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is it ok to refuse chemo or herceptin after surgery and ask for oral medication instead...

Alglen Thelex Garay Profile
Asked by

anonymous

Family Member or Loved One about 7 years
 
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Alglen, If you are asking is it ok to refuse the advise to have chemotherapy.... it is a personal decision. A patient can do whatever they choose. If you as saying a patient does not want to take the advise of their caregivers about chemo and --thinks-- taking an oral medication will be as effective as chemotherapy, they are dead wrong. Breast cancer is a very tough opponent and it has to be dealth with while your mom has the chance. This is her golden opportunity to throw everything there is at her cancer. There is no easy way out if she fights this. Chemo isn't fun but the side effects can be managed. My best friend chose not to have chemotherapy and she is dead. Surgery can only remove the primary tumor and lymph nodes. It is the cancer cells that may be circulating around her body the chemotherapy targets. Your mom shouldn't let breast cancer win by her being scared to DEATH by the treatment. I am extremely harsh sounding because I detest having breast cancer win and take one of my sisters. There isn't an easy way around a battle with breast cancer. Tell you mom, she has to fight like a real warrior. She really has more strength within her than she thinks. God's blessings, take care, Sharon
    about 7 years Flag
    • Alglen Thelex Garay Profile
      anonymous
      Family Member or Loved One

      Thanks shannon, you dont sound harsh at all... ur a big help and an inspiration... i even want to encourage her to get the 3 chemos instead of the 13 herceptin sessions every 3 weeks and not knowing how her body will react to it... i just need...

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      Thanks shannon, you dont sound harsh at all... ur a big help and an inspiration... i even want to encourage her to get the 3 chemos instead of the 13 herceptin sessions every 3 weeks and not knowing how her body will react to it... i just need more reasons on how to convince her to choose the 3 sessions chemo than the herceptin... =((

      about 7 years Flag
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      You are a wonderful, cherished daughter. Your mom is so lucky to have you fighting this disease right along side of her. Continued blessings to you both. It is a tough fight.
      Take care, Sharon

      about 7 years Flag
    • Alglen Thelex Garay Profile
      anonymous
      Family Member or Loved One

      thanks shannon... tomorrow i'll visit our family doctor for his opinion between chemo and herceptin... by saturday my dad and i will visit my mom's onco to talk with him heart to heart about my mom's medication, pros and cons, etc... take care...

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      thanks shannon... tomorrow i'll visit our family doctor for his opinion between chemo and herceptin... by saturday my dad and i will visit my mom's onco to talk with him heart to heart about my mom's medication, pros and cons, etc... take care too... =)

      about 7 years Flag
    • Lisa G Profile
      anonymous
      Survivor since 2012

      AMEN Sahron!!! Why not do everything you can to beat this? I was told that if I didn't have chemo I had a 25% change of it recurring and a 10% change if I did have chemo..10 is better than 25..so please think long and hard about this..wish you...

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      AMEN Sahron!!! Why not do everything you can to beat this? I was told that if I didn't have chemo I had a 25% change of it recurring and a 10% change if I did have chemo..10 is better than 25..so please think long and hard about this..wish you the best

      almost 7 years Flag
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Lisa,
      I was also a 2B sister. I am now a few weeks away from 65. I had similar odds and felt I liked the numbers enough to take-the-poison. I remains alive, well, with no recurrance. This isn't to say I am not looking over my shoulder but to...

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      Lisa,
      I was also a 2B sister. I am now a few weeks away from 65. I had similar odds and felt I liked the numbers enough to take-the-poison. I remains alive, well, with no recurrance. This isn't to say I am not looking over my shoulder but to throw in the towel, and not take the opportunity just wasn't my style. It remains a personal decision but I still feel if woman refuses chemo, she has not been given a true picture of what treatment is really like, or that she may have the head in the sand approach. "If I ignore it, it won't happen." I watched my best friend die because she refused chemo. Arrrrgh. I miss her still. Take care, Sharon

      almost 7 years Flag
  • Erin Timlin Profile
    anonymous
    Survivor since 2011
    I'm on herceptin and as far as I know there is no oral medication counterpart. Tamoxifen is given to women who have ER tumors. herceptin is given to women who have HER2 tumors. Chemo is your best bet against an aggressive form of breast cancer such as HER2 .
    about 7 years Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    I suggest you talk to your treatment team or onc. They know your your case better than anyone. Your survival is their primary focus. That as includes you personal wellbeing during the treatment. Please talk to and listen to them. You have the right to do anything but always remember it is a life and death decision. That seems tough but it is the truth. God Bless you on your journey.
    about 7 years Flag
    • Alglen Thelex Garay Profile
      anonymous
      Family Member or Loved One

      Thanks for your reply Marianne... Actually its my mom who has breast cancer... she already had chemo and mastectomy... we thought our battle for cancer was over... but then the doctor said we still have post surgery treatment... she's supposed to...

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      Thanks for your reply Marianne... Actually its my mom who has breast cancer... she already had chemo and mastectomy... we thought our battle for cancer was over... but then the doctor said we still have post surgery treatment... she's supposed to have 3 more chemo sessions, 1 & half month of radiation and the oral med for 5 yrs... but my mom refused to have the chemo since she's old (62 yrs old) she might not be able to handle the side effects... but instead of the 3 chemos she'll have 13 sessions herceptin every 3 weeks... ive read its bad for the heart... that's why im worried now... =((

      about 7 years Flag
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I stand by what the doctors say. They have your mom's best intrest and survival as their priority. 62 in not old I am 59. Breast cancer is a life long journey. It is her right to make any decision she wants but it is a quality if life decision if...

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      I stand by what the doctors say. They have your mom's best intrest and survival as their priority. 62 in not old I am 59. Breast cancer is a life long journey. It is her right to make any decision she wants but it is a quality if life decision if she is ok with that then she is the one that has to live with the choice.

      about 7 years Flag
  • Thumb avatar default
    anonymous
    Stage 2A Patient
    If she already did chemo and a mastectomy then 3 more should bbe a walk in the park :) Of course its a personal decision to me - a few weeks of my life possibly feeling yucky is well worth the piece of mind. They will monitor her heart for the Herceptin and if her scans get low take her off. The 5 year pill isn't that big of a deal either. I beileve in mind over matter. Even on my not so good days of chemo I told myself I refuse to let this disease get the better of me, that this was a temporary set back and brighter days were in my future. It helped get me thru it. Good luck to you and your family.
    about 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    Praying God helps u in ur decision. I went through the same thing and thought about refusing treatment but after talking to my doctor and praying much I decided to go with chemo and now I'm three weeks out from chemo and going into radiation. It was a hard decision but it's a decision that only you can make. God bless you.
    about 7 years Flag
    • Alglen Thelex Garay Profile
      anonymous
      Family Member or Loved One

      Thanks for your reply Norma... Actually its my mom who has breast cancer... she already had chemo and mastectomy... we thought our battle for cancer was over... but then the doctor said we still have post surgery treatment... she's supposed to...

      more

      Thanks for your reply Norma... Actually its my mom who has breast cancer... she already had chemo and mastectomy... we thought our battle for cancer was over... but then the doctor said we still have post surgery treatment... she's supposed to have 3 more chemo sessions, 1 & half month of radiation and the oral med for 5 yrs... but my mom refused to have the chemo since she's old (62 yrs old) she might not be able to handle the side effects... but instead of the 3 chemos she'll have 13 sessions herceptin every 3 weeks... ive read its bad for the heart... that's why im worried now... =((

      about 7 years Flag
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I hadn't heard that before. I'm fairly new to this and I know just going thru it since July 2012 it's been hard. She can make it. She really isn't as old as u think. I'll be certainly be keeping her in my prayers. God bless.

      about 7 years Flag
    • Jennifer Jones Profile
      anonymous
      Patient

      62 is NOT old. She's in her prime. I'm 67 and believe me I am not old. I still have years and years of loving my grandchildren left.

      about 7 years Flag
  • André Roberts Profile
    anonymous
    Stage 1 Patient
    All chemos are not the same. You need to talk with your oncologist. They will decide what regimen is best for you & your situation. You can find out the percentage of recurrence with different treatment plans. Then choose what you want to do or not do. Prayers to you.
    about 7 years Flag
    • Alglen Thelex Garay Profile
      anonymous
      Family Member or Loved One

      Thanks for your reply Andre... Actually its my mom who has breast cancer... she already had chemo and mastectomy... we thought our battle for cancer was over... but then the doctor said we still have post surgery treatment... she's supposed to...

      more

      Thanks for your reply Andre... Actually its my mom who has breast cancer... she already had chemo and mastectomy... we thought our battle for cancer was over... but then the doctor said we still have post surgery treatment... she's supposed to have 3 more chemo sessions, 1 & half month of radiation and the oral med for 5 yrs... but my mom refused to have the chemo since she's old (62 yrs old) she might not be able to handle the side effects... but instead of the 3 chemos she'll have 13 sessions herceptin every 3 weeks... ive read its bad for the heart... that's why im worried now... =((

      about 7 years Flag
    • André Roberts Profile
      anonymous
      Stage 1 Patient

      Sorry to hear about all that. Your mother is young. If it were me, I would fight to best ability. As far as the herceptin, it's not that bad. The heart trouble is a side effect, not a for sure thing. I have been on herceptin weekly since April &...

      more

      Sorry to hear about all that. Your mother is young. If it were me, I would fight to best ability. As far as the herceptin, it's not that bad. The heart trouble is a side effect, not a for sure thing. I have been on herceptin weekly since April & will continue for a year. I have a runny nose, weight gain, brittle nails & some aches & fatigue. Nothing bad at all. They test my heart function every 3 months. So far so good. I hope this info helps you. Prayers to you & your family.

      about 7 years Flag

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