loading... close

Recent Questions

  • Thumb avatar default

    I'm nervous about my mom. She still hasn't had chemo almost a month after being diagnosed with triple negative BC. Waiting on the results of a biopsy of her lungs. She won't start chemo for @ least another 1 1/2 weeks. How long was it 4 u all?

    Asked by anonymous

    about 1 hour 1 answer
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      I was diagnosed on 1/25/2011 I started chemo on 3/16/2011( that was my 37 wedding anniversary).

      Comment
  • Thumb avatar default

    Had two Lumpectomies and the Surgeon is suggesting a third one bcos of unclear Margins. Margin probe allows the Surgeon to identify unclear margins during Surgery is what I read. Has anyone here used Margin probe for DCIS during Surgery?

    Asked by anonymous

    about 13 hours 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I have never heard of a margin probe so it must be fairly new? I imagine it would help surgeons making sure they have clean margins if there is any question.

      Comment
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      I don't know exactly what instruments my surgeon used during my surgeries. I trusted my surgeons to use the instruments and her training that would get all the cancer so I could be cancer free.

      Comment
  • Thumb avatar default

    Lumpectomy,DCIS 90% ER/PR positive resulting in unclear margin of 0.1cm. 2nd surgery in 6wks, I have a positive margin with 0.7 cm. Doc suggesting a third Surgery. starting Tamoxifen. Contemplating postponing the Surgery and the Radiation for 6 months.

    Asked by anonymous

    1 day 6 answers
    • View all 6 answers
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      When I had to make treatment choices my biggest consideration was always what would help me achieve the longest survival with the highest quality of life. For me knowing I still had a positive margin would take away from my quality of life just knowing it was there and multiplying.

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I know I wouldn't want to wait, but that's just me. The only time I waited was for about 3 weeks before I did my first biopsy as when it was recommended it was at year's end and my deductible would have reset. From the day I was told I needed a biopsy until the day of my mastectomy was exactly...

      more

      I know I wouldn't want to wait, but that's just me. The only time I waited was for about 3 weeks before I did my first biopsy as when it was recommended it was at year's end and my deductible would have reset. From the day I was told I needed a biopsy until the day of my mastectomy was exactly 9 weeks. Some of my friends queried as to why I waited and when I told the surgeon that the day of surgery she laughed and said she had had patients go longer than that (not her recommendation to them however). She saw where I was coming from as I was unemployed and was lucky enough to be able to carry health insurance. One must do what is right for them.

      Comment
  • Thumb avatar default

    I am going to start my chemo tomorrow, so scared now. The more I read about it, the more scared I am. I feel my life will be completely changing tomorrow. I am planning to shave my head before new year. Other than that, I don't know what will happen to me

    Asked by anonymous

    2 days 9 answers
    • View all 9 answers
    • jo miller Profile
      anonymous
      Learning About Breast Cancer

      I started chemo one year ago. I had to stop reading about it because the info frightened me too. So I say stop reading and remember you are fighting for your life and chemo is kicking those cancer cells to the curb. I too chose to shave my head while playing the old rocky movies/ Sylvester...

      more

      I started chemo one year ago. I had to stop reading about it because the info frightened me too. So I say stop reading and remember you are fighting for your life and chemo is kicking those cancer cells to the curb. I too chose to shave my head while playing the old rocky movies/ Sylvester Stallone theme song ( about a fighter) . I am sending you prayers, strength and a heart full of hope. The chemo was not nearly as bad as my anticipation. The chemo nurse explained everything step by step and closely monitored the treatment. I did get a headache and told the nurse and she called my doctor and followed the advise to give me Tylenol and then slow the infusion down. Take a book, a small blanket, a snack, and the support of all your pink ribbon sisters.

      1 comment
    • Sharon Doria Profile
      anonymous
      Survivor since 2009

      Its different for everyone. The first one made me quite ill and my onco prescribed Neulasta shots for the rest of my chemo. I was fine after that. She also put me on sub q fluids in the evenings to keep me hydrated, etc. I did that at home with a visiting nurse. Fun it was not, doable it is...

      more

      Its different for everyone. The first one made me quite ill and my onco prescribed Neulasta shots for the rest of my chemo. I was fine after that. She also put me on sub q fluids in the evenings to keep me hydrated, etc. I did that at home with a visiting nurse. Fun it was not, doable it is definitely. Just keep in touch with your onco and let him/her know how you feel. There's a lot they can do these days to lessen the effects. They used to come around with the most beautiful antique teacups to serve tea in and cookies on my chemo days. Between that, the TV and my magazines, the time went quickly. Ask us anything you need to. Let us know how you did today!

      Best,
      Sharon

      Comment
  • Thumb avatar default

    Has anyone had papillary carcinoma?

    Asked by anonymous

    2 days 1 answer
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      I had IDC but from what I just read papillary is very rare, only 1 to 2% of cancers found are papillary. It sounds like it is most likely in older women, well defined borders, and a medium grade. It is treated like invasive Ductal carcinoma, surgery, radiation, hormonal. It just didn't sound...

      more

      I had IDC but from what I just read papillary is very rare, only 1 to 2% of cancers found are papillary. It sounds like it is most likely in older women, well defined borders, and a medium grade. It is treated like invasive Ductal carcinoma, surgery, radiation, hormonal. It just didn't sound like it was a particularly aggressive. I got this information on Breastcancer.org. You might go there and see if you can find more information. It is just a rare type of cancer. Take care, Sharon

      Comment
  • Thumb avatar default

    A month ago diagnosis with breast cancer and had a bilateral mastectomy. It was a 6 cm linear tumor. Margins clean, no lymph node involvements. Now oncologist sugest chemotherapy and than blockers. Need help to decide what to do. Scared of chemo .

    Asked by anonymous

    2 days 5 answers
    • View all 5 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Have you had an Oncotype DX test? Mine indicated I could go without chemo. but in adding it my recurrence rate dropped way down. You need to make the decision you feel is the right one for you, gather all the pros and cons and then discuss it with your team.

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      I was also scared but really had to do chemo because it had spread to a lymph node. There is not one of us who went into this kind of treatment without being scared. It wasn't anywhere near as bad as I had imagined. I felt achey for a week and then I felt normal. Yes I lost my hair but to...

      more

      I was also scared but really had to do chemo because it had spread to a lymph node. There is not one of us who went into this kind of treatment without being scared. It wasn't anywhere near as bad as I had imagined. I felt achey for a week and then I felt normal. Yes I lost my hair but to free myself of cancer.....no big deal! Hang in there. You can do this. Take care, Sharon

      Comment
  • Thumb avatar default

    I am currently undergoing chemo-tc every 3 wks 6 cycles. My cheeks have turned bright red, they itched for a few days and now are just tight like a burn or dry skin. Has anyone experienced this?

    Asked by anonymous

    2 days 4 answers
    • View all 4 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      You need to report this to your oncologist's office. This is a reaction to the chemo and they need to know about this right away. This is a possible allergic reaction. Take care, Sharon

      Comment
    • Gillian Ashworth Profile
      anonymous
      Learning About Breast Cancer

      Yes, this happened to me. Make sure you speak to your oncologist about it. Mine was a reaction to the steroids. They reduced the amt I was getting which helped a lot. It could be a reaction to chemo too. I was on the same treatment - my skin was dry and sore throughout. I bought really good...

      more

      Yes, this happened to me. Make sure you speak to your oncologist about it. Mine was a reaction to the steroids. They reduced the amt I was getting which helped a lot. It could be a reaction to chemo too. I was on the same treatment - my skin was dry and sore throughout. I bought really good hydrating cream and masks which helped....also made sure I drank LOTS of water. I'm 8.5 months out from my last chemo...life is feeling much more normal. Soon this will all be memories for you.

      Comment
  • Thumb avatar default

    i have a son with down syndrome and he has a mediport but complains that it hurts him has anyone experience that ?

    Asked by anonymous

    2 days 2 answers
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      I could wait to get mine out. It hurt the whole time I had it. I think some of it was in my head. I hated looking at that stupid lump in my chest.

      1 comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      Have you discussed it with his doctor? Mine has never bothered me and I've opted to leave mine in for now. I just go in every 6 weeks and have it accessed and flushed. They need to be maintained that way or they can get blocked up and can't be used.

      1 comment
  • Thumb avatar default

    Insight welcome as I have found more info since seeing my BS. I have a 8 mm IDC, grade 3, so far no lymph involvement but will know more on that during surgery. She said it is in its early stages but estrogen negative. Scared of Chemo. Insight?

    Asked by anonymous

    3 days 3 answers
    • Lou Cam Profile
      anonymous
      Patient

      Since hormone blockers would not be effective in estrogen negative breast cancer, chemo would be of great benefit.

      Comment
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      I can only comment from my own experience. I had 6 rounds of TC and 37 rounds of radiations. I worked through treatment and went camping a couple of times. I was as bald as a cue ball but I never threw up which was most important to me.
      All I can say is do what ever it takes to save your...

      more

      I can only comment from my own experience. I had 6 rounds of TC and 37 rounds of radiations. I worked through treatment and went camping a couple of times. I was as bald as a cue ball but I never threw up which was most important to me.
      All I can say is do what ever it takes to save your life because you are important.

      Comment
  • Thumb avatar default

    More info on my diagnosis, any input welcome.

    Asked by anonymous

    2 days 1 answer
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      I'm sorry I don't know what your diagnoses is.

      Comment
  • Thumb avatar default

    I am on taxol for 3months and my hair is growing back while on taxol. Is this suppose to happen?

    Asked by anonymous

    3 days 4 answers
    • View all 4 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Yes, usually it doesn't cause hair loss. Take care, Sharon

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      It doesn't always cause complete hair loss but it almost always causes thinning. Some people are on it three times a month .

      Comment
  • Thumb avatar default

    Had nipples tattoo today & it wasn't bad @ all

    Asked by anonymous

    Learning About Breast Cancer
    3 days 1 answer
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      Yay for tattoos.

      Comment
  • Thumb avatar default

    I’m 27 years old and I haven’t had sexual intercourse. Hence, I haven’t had a gynecologist appointment. My mom is a breast cancer survivor. Do you think I need to have a gynecologist exam just in case?

    Asked by anonymous

    4 days 4 answers
    • View all 4 answers
    • Lou Cam Profile
      anonymous
      Patient

      Yes, I think it is a good idea to go to a GYN. I had dysplasia of the cervix even as a teenager, long before sexual activity.

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I had exams before I was ever sexually active as part of physicals. I had no family history of cancer but continued to get exams until I had my hysterectomy as the cervix was also removed so no Pap smear was necessary but a visual check should still be done (in my case anyway as one can develop...

      more

      I had exams before I was ever sexually active as part of physicals. I had no family history of cancer but continued to get exams until I had my hysterectomy as the cervix was also removed so no Pap smear was necessary but a visual check should still be done (in my case anyway as one can develop cancer of the outer areas of that area) (if that makes sense).

      Comment
  • Thumb avatar default

    What is the criteria to meet for brachytherapy?

    Asked by anonymous

    4 days 1 answer
    • Lou Cam Profile
      anonymous
      Patient

      The best outcomes meet there criteria: 60 or older, tumor 2cm or smaller, hormone positive, low risk of recurrence, negative margins, and node negative.

      Comment
  • Thumb avatar default

    Does drinking red wine affect the bodies estrogen levels in a way that is bad for estrogen receptor positive breast cancer?

    Asked by anonymous

    5 days 5 answers
    • View all 5 answers
    • Lou Cam Profile
      anonymous
      Patient

      Unfortunately, any kind of alcohol has an effect on breast cancer recurrence, particularly for post menopausal hormone positive women, especially when overweight. The benefits of red wine do not out weigh the harmful effects. Drinking purple grape juice, and eating grapes and blueberries would...

      more

      Unfortunately, any kind of alcohol has an effect on breast cancer recurrence, particularly for post menopausal hormone positive women, especially when overweight. The benefits of red wine do not out weigh the harmful effects. Drinking purple grape juice, and eating grapes and blueberries would benefit without causing harm. The latest research has shown drinking more than a half a cup of wine every other day will increase risk.

      Comment
    • Pam D Profile
      anonymous
      Stage 0 Patient

      Yes, I asked that question because I was missing my glass of wine every now and then. I was told not to have more than 6 glasses a week because of the affect on the hormones. I drink organic wine because it has no sulfites. Life is good..Can't stop living..Enjoy a glass every now and then..

      Comment
  • Thumb avatar default

    Does smoking interfere with radiation treatment?

    Asked by anonymous

    4 days 5 answers
    • View all 5 answers
    • Lou Cam Profile
      anonymous
      Patient

      Researchers looking back at past records found an increased risk of cancer recurring in women who were smokers and under went radiation treatment , indicating that smoking may lessen the effectiveness of radiation treatment.

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Constricts blood vessels, completely interferes with healing....slows the process down, entirely. I used to work for a surgeon and the healing and post op problems in a smoker was unbelievable. Your skin takes a beating with radiation treatment. You are putting a known cancer causing toxic...

      more

      Constricts blood vessels, completely interferes with healing....slows the process down, entirely. I used to work for a surgeon and the healing and post op problems in a smoker was unbelievable. Your skin takes a beating with radiation treatment. You are putting a known cancer causing toxic element in your body while you are trying to rid yourself of cancer!. I would urge you to quit smoking.

      Comment
  • Thumb avatar default

    I got a chest port placed Friday, still have pain now. Is it normal?

    Asked by anonymous

    5 days 5 answers
    • View all 5 answers
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      I had pain in mine for most of chemo. I had mine placed 12 hours later I had my first chemo infusion so I never knew if it was port or chemo.

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I never had pain with mine. In fact I still have mine in 20 months after it was installed and 18 months after my last infusion. It makes it a lot easier when it comes to blood draws. I just go in every 6 weeks and have it accessed and flushed and if I need lab work I take in my order and...

      more

      I never had pain with mine. In fact I still have mine in 20 months after it was installed and 18 months after my last infusion. It makes it a lot easier when it comes to blood draws. I just go in every 6 weeks and have it accessed and flushed and if I need lab work I take in my order and they'll draw it through my port rather than the 1 arm that can be used. It's like it's not even there anymore for me.

      4 comments
  • Thumb avatar default

    Did anyone ever feel pain on side of underarm after biopsy? Not really pain but like a sensation?

    Asked by anonymous

    5 days 1 answer
    • Lou Cam Profile
      anonymous
      Patient

      I do not recall having that after my breast biopsy. The node biopsy was a different story - I did have some pain after that, and got good advice from others on here to ice that area, and it really helped.

      1 comment
  • Thumb avatar default

    Does or has anyone ever felt like after diagnosis that they feel different pains throughout their body?

    Asked by anonymous

    5 days 2 answers
    • Lou Cam Profile
      anonymous
      Patient

      I guess so, but I attribute it to the degenerative arthritis that I already had, as well as the Femara worsening that pain as well as more drying out of mucous membranes, like eyes, mouth, and vaginally. Also, like Betti said, I am getting older (58). If you do have pains that are a concern to...

      more

      I guess so, but I attribute it to the degenerative arthritis that I already had, as well as the Femara worsening that pain as well as more drying out of mucous membranes, like eyes, mouth, and vaginally. Also, like Betti said, I am getting older (58). If you do have pains that are a concern to you, please mention it to your doctor just in case she might want to do further testing. It is always good to discuss all of that with your doctor to be on the safe side.

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      On occasion, yes I do but I just attribute it to getting older not having had breast cancer. I did have some occasional pains along some ribs on the side of my mastectomy at least a year afterwards. I mentioned it to my RT when I saw him in November and he told me radiation can sometimes weaken...

      more

      On occasion, yes I do but I just attribute it to getting older not having had breast cancer. I did have some occasional pains along some ribs on the side of my mastectomy at least a year afterwards. I mentioned it to my RT when I saw him in November and he told me radiation can sometimes weaken ribs making them more prone to breaking but didn't seem too concerned since it only happened on occasion. 3 weeks after that appointment I slipped getting out of my tub and that's the area I struck on the side of the tub. Thankfully none were broken, just badly bruised. The treatment was the same; let my pain be my guide and now 6 weeks later they are finally feeling "almost normal" and I'm able to do parts of my workouts I was unable to do at the time.

      Comment
  • Thumb avatar default

    Started tamoxifen about 4 weeks ago, at my check up my heart rate has decreased from 60 to 55 is this normal

    Asked by anonymous

    Learning About Breast Cancer
    5 days 3 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      You need to have your doctor address this because Herceptin can have a profound effect on your heart muscle, itself. Take care, Sharon

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      Was your doctor concerned about it? My post infusion vitals were always up a little from the preinfusion ones but I was told that was typical. I was on blood pressure meds. prior to starting, had been for years, and they eventually had to be adjusted and some even changed.

      Comment
  • Thumb avatar default

    Does anyone have micro cancer in lymphnodes after chemo?

    Asked by anonymous

    6 days 3 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      I had micro amount of cancer in one of the 5 sentinal nodes that was removed when I had a mastectomy. It sounds like you will be needing additional treatment. Take care, Sharon

      Comment
    • Lou Cam Profile
      anonymous
      Patient

      The hope in invasive cancer is that chemo will kill any micro cancer or stray cancer cells. The advantage of chemo is that it works throughout your entire body. If it is found in the nodes, sometimes one might have radiation to that area.Micro cancer is found not during surgery, but later by...

      more

      The hope in invasive cancer is that chemo will kill any micro cancer or stray cancer cells. The advantage of chemo is that it works throughout your entire body. If it is found in the nodes, sometimes one might have radiation to that area.Micro cancer is found not during surgery, but later by the pathologist's microscopic exam.

      1 comment
  • Thumb avatar default

    How do surgeons determine how many lymph nodes to remove during breast cancer surgery?

    Asked by anonymous

    7 days 6 answers
    • View all 6 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Actually, the dye is injected only to locate sentinal nodes. It does not indicate if the node is positive or not. That is determined by the pathologist.
      The surgeon can tell a lot by the way they feel when they are doing your surgery. If there are more than a couple they may remove axillary...

      more

      Actually, the dye is injected only to locate sentinal nodes. It does not indicate if the node is positive or not. That is determined by the pathologist.
      The surgeon can tell a lot by the way they feel when they are doing your surgery. If there are more than a couple they may remove axillary nodes. My surgeon told me my sentinal nodes felt cancer free. Unfortunately, when I received the pathology report one of the 5 nodes removed had micro cells which changed my stage from a 2-A to 2-B. It did not change the treatment plan. Take care, Sharon

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      My surgeon removed 15 but only one was cancerous.i assume she did it as a preventive measure because I don't recall any testing of the nodes prior to surgery but I cold be mistaken because I had so many tests done.

      Comment
  • Thumb avatar default

    Am I at a higher risk if my biopsy showed extensive scleorsing adenosis, mucinous spherulosis, intraductal hyperplasia, papillomatosis and columnar cell hyperplasia. Numerous microcalcifications seen throughout the specimen.

    Asked by anonymous

    6 days 3 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      As Betti says, this is something to ask your doctor as it applies to you. It sounds like the tissue is far from normal. Take care, Sharon

      Comment
    • Lou Cam Profile
      anonymous
      Patient

      You would be at higher risk, and your doctor will advise you about this. If not, then ask questions, and get a second opinion.

      Comment
  • Thumb avatar default

    Newly diagnosed after a year of close follow upgrade 8mm IDC grade 3! I'm so scared! I want to live is all! Any words info welcome

    Asked by anonymous

    7 days 3 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      First of all, try not to go to the dark side. We ALL have a tendency to throw in the towel and start writing our obituary. 8mm is SMALL! IDC, is the most common types of breast cancer. Grade 3 means its a fast mover so it will get taken care of quickly. My cancer ... going on 8 years, was...

      more

      First of all, try not to go to the dark side. We ALL have a tendency to throw in the towel and start writing our obituary. 8mm is SMALL! IDC, is the most common types of breast cancer. Grade 3 means its a fast mover so it will get taken care of quickly. My cancer ... going on 8 years, was 2.3CM IDC, grade 2-3. It was taken care of, I had a mastectomy (my choice and no reconstruction) 4 rounds of chemo. and 5 years of hormone therapy. DONE & still living!!! Just like you, I thought I was dead, gone, dust when I received the diagnosis. My dear friend was an RN who used to run a breast diagnostic clinic. She is the one who dragged me back from the edge of the mental cliff. You have all the more reason to consider this a bump in your road of life. Yes, it is scary, a royal pain to go through treatment but please take the awful thoughts out of your head. You will live and no reason not to believe you will have a full and wonderful life. Please get out from underneath that dark cloud over your head. You will be ok. Hang in there, keep in touch, we are all here to help you through this. Take care, Sharon

      4 comments
    • cindy shubin Profile
      anonymous
      Survivor since 2013

      The early part is the hardest till you get a plan and visit all the doctors , hang in there it will get better.. Sending prayers during this difficult time, make sure you round up support from family and friends made a world of difference.

      Comment
  • Thumb avatar default

    if both breast aches what does it mean?

    Asked by anonymous

    7 days 4 answers
    • View all 4 answers
    • Lou Cam Profile
      anonymous
      Patient

      How long has this been going on? If it just started, you might try to determine if it is related to your monthly cycle. In the most common types of breast cancer, it would be unusual to have pain in both breasts. Some people have no pain with breast cancer, and others do, but usually in only...

      more

      How long has this been going on? If it just started, you might try to determine if it is related to your monthly cycle. In the most common types of breast cancer, it would be unusual to have pain in both breasts. Some people have no pain with breast cancer, and others do, but usually in only one breast. If this persists or is very painful you should get checked out by your doctor(. Or, if you are sexually active and your period stops, and both breasts ache, see your doctor ).

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      It probably means hormones but please have your doctor check you. Painful breasts isn't top on the list of breast cancer symptoms. Take care, Sharon

      Comment

Questions

Common Topics

Looking for another topic? Use the search box in the top right.