Most of the time she goes without. She said they are a little heavy, and can get hot. Whatever you decide, good luck. You can always do reconstruction at a later time. My reasoning was if they are going to take them off, and the surgeons were already in there, and it was going to hurt no matter what, why not start the procedure. Why hurt twice!! You will have spacers for awhile, and will need a second surgery to replace the spacers, but the replacement surgery did not hurt. Remember you have no feeling. A slight ache, for about 24 hours. I hope this helps, and you have several women share their experience.

      Comment
  • mj b Profile

    oncologist told me to stop tamoxifen after 5 years, as my onco type test said my reocurrence is minimal. Has anyone stopped taking tamoxifen. Did you do it gradually, or cold turkey? Side effects?

    Asked by anonymous

    Learning About Breast Cancer
    11 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I would discuss the best way to go off of it with your Oncologist. Some medications they recommend weaning yourself off slowly but that may not be the case with Tamoxifen.

      Comment
  • Thumb avatar default

    Post treatment neuropathy and joint pain how long does it last

    Asked by anonymous

    stage_3c Patient
    12 months 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Was your tumor Estrogen+? If so you are probably on a hormone blocker of some sort, what kind depends if you are pre or post menopausal. Some of those meds. can cause joint pain from what I've been told. Everyone's body handles treatments differently. Have you discussed it with your doctor(s)?

      Comment
    • Sue Boston Profile
      anonymous
      Survivor since 2014

      I have been done with treatment for a little over 2 years now, I still have a little bit of neuropathy in my foot and I try to exercise everyday, that really helps with joint pain, especially in my hips.

      3 comments
  • Thumb avatar default

    Removing a section the size of a golf ball is what I'm told, but I don't even have a mass. Just a small collection of malignant calcifications (DCIS) measuring approx. 1.6cm. And they say Stage 0. So do they really need to take that much?

    Asked by anonymous

    Learning About Breast Cancer
    12 months 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm not a doctor but have read when doing a lumpectomy they also take a margin around the entire area and make sure they get clean margins or otherwise they may have to go back in and remove more. DCIS is a stage 0.

      2 comments
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      100% YES. I too was diagnosed with micro calculations, 1.6cm, stage 0 19 2012. I had 1st surgery and margins weren't clear so I had a 2nd lumpectomy 5 days later. In 2014 mammo detected more calcifications & I ended up getting a double mastectomy with immediate reconstruction. With that being...

      more

      100% YES. I too was diagnosed with micro calculations, 1.6cm, stage 0 19 2012. I had 1st surgery and margins weren't clear so I had a 2nd lumpectomy 5 days later. In 2014 mammo detected more calcifications & I ended up getting a double mastectomy with immediate reconstruction. With that being said I would recommend your Dr take as much as they need to so they can get it all in one shot. No your breast will not look the same but it may prevent you from xtra surgeries

      Comment
  • Thumb avatar default

    I am 14 and my mums being diagnosed and I’m really struggling! Any advice please xx

    Asked by anonymous

    Learning About Breast Cancer
    12 months 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Just being there for her will help. She will need someone to talk with and even cry if she feels the need to. She will be OK.

      Comment
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      You might call your local cancer center or hospital and inquire about support groups for family members. If you have a church affiliation they may be able to help steer you in the right direction. Your school guidance counselor may help also. A trusted adult friend is also an option.
      You and...

      more

      You might call your local cancer center or hospital and inquire about support groups for family members. If you have a church affiliation they may be able to help steer you in the right direction. Your school guidance counselor may help also. A trusted adult friend is also an option.
      You and your mom will get thru this. Some days will be tough, but things do get better. Good luck .

      Comment
  • Kris Angaran Profile

    Starting radiation theraply tomorrow - they are using the True Beam - has anyone had that - if so - what exactly do they do?

    Asked by anonymous

    Learning About Breast Cancer
    12 months 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      That's how mine was done. You will be positioned on the table like you were for your SIM appointment, they will use the tattoos they placed to make sure you are lined up properly. You will have your hands above your head grasping onto handles. You just have to lie still while the machine does...

      more

      That's how mine was done. You will be positioned on the table like you were for your SIM appointment, they will use the tattoos they placed to make sure you are lined up properly. You will have your hands above your head grasping onto handles. You just have to lie still while the machine does all the work. They should explain everything to you before starting. The tech will be in an adjacent room but they can watch you and there is an intercom so if you have problems they will also be within earshot.

      Comment
    • SAm  White Profile
      anonymous
      Learning About Breast Cancer

      Mine was also similar to Betty. It took 10 min each treatment & I had no side effects other than a dark sunburn that went away after treatments ended. I used Aquaphor to keep skin moist

      Comment
  • Heidi Steinway  Profile

    Second chemo treatment after mastectomy and I am so drained? Normal? What was your experience?

    Asked by anonymous

    Learning About Breast Cancer
    12 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      Your body has been through a lot. Get as much rest as you can and eat what you are able to. It will soon be over and you can get back to what you like to do.

      Comment
  • ElIzabeth Shannon Profile

    How does an oncoligist really know if the chemo treatment is really working?

    Asked by anonymous

    Learning About Breast Cancer
    12 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      Why don't you ask your Oncologist? I'm not a doctor but assume there are lab tests that can provide some answers but may be wrong.

      Comment
  • anonymous Profile

    Any survivors in the 5-10 year range ? I would love to hear how it’s going

    Asked by anonymous

    Patient
    12 months 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I will be celebrating 5 years in January, 2018. I am living life to the fullest and not really having any issues as such.

      4 comments
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Over 5 years doing fabulous. Just retired @51 & loving life

      Comment
  • Betti A Profile

    Osteopenia is better.......but

    Asked by anonymous

    Survivor since 2013
    12 months 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      cont) I had Osteopenia before my BC diagnosis but was never put on anything except Calcium+D. It got somewhat worse with my treatments and I had 3 options to treat it. My PCP told me Fosamax had been around the longest so was the most tried and true. I have now been on it for 4+ years and my...

      more

      cont) I had Osteopenia before my BC diagnosis but was never put on anything except Calcium+D. It got somewhat worse with my treatments and I had 3 options to treat it. My PCP told me Fosamax had been around the longest so was the most tried and true. I have now been on it for 4+ years and my last DEXA (in Sept) showed some improvement so my PCP opted to cut my dosage in half. He said if it weren't for the AI I'm on he would take me off of it completely. Well, next July will be 5 years and then I guess we will have to reevaluate things. They are currently doing studies on AI use and some say 10 years is better than 5 or even the rest of one's life. Anyone else in this boat?

      Comment
    • paula gittens Profile
      anonymous
      Survivor since 2013

      I worry about that betti. Having to take ca meds for 10. As you know it has been struggle for me due to the side effects of which I experienced all but yes studies has shown taking it 10 years or longer prove to be more beneficial.

      Comment
  • LC. S Profile

    I've finished finished 4 rounds of CT on 08/08/17 and lately I've been feeling so tired worst then when I was in the middle of my chemo treatment. Has anyone experience the same? Please let me how you felt after chemo. Thank you🌸🌸

    Asked by anonymous

    stage_1 Patient
    12 months 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I felt great after I was done, just thankful to have it behind me.

      Comment
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      Have you spoken to your Chemo team? They may have some tests to determine the cause of your fatigue. I would start there. Hope you feel better soon.

      Comment
  • balaji ch. Profile

    which one has good prognosis with 10 and 20 year survival rate: STAGE 1(er+ her2-) with effected lymphnode involvement and lymphovascular invasion or stage 2a (er-her2+) with no lymphnodes and no lymphovascular invasion ,no perineural invasion.

    Asked by anonymous

    Learning About Breast Cancer
    12 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      That sounds like questions for your doctor(s) as they can put all the information into a computer program that only they can use and come up with a possible prognosis.

      Comment
  • Delanie Alvarez Profile

    Hi my name is Delanie Alvarez..33 years old.On Monday I did and U.S found a lump on my left breast.U.S not in my favor..got and biopsy shedule within a week.The waiting got me nerve wreck..How did you ladies handle the waiting..Advised needed.

    Asked by anonymous

    Learning About Breast Cancer
    12 months 4 answers
    • View all 4 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I waited almost 3 weeks to do my biopsy as it was at the end of the year+the holiday time so I enjoyed things I liked to do to pass the time. The waiting is the hardest but try to breathe and relax some as stress won't be your friend.

      Comment
    • Sue Boston Profile
      anonymous
      Survivor since 2014

      Hi Delanie, I agree with Betti, the waiting is the hardest part. Try to stay busy doing what you enjoy; worrying will not change the outcome. It will be 3 years ago on Halloween when I found my lump, I knew what it was before I was told, you just know when something is not right with your body....

      more

      Hi Delanie, I agree with Betti, the waiting is the hardest part. Try to stay busy doing what you enjoy; worrying will not change the outcome. It will be 3 years ago on Halloween when I found my lump, I knew what it was before I was told, you just know when something is not right with your body. Please keep us posted.

      Comment
  • Thumb avatar default

    Any Metavivors on here? Looking for someone to connect with...

    Asked by anonymous

    stage_4 Patient
    12 months 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      Are there any group(s) in the area where you live? My area has a breast cancer support group that meets at the cancer center and welcomes all survivors of breast cancer. They also have a warrior sister-hood group for the younger ladies who have been diagnosed.

      Comment
  • Kathryn Tillotson Profile

    Brca1 or her2+

    Asked by anonymous

    Learning About Breast Cancer
    12 months 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm not sure what you are asking, I do know they are 2 totally different things.

      Comment
    • Merri Sedgwick Profile
      anonymous
      stage_1 Patient

      What exactly is your question?

      Comment
  • Andrea Lanier Profile

    Started my first radiation treatment today and I would like to know if anyone has used coconut oil as a moisturizer on their breast after daily treatment, also is it ok to use aloe vera plant

    Asked by anonymous

    Learning About Breast Cancer
    12 months 8 answers
    • View all 8 answers
    • Andrea Lanier Profile
      anonymous
      Learning About Breast Cancer

      Thank you everyone, I told my doctor I was using coconut oil and he agreed it was very good to use. I've also gotten the Aloe plant leaf and making a drink from that and using the gel.All of this my doctor say is very good and safe to continue using

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I too used Aquaphor. My nurse gave me samples to start using prior to treatments. It worked perfectly & I purchased a small jar from Walmart for less than $5.00. I used it morning noon & night to keep my skin moist. What ever you use wash it off prior to treatment or your skin will burn quicker.

      Comment
  • Josephine Taggart Profile
  • Diane ourelio Profile

    What does high grade dcis mean. I was just diagnosed Friday and going to see the breast surgeon on Wednesday.

    Asked by anonymous

    Learning About Breast Cancer
    about 1 year 4 answers
    • View all 4 answers
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      This is called Comedo which means plug. The breast duct is completely plugged up by cancer cells. These cells could also be fast growing

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      Your doctor(s) should be explaining this to you and we aren't doctors on this site.

      Comment
  • Thumb avatar default

    How long after simple and partial radical mastectomy did you have Jp drains?

    Asked by anonymous

    Learning About Breast Cancer
    about 1 year 4 answers
    • View all 4 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      It will be based on how much drainage you are having. I had surgery on a Friday and saw my Surgeon the following Wednesday to check them. She could have removed them since I was having little drainage but opted to leave them until the following Monday as she didn't want to pull them and perhaps...

      more

      It will be based on how much drainage you are having. I had surgery on a Friday and saw my Surgeon the following Wednesday to check them. She could have removed them since I was having little drainage but opted to leave them until the following Monday as she didn't want to pull them and perhaps put them back in. I did have small seromas drained twice in the next month or so, she used a needle and syringe to get rid of them and was never bothered again with them.

      Comment
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      It depends on how much drainage you are having. Your surgeon will determine when to remove them. Some people only have them for a week. I had 4 drains for 3 weeks. It was annoying but not painful or uncomfortable. You don't want them out too early. If you have fluid accumulation it will...

      more

      It depends on how much drainage you are having. Your surgeon will determine when to remove them. Some people only have them for a week. I had 4 drains for 3 weeks. It was annoying but not painful or uncomfortable. You don't want them out too early. If you have fluid accumulation it will have to be removed. Just roll with it. They will come out soon enough. Good luck to you

      2 comments
  • Thumb avatar default

    Triple positive stage 2b

    Asked by anonymous

    Learning About Breast Cancer
    about 1 year 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      Your question is?

      Comment

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