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I'm 3 weeks post mastectomy and my arm and armpit swelling is worse and still alot of numbness in the same area anyone else have this experience? I'm scheduled for physcial thearpy and possibly a sleeve tomorrow..feeling like recovery is going backwards

Nikki De France Lucas Profile
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anonymous

Learning About Breast Cancer over 5 years
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    anonymous
    Learning About Breast Cancer
    I had a mastectomy on August 27 two months later I started noticing swelling in my arm and I unfortunately got Lympadema on my right arm because of the removal of 16 of my lymph nodes. I'm doing therapy now it's supposed to help bed but from what I understand it's not something that goes away ever...God is yet good
    over 5 years Flag
    • Lisa Taylor Profile
      anonymous
      Survivor since 2011

      No it doesn't go away my bilateral mastectomy with reconstruction was done on 1/12/12, still having issues with lymphodema , edema, baker cyst and cording! I'm sure one day we will feel a little like we use too!

      over 5 years Flag
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Lisa, wouldn't that be great. I'm just waiting for the moment where I feel like I used to... God help us.

      over 5 years Flag
  • Thumb avatar default
    anonymous
    Stage 2A Patient
    I had a double mastectomy in June. I still have numbness and at times a burning like tingling under my armpit (kind if my upper side area) and sometimes my arm feels heavy. I saw a physical therapist who says I don't have Lymphedema. I do however have this annoying cord thing that goes thru my armpit. Therapist said it will eventually pop or dissolve. My aunt had a mastectomy with lymph node removal 13 years ago and said she still has numb areas. I think it's just part of the whole procedure. Nerve endings were removed, maybe some don't repair. Good luck.
    over 5 years Flag
    • Nikki De France Lucas Profile
      anonymous
      Learning About Breast Cancer

      What is this cord thing you speak of cuz I feel a tendon or muscle that goes from under the armpit all the way to my wrist that is tight and keeps me from proper movement in my arm and hurts like hell

      over 5 years Flag
  • Blair Greiner Profile
    anonymous
    Learning About Breast Cancer
    I am 8 months post mastectomy. Still going to therapy. Still wear my sleeve and still numb. Just wanted you to know it takes time for your body to heal. It will and we always want things to be better right away but our bodies are fighting cancer and need time to heal. Take care!
    over 5 years Flag
    • Nikki De France Lucas Profile
      anonymous
      Learning About Breast Cancer

      Thank you and good luck I'm just trying to figure out what my new normal are going to be and I always want to get better fast but cancer treatment and age are taking a toll on me

      over 5 years Flag
  • Parisha Doyle Profile
    anonymous
    Survivor since 2011
    I am a year out of my double and I still have numbness. It has got better though. I have occasional shots of pain (not bad just weird) and it just lasts for a couple of seconds. The surgeon said that is nerves. Its just a process though, every day eventually gets better. :) hang in there!
    over 5 years Comment Flag
  • mary rafferty Profile
    anonymous
    Learning About Breast Cancer
    I had a bilateral mastectomy 5 weeks ago and the right breast was the one with cancer. That arm is actually more flexible .I think because I am right handed and use it more. So for swelling and stiffness I reach my arm up and massage slowly in the arm pit and then slowly move up the arm to my hand.Treat this process with strong gentleness, as if you were helping someone else. I do this to both arms 3 or 4 times a day....also I do this as I lay in bed before I sleep. I read where the swelling needs to be handled early rather than after the fact or the tissue become stretched out .....So now is the time to not only take real easy on your self and to stretch and massage those marvelous arms of yours. Also I feel some of what I feel as swelling is just normal tissue in my arm pit and alone the side of my body. The reason it feels like swollen tissue is because it is numb.......
    over 5 years Flag
    • Nikki De France Lucas Profile
      anonymous
      Learning About Breast Cancer

      Mary thank you for your input hope your healing is going well, physical therapy starts in the morning so hope that helps as they wi not start my raisins toon I can get my arm raid

      over 5 years Flag
    • Nikki De France Lucas Profile
      anonymous
      Learning About Breast Cancer

      Raised above my head

      over 5 years Flag
    • Nikki De France Lucas Profile
      anonymous
      Learning About Breast Cancer

      Ok sorry for spelling error darn autocorrect

      over 5 years Flag
  • Nikki De France Lucas Profile
    anonymous
    Learning About Breast Cancer
    Thank you fir the input, guess I need to sit back and see what happens
    over 5 years Comment Flag
  • Erin Timlin Profile
    anonymous
    Survivor since 2011
    It sounds like lymphedema which the physical therapist should absolutely be able to help with a sleeve, massages, other techniques, etc. I am 6 months post mastectomy (6 month follow up tomorrow!) and I have more tenderness now than I did right after. Weird. After radiation I had a lot of tissue tightening and the skin, especially in my armpit areas, is very sore/tender. I think it is normal, unfortunately. I figure the discomfort is a small price to pay for being healthy! Good luck with the PT!
    over 5 years Comment Flag
  • Florinda Clark Profile
    anonymous
    Learning About Breast Cancer
    I am three weeks post double mastectomy. I have had burning pain from my armpit to elbow and at the site where the drain was. I was told it is probably the nerve and it may or may not heal. Same with the numbness in my arm. I think it's a small price to pay for for good health. I'm not scheduled for any PT.
    over 5 years Comment Flag
  • Lisa Taylor Profile
    anonymous
    Survivor since 2011
    Yes Nikki, I have been regressing as well. Seems like we take 1 step forward and 4 backwards! It becomes so trying when you think your getting better and your not!
    over 5 years Flag
    • Nikki De France Lucas Profile
      anonymous
      Learning About Breast Cancer

      Stinks when we feel like this just keep hoping that this to shall pass

      over 5 years Flag

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