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What is the survival rate of stage 4 IBC

Elaine Ellison Profile
Asked by

anonymous

Learning About Breast Cancer over 6 years
Topics
Ibc
 
  • Rita Jo Hayes Profile
    anonymous
    Survivor since 2009
    I do not know the survival rate, but I have been fighting and surviving stage 4 breas cancer with mets to lungs since '09 and still going stronge. I plan to make my own survival rate. Thanks
    over 6 years Flag
    • Elaine Ellison Profile
      anonymous
      Learning About Breast Cancer

      Good answer Rita! Praying that you do just that.

      over 6 years Flag
    • Mimi Carroll Profile
      anonymous
      Learning About Breast Cancer

      Wonderful answer!!! Go Rita!

      over 6 years Flag
    • sharon s Profile
      anonymous
      Learning About Breast Cancer

      The wind blew happiness over me. I'm sorry for your fight but glad you are winning! Breathe,lean forward , be smart, be brave, and be in charge. These words serve me well and I hope they can serve you.

      over 6 years Flag
  • julie anne Lype Profile
    anonymous
    Learning About Breast Cancer
    Elaine, I was diagnosed w IBC. I knew something was wrong in Aug (last year) but it took me 7 mo of going to different doctors to find someone that could see what I was describing, of course by then the signs were much more prominent, as this type doubles every 100 days. I had chemo first, 16 rounds, once every 2 week ( by the end there were no more signs and symptoms) and then surgery ( w great results) and the radiation- tomorrow will be my last radiation! I had my PET scan today, I have a good feeling it will read great results as well. Yes, when I first started this journey, I read the statistics and didn't really like them, so I decided they weren't for me... I have done well through each stage! The most significant help was my support system, family and friends being there for me. What can we do to make others more aware of this type? Tell people, tell everyone you know! I showed my affected breast to every doctor and/ or nurse I came in contact with-when I went for dermatology, port placement, ECHO, PET Scan.... A doctor in practice for women for 40 years had only seen this type of cancer once in his career! Good wishes to you and your sister! This is fantastic group of women! Very supportive and someone is always awake to answer questions. Always feel free to continue to post your questions and concerns, you are not alone.
    over 6 years Comment Flag
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Elaine, It always makes me so sad to see this question because the stats probably are not an uplifting piece of information. You are not a statistic.... just like Rita Jo. You are an individual and your life is one in a million. Your question needs to be...."OK, where do we go from here?" I am sure there are plenty of women whose cancer had good odds for recovery but then for them, it didn't turn out as well. Would it make you feel better to dwell on the negative? I doubt it.... Take one day at a time, do what you can, and live each day to the fullest. Fight like you have never fought before. Don't let this lousy disease get any more of a foothold with you. A positive kickin' attitude will not only go a long way to help you mentally but also physically. Hang in there darlin'. Sharon
    over 6 years Flag
    • Elaine Ellison Profile
      anonymous
      Learning About Breast Cancer

      Thanks Sharon, it is my younger sister Sandy who has this awful disease and she is fighting and does have a great attitude. She just had her 3rd grchild and has a lot to be grateful for. It is me that keeps reading the info and searching for...

      more

      Thanks Sharon, it is my younger sister Sandy who has this awful disease and she is fighting and does have a great attitude. She just had her 3rd grchild and has a lot to be grateful for. It is me that keeps reading the info and searching for more.I did the same when my late husbands cancer came back with a vengence. I never let her know of any of my research, just always stay positive for her. I guess I just want to hear more of the survivors stories. I get so angry because you never hear anything about this IBC. More people need to know. She was misdiagnosed twice by her trusted Drs. Even they didn't know. What can we do?

      over 6 years Flag
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      IBC is rare. I have read that many doctors have never seen a case of it. It can be misdiagnosed, easily. Unfortunately, it is aggressive, so it can progress rapidly. I am very sorry for you because you have seen what cancer can do. BUT......

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      IBC is rare. I have read that many doctors have never seen a case of it. It can be misdiagnosed, easily. Unfortunately, it is aggressive, so it can progress rapidly. I am very sorry for you because you have seen what cancer can do. BUT... like Rita Jo, some women really respond well to treatment. We have other women here who have the same diagnosis. It is pretty much treated like a chronic disease. Your sister is lucky to have you in her corner. You might try researching clinical trials for treatment of IBC too. It is a bad deal it was her luck to develop such a rare type of breast cancer. When I was going through treatment, the thing that made me feel the best were stories of hope. It lifted my spirits like nothing else. You might even try searching for an IBC survivors group online. At least that way, you will get probably the latest, greatest news about this type of BC. You are your sister's angel. Blessings, Sharon

      over 6 years Flag
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      None of us can predict the future. But for those who have received unsettling medical news, it makes each moment, every day, a reason to celebrate.

      over 6 years Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I just watched a noreen Fraser interview. She has been stage 4 for 10 and going strong.
    over 6 years Comment Flag
  • sheri poynter Profile
    anonymous
    Learning About Breast Cancer
    RITA has the right attitude ! It's up to you , your in control,
    over 6 years Comment Flag

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