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I was diagnosed with stage 0 DCIS. I had a single left mastectomy on 11/8/11. I am so scared it is going to happen on the other side. I started on tomaxifin to help reduce my risk. Does anyone know what the chances are it can happen on the other side?

Nancy Wing Profile
Asked by

anonymous

Stage 0 Patient about 6 years
 
  • Donna Gray Profile
    anonymous
    Survivor since 2011
    I had stage 0 DCIS. I opted for a double mastectomy. I am 47 and did not want to spend the rest of my life worrying about getting it in my other breast. When the final pathology report came back after my mastectomy they found abnormal cells in the other breast. So for me I made the best decision. Best of luck to you.
    about 6 years Comment Flag
  • Anne Marie jacintho Profile
    anonymous
    Survivor since 2003
    I am like Donna had ductal carcinoma in situ 2003 had bilateral subcutaneous mastectomies they did find abnormal cells in other breast. 2008 had a reoccurrence on incisional line on affected breast. Again caught early had further bilateral simple mastectomies with negative lymph nodes. There is no perfect treatment or "cure" for breast cancer even with mastectomies it us impossible to get all the breast tissue out unless they go back to the radical mastectomies of the old days. Main thing is to be your own advocate make sure you continue to have mammograms or breast ultrasounds. Early detection saves lifes. We all have in the back of our minds the "what if it comes back" thought. Even those that are 20 and 30 year survivors. Remember you are a survivor, and always try to stay positive. Don't let the negative thoughts interfere in a productive happy life. I always say no matter what there is something to be thankful for every day take care
    about 6 years Comment Flag
  • Diana Foster Payne Profile
    anonymous
    Stage 4 Patient
    Hi Nancy. I had a bilateral mastectomy Oct. 24th. I am stage 3C. According to the research I've read there is always a chance of reoccurrence in the future. Of course the later stages have a lot greater chance of coming back. I'm still undergoing treatment but I know I am going to have the same fear when i am in remission. Since your cancer was caught in an early stage and adding tomaxfin, your risks of it coming back are low. Best wishes. :)
    about 6 years Flag
    • Nancy Wing Profile
      anonymous
      Stage 0 Patient

      Thanks Diana. I have seen you answer a lot of peoples questions. You have really done your homework. How are you feeling having both done? Good luck to you!! You are a strong woman and can beat this!!!

      about 6 years Flag
    • Diana Foster Payne Profile
      anonimamente
      Stage 4 Paciente

      Hi Nancy, when I was diagnosed in May I tried to learn everything I could about my type of cancer and treatment options. My boyfriend has teased me about the stacks of books that I've checked out from the library. Lol. But I'm far from knowing all...

      mais

      Hi Nancy, when I was diagnosed in May I tried to learn everything I could about my type of cancer and treatment options. My boyfriend has teased me about the stacks of books that I've checked out from the library. Lol. But I'm far from knowing all there is. :). I decided to have both breasts done. I chose that for several reasons. My right breast was cancerous with lymph node involvement. My left breast had several micro calcifications and cysts. I wasn't a candidate for immediate reconstruction due to my later stage of cancer. When I get the thumbs up on reconstruction I would have to have the "good breast" operated on for symmetry purposes. After my surgery my dr told me I had made the right choice considering the problems with my left breast. I want to feel like I've done all I could do to beat this. It's such a personal choice Nancy. You need to do what's best for you. Thanks for the kind thoughts on my behalf. :). Best wishes with whatever you decide. :)

      about 6 years Flag
  • Lysa Allison Profile
    anonymous
    Learning About Breast Cancer
    I also had stage 0 DCIS and I do think about getting it again. My physicians are following me so closely that if it does happen again, I feel it will be found early again. Good luck to you!
    about 6 years Flag
    • Nancy Wing Profile
      anonymous
      Stage 0 Patient

      My physicians are also watching it closely. Luckily if something does happen they will hopefully find it early as well. Good luck to you as well!!!

      about 6 years Flag
    • Donna Gray Profile
      anonimamente
      Sobrevivente desde 2011

      Lysa, what was your treatment? For stage 0 DCIS.

      about 6 years Flag
    • Lysa Allison Profile
      anonimamente
      Aprendendo sobre o câncer de mama

      Hi Donna, I chose a lumpectomy, radiation (30 treatments), and am now taking Tamoxifen. And you?

      about 6 years Flag
    • Donna Gray Profile
      anonymous
      Survivor since 2011

      My DCIS was not hormone related so chemo or radiation would not have been helpful. I chose mastectomy. I didn't want to worry about it for the rest of my life.

      about 6 years Flag
    • Lysa Allison Profile
      anonymous
      Learning About Breast Cancer

      I think whatever you do is the right decision.

      about 6 years Flag

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