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I dont know whether I should have a Bilateral mastectomy or just single mastectomy? I have DCIS in my left breast. I do not have the BRCA1 or 2 gene so that is why I dont know what to do??? Any advice please?

Cynthia Flexen Profile
Asked by

anonymous

Stage 0 Patient over 6 years
 
  • Diana Foster Payne Profile
    anonymes
    Stage 4 Patient
    Hi Cynthia, have you spoken to your Breast Surgeon about their opinion? That's very good news you don't have either of the BRACA genes. I will have my test performed this week. That's a tough decision, whether to remove both breasts. I have Stage IIIc IDC. It's a later stage plus my non-cancerous breast has several calcifications and a fluid filled cyst. Trouble brewing there. So I've chosen to have both removed. It's such a personal choice I can only relate my story to you. A good medical site to go to with fact based research is breastcancer.org. Or the book "Dr Susan Love's Breast Book". both has so much helpful info. Thinking of you on your journey, Diana
    over 6 years Flag
    • Cynthia Flexen Profile
      anonymes
      Stage 0 Patient

      Hi Diana
      Thank you so much for your advice! I had my appt with my plastic surgeon on Tuesday and she gave me advice on a single mastectomy with an implant an I'm feeling nervous. I don't know how that will look with just one implant.

      over 6 years Flag
    • Erin Youngblood Profile
      anonymous
      Learning About Breast Cancer

      I am in the same boat as you. I am getting a second opinion this week. My surgeon and primary doc recommending a double mastectomy. I am also debating on doing the 3 step implant or a one step....any thoughts? I am 44 and single and still want...

      more

      I am in the same boat as you. I am getting a second opinion this week. My surgeon and primary doc recommending a double mastectomy. I am also debating on doing the 3 step implant or a one step....any thoughts? I am 44 and single and still want to have breasts. Good luck to you

      10 months Flag
  • Surf  Momma Profile
    anonymes
    Étude du cancer du sein
    I just had a bilateral mastectomy one week ago. I have cancer in one breast only. I choose a bilateral because it made more sense to me to have two breasts that could look as similar as could be.
    over 6 years Comment Flag
  • Jessica Fisher Profile
    anonymes
    Stage 3A Patient
    I am 29 diagnosed stage 3 dci and having the same prob as u though I'm leaning tapers a double mastectomy with reconstrution because of my increased risk of a 2nd cancer and the thought of going through this again terrifies me I also am braca negative
    over 6 years Flag
    • Natasha Nunnally Profile
      anonymes
      Étude du cancer du sein

      I wanted to ask you how you were feeling. I am a 30 year old mother of 2 who just had a bilateral mastectomy after being diagnosed with left breast DCIS and infiltrating ductal carcinoma. I haven't spoken with a medical oncologist I will on 11-09...

      plus

      I wanted to ask you how you were feeling. I am a 30 year old mother of 2 who just had a bilateral mastectomy after being diagnosed with left breast DCIS and infiltrating ductal carcinoma. I haven't spoken with a medical oncologist I will on 11-09 my surgeon stated that my cancer is possible stage 2 but I will learn more details at my doctors visit. What treatments have they recommended for you? And how are you feeling emotionally and physically?

      over 6 years Flag
    • Jessica Fisher Profile
      anonymes
      Stage 3A Patient

      It's been 3 weeks now and I'm still pretty uncomfortable and it's so frustrating because I know come next week I start my expander fills and I'm prob gonna feel worse I meet next week with the oncologist to set up my chemo treatments and honestly...

      plus

      It's been 3 weeks now and I'm still pretty uncomfortable and it's so frustrating because I know come next week I start my expander fills and I'm prob gonna feel worse I meet next week with the oncologist to set up my chemo treatments and honestly I'm terrified of how its gonna make me feel! Your in my boat as well having 2 kids and being sick is so hard! emotionally I feel like I'm all over the place I cry constantly but it's more out of anger I feel like I'm a huge burden to everyone and not because they make me feel that way I just have alot if guilt cause I constantly need help with something, my amazing husband has not complained at all but I can tell his stress levels are off the charts and he tries to keep it so I don't feel bad but it only makes me feel worse! My kids are 5

      over 6 years Flag
    • Jessica Fisher Profile
      anonymous
      Stage 3A Patient

      And 8

      over 6 years Flag
    • Jessica Fisher Profile
      anonymes
      Stage 3A Patient

      I have done everything in my power to make sure this effects them as little as possible keeping up with after school activities and class parties chorus concerts play dates, I refuse to allow this cancer to take anything from them including me! I...

      plus

      I have done everything in my power to make sure this effects them as little as possible keeping up with after school activities and class parties chorus concerts play dates, I refuse to allow this cancer to take anything from them including me! I found a great therapist who I see every other week and just being able to talk to her is a huge help! My cancer presented just like yours dcis and IDC in the right breast then the MRI found 2 more tumors on the chest wall leaving me with no choice but to have a unilateral mast I decided to have the bilateral as a preventative measure in hopes that it will help me to never have to do this again, did u have reconstruction done at the time of your surgery? Because I had the mast I won't need radiation but chemo is a must! My lymphnodes were negative so the chemo won't have to be so strong and them I'll follow that with a 5 year hormone therapy treatment (tamoxifen) were u tested for BrCA gene? I don't have it and I thought for sure that's what caused this, sorry I rambled a bit but I hope I answered your questions and if u ever have anymore or just want to talk I know how nice it is to have someone your age who understands what your going through, I feel women over 40 who were diagnosed just don't have to face alot of the problems and obstacles we do being so young and facing this! Feel free to find me on FB or email me anytime greeneyedgurl143@aol.com best of luck to you xoxoxo

      over 6 years Flag
    • Erin Youngblood Profile
      anonymes
      Étude du cancer du sein

      You are a strong woman!

      10 months Flag
  • Cathy Wadkins Profile
    anonymes
    Étude du cancer du sein
    Dear Cynthia They told me no it would not spread to the other one ductal is the one I have it's not the bad one
    over 6 years Flag
    • Donna Gray Profile
      匿名
      乳癌幸存者从 2011

      Cathy I only had DCIS in right breast. I chose bilateral mastectomy because I didn't want to go thru this again either. After my surgery the final pathology report came back and showed I have abnormal cells in left breast. It is a very personal...

      更多

      Cathy I only had DCIS in right breast. I chose bilateral mastectomy because I didn't want to go thru this again either. After my surgery the final pathology report came back and showed I have abnormal cells in left breast. It is a very personal choice but I feel like I made the right choice. Now I am cancer free and don't have to spend my life worrying about the other breast.

      over 6 years Flag
    • Cathy Wadkins Profile
      anonymes
      Étude du cancer du sein

      Dear Donna ,
      You are right the doctor did not check me to see if it could spread he just commend that the kind I have wouldn't spread. But I do disagree with him because why am I taking a 5 year tamoxifen pill and after that another 5 year pill of...

      plus

      Dear Donna ,
      You are right the doctor did not check me to see if it could spread he just commend that the kind I have wouldn't spread. But I do disagree with him because why am I taking a 5 year tamoxifen pill and after that another 5 year pill of something else just to prevent it to come back. Yes you did make the right decision peace of mind.

      over 6 years Flag
    • Thumb avatar default
      anonymes
      Stage 0 Patient

      I am so glad I read this, Donna. I have made the decision to have bilateral with my diagnosis of DCIS in one breast. I did it for the same reason: peace of mind.

      almost 6 years Flag
    • Thumb avatar default
      anonymes
      Étude du cancer du sein

      same here, DCIS in right breast, very small, ER and PR negative; but I had had some swellings in lymph nodes both armpits for several months, did not want to go through radiation and chemo because we travel quite a bit in retirement but medical...

      plus

      same here, DCIS in right breast, very small, ER and PR negative; but I had had some swellings in lymph nodes both armpits for several months, did not want to go through radiation and chemo because we travel quite a bit in retirement but medical coverage is restricted to our home state; and biopsy turned out to be a nightmare (long story); I elected to get bilateral mastectomy, am 3 weeks post surgery and still happy about my decision; path report said no suspicious tissue in left breast, sentinel and axillary nodes clear, but I still think my body was trying to tell me something

      about 5 years Flag
    • Dawn Long  Profile
      anonymes
      Survivant depuis 2013

      I am scheduled for a bilateral mastectomy in October. I DCIS in my right breast ANSI had a lumpectomy but my margins are not clear. So I decided to get both breast remove I don't want to have worry the cancer coming back. I'm doing Tram flap ...

      plus

      I am scheduled for a bilateral mastectomy in October. I DCIS in my right breast ANSI had a lumpectomy but my margins are not clear. So I decided to get both breast remove I don't want to have worry the cancer coming back. I'm doing Tram flap reconstruction at the same time

      over 4 years Flag
    • Maria Nelson Profile
      anonymous
      Patient

      Dawn how was your reconstructive surgery? I was just diagnosed two days ago..just taking everything in.

      about 4 years Flag
  • danielle batchelor Profile
    anonymes
    Étude du cancer du sein
    I also had DCIS noninvasive in left breast...technically mastectomy shouldn't be an option! I ended up with 3 lumpectomies to get all the cancer out...third surgery she wanted to do mastectomy and I had to beg not to...I believe I did what was mentally best for me!
    about 4 years Comment Flag

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