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I'd like to hear from those who are BRCA2+ . Fears? Concerns? Changes in lifestyle? Diet? Exercise? Doc recommendations?? Post-surgery and tx. What now?

Evelyn Heilbrunn Profile
Asked by

anonymous

Survivor since 2012 about 7 years
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  • melissa perlman Profile
    anonymous
    Learning About Breast Cancer
    I'm brca 2 pos. had no family history. Did a double mastectomy with reconstruction. Full hysterectomy 6 weeks ago. Before surgery, I ate extremely healthy, went to boot camp 4 days a week and ran 5k races. It obviously didn't help. You can't fight genetics. I still eat well and have started running again. You need to live your life. I removed all potential cancer receptacles that I was advised to, and I would do it again. Treat your body well, that's all anyone can do.
    about 7 years Comment Flag
  • anonymous Profile
    anonymous
    Stage 1 Patient
    I'm BRCA2 positive. My main fear is that my 2 daughters and 2 granddaughters will have to deal with this horrible disease. I recently completed my chemo after bilateral mastectomy. Next step is having my ovaries out to prevent cancer there. I have also changed my diet and am planning on beginning an exercise program. Good luck to you.
    about 7 years Flag
    • melissa perlman Profile
      anonymous
      Learning About Breast Cancer

      Not sure if I wrote to you before, I had 3 separate consults with oncho gynecologists. Each one recommended full hysterectomy. Each had seen aggressive uterine cancers 5-7 years later, which were unresponsive to chemo. Nothing documented. All...

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      Not sure if I wrote to you before, I had 3 separate consults with oncho gynecologists. Each one recommended full hysterectomy. Each had seen aggressive uterine cancers 5-7 years later, which were unresponsive to chemo. Nothing documented. All anecdotal. Since your ovaries and tubes are gone, do you really need your uterus

      about 7 years Flag
    • anonymous Profile
      anonymous
      Stage 1 Patient

      I asked my surgeon about that and she said there's no additional risk by leaving the uterus. Thanks for the info. I'll definitely do a bit more research before deciding.

      about 7 years Flag
  • Dawn Goldberg Profile
    anonymous
    Survivor since 2013
    I'm BRCA 2 too. Just had my bilateral mastectomy 2 weeks ago and was advised to have ovaries and Fallopian tubes out which I'll do when I get my reconstruction further along.
    about 7 years Comment Flag

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