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anyone out there that refused chemo? Why and what are you thinking now?

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Asked by

anonymous

Stage 2B Patient almost 6 years
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  • Marianne R. Profile
    anonymous
    Survivor since 2011
    I didn't want to do chemo but I didn't want to die more. It is that simple.
    almost 6 years Comment Flag
  • Carla Forres Profile
    anonymous
    Survivor since 2010
    I understand Sharon. The last person I knew that refused chemo treatment didn't make it. It's not that bad. I don't know what you have but mine was genetic. Honestly, when they cut off both of my breasts, I was just fine with that. When my hair was falling out on my patients (I'm a nurse) and i was hated it. I decided to shave my head. The female hair cutting place I went to to shave my head refused and said "they didn't have time for me". so my husband took me to a barber shop for men. They thought my husband wanted something done. He said no my wife wants her head shaved. There were about 20 men of all differnt ages in there. They said "NO" so I stuck my hand in my hair and pulled out a clump of hair and said I have cancer. The lady was very nice and said "it will be ok". after she shaved my head, I asked her how much it was and she told me this other man paid for it. He was was wearring an American Airlines mechanics uniform.and sunglasses. He gave me a big hus and was crying. He said "we will make it through this and we will be ok". My family call him our barber shop angel. Don't be scared. I know what you are going through. Just take a deep breath..
    almost 6 years Flag
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Carla,
      There are a million stories like yours... what a touching chapter in your life. Your angel came dressed in a mechanics uniform...thank you very much for sharing with us. I hope our anonymous breast cancer person posing the question does...

      more

      Carla,
      There are a million stories like yours... what a touching chapter in your life. Your angel came dressed in a mechanics uniform...thank you very much for sharing with us. I hope our anonymous breast cancer person posing the question does not let the fear of the treatment end up scaring her..... literally.... to death. Please don't refuse treatment. Take care and thanks again Carla. Sharon

      almost 6 years Flag
    • Cheryl Wornham Profile
      anonimamente
      Aprendendo sobre o câncer de mama

      I was so touched when I read your story I started crying yes there are angels out there that was so nice for what the man did for you please get all your treatments stay strong take care

      almost 6 years Flag
  • michelle j Profile
    anonimamente
    Paciente
    I had a rough time with the A/C chemo - very, very sick. I still would not have refused it. Even though I definitely didn't want to do it, I want to be around for a good, long time! My kids and my hubby need me - I will do whatever it takes to insure I am here.
    almost 6 years Flag
    • Craig Holder Profile
      anonymous
      Family Member or Loved One

      I love your answer Michelle j

      almost 6 years Flag
    • michelle j Profile
      anonymous
      Patient

      :) Thanks, Craig! How is your wife doing?

      almost 6 years Flag
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    One of my best friends refused to complete her chemo treatment.... can't ask her how she feels about it now because she died. Sharon
    almost 6 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I agree with everyone. It's a scary thing, but I'm going to tell u why I said yes to mine...I did a lot of praying and I asked God to confirm to me that it was the best decision for me and He did. Like always He answers me. Thank God for being able to listen to His still small voice. I'll b praying for u that He confirms it to u. It's a couple of months & if u do as I'm doing time will pass by fast. I pray a lot, drink lots of water, and I walk. We can do all things thru Christ who strengthens us. Phil. 4:13
    almost 6 years Flag
    • anonymous Profile
      anonymous
      Survivor since 2006

      Awesome response. The scripture you quoted is what helped me through my journey!! Love and Blessings your Sister Of Hope!!

      almost 6 years Flag
  • Lisa Doheny Profile
    anonymous
    Stage 2B Patient
    I wanted to after my first treatment because I had every bad reaction you could think of. I felt like death but, I didn't. I marched right through the rest of the treatments and I'm so glad I did, it got easier every treatment. If your onc says that you need it do it it's to save your own life! Good luck
    almost 6 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    Before i refused it also coz of the idea of getting bald and all the side effects. But i don't want to be selfish, my husband keep on fighting for me so why should i refused it.... Now, i'm on my 8th & last session next month and my hair is already growing back! Do it & everything will be alright, before you know it it's done!!!!
    almost 6 years Comment Flag
  • Nancy Ries Profile
    anonymous
    Survivor since 2011
    Anonymous, that is not a decision I was faced with making. My cancer was caught very early because of the timing of my mammogram. The surgical biopsy removed all cancer and had clean margins. I had 35 radiation treatments and I am on Arimidex for 4 more years. Faced with the decision I don't think there would have been a tough choice. I have two daughters, two sons-in-law, three wonderful grandsons and a fantastic husband who walked every step with me. I want to see my grandsons grow up and if I am lucky enough have families of their own. If chemo made that possible, then chemo it would have been.
    almost 6 years Comment Flag
  • vicki e Profile
    anonymous
    Stage 2B Patient
    My doc told me I would not live two years if I did not do chemo. That was five years ago. It was very hard for me and my hair never grew back. I hate being bald but I would hate dying more. Do the chemo. Please.
    almost 6 years Flag
    • martha phillips Profile
      anonymous
      Learning About Breast Cancer

      How come your hair didn't grow back what stage are you in

      almost 6 years Flag
    • vicki e Profile
      anonymous
      Stage 2B Patient

      Taxotere and it happens more often than you would think. I am stage 2

      almost 6 years Flag
  • Serena Neff Profile
    anonymous
    Learning About Breast Cancer
    When they told me chemo, my heart dropped. I had just done all the surgery. I kept thinking if I refused this opportunity to do everything and anything to survive, I would regret it more than feeling crappy for a few months. I just finished five months of chemo. I cried a lot. But it's better than thinking I didn't try and fight. If the Docs are offering you chemo, consider yourself fortunate; for some, there's no treatment option.
    almost 6 years Comment Flag
  • nicole blagburn Profile
    anonymous
    Learning About Breast Cancer
    I refused chemo. My lymph nodes came back negative and they got it all in surgery. They wanted me to do chemo because I'm 30 and I would bounce back faster. I asked what percentage would it help me. They said it might not help at all and if it does it would be 1%. He said if you line 100 girls up that has my exact diagnosis it would help 1 girl. That's not good enough for me....the amount of damage chemo does to your body and for the rest of your life...1% isn't worth it to me....and I'm not dead for choosing no chemo....I just had my 6 month mammogram and all is clear. Don't let people and doctors scare you into a treatment that's so harsh. It's a personal decision....no matter what you choose you will second guess yourself, so do what's best for you. Choosing not to do chemo is NOT a death sentence....do your homework...I spent hours and hours researching and talking to doctors that aren't wrapped up in the kickback money they get for offering chemo. You will be surprised at what you find. Good luck!
    almost 6 years Flag
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      a voice of reason! Thank you!

      over 1 year Flag
    • Jane Smitherman  Profile
      anonymous
      Learning About Breast Cancer

      How are you now? I have triple negative stage 1, grade 3, cancer and I refused chemo. I had a mastectomy. It was not in my lymph nodes. Please tell me it wasn't a death sentence.

      over 1 year Flag
    • Kalea Gross Profile
      anonymous
      Learning About Breast Cancer

      How did you find doctors to talk to who weren't for chemotherapy? I am fighting non hodgkins lymphoma, they think stage 2 but no one knows anything yet.

      about 1 year Flag
  • Jk Joyce Profile
    anonymous
    Survivor since 2012
    I didn't have to have chemo but if I did I would have to save my life. I kinda love life like that.
    almost 6 years Comment Flag
  • terri best Profile
    anonymous
    Stage 2B Patient
    I don't know if or how your doctor explained things to you. Treatment depends on your stage, node involvement, ER and PR status, also HER-2. Your doctor should be able to give you a percentage of how much chemo would help. My doc went by the NCCN Guidelines and, I believe, adjuvant.com. I then decided I wanted a PET Scan and Oncotype DX to help me decide. My PET Scan was clear-no spreading. My Oncotype score was 35. Anything over 30 they recommend chemo. I'm stage 2B, one node pos, ER , PR-, HER-2 neg. I've had one chemo treatment and its not fun. I have a husband, 3 sons with the youngest in high school, plus I have a beautiful 3 year old granddaughter. I want to be here as long as I can to enjoy my life I have. Choosing chemo, I felt, would help me do this. Talk to your doctor, request additional tests if wanted, and make an informed decision. Also, I have learned so much from the lovely people on this website. I truly don't think I could make it without all of their support and knowledge. Please hang in there and remember, you can make the right decisions for you when you have all the facts.
    almost 6 years Comment Flag
  • Carla Forres Profile
    anonimamente
    Sobrevivente desde 2010
    Sorry but one other thing that migh happen to you. I was blond with straight hair. I always wanted curles. Now I have black wavey hair. My husband likes it :)
    almost 6 years Comment Flag
  • Jackie booker Profile
    anonimamente
    Aprendendo sobre o câncer de mama
    I just got diagnosed with stage 3 breast cancer and scared to do chemo just want to do radiation
    over 1 year Comment Flag
  • nicole blagburn Profile
    anonymous
    Learning About Breast Cancer
    I refused chemo. My lymph nodes came back negative and they got it all in surgery. They wanted me to do chemo because I'm 30 and I would bounce back faster. I asked what percentage would it help me. They said it might not help at all and if it does it would be 1%. He said if you line 100 girls up that has my exact diagnosis it would help 1 girl. That's not good enough for me....the amount of damage chemo does to your body and for the rest of your life...1% isn't worth it to me....and I'm not dead for choosing no chemo....I just had my 6 month mammogram and all is clear. Don't let people and doctors scare you into a treatment that's so harsh. It's a personal decision....no matter what you choose you will second guess yourself, so do what's best for you. Choosing not to do chemo is NOT a death sentence....do your homework...I spent hours and hours researching and talking to doctors that aren't wrapped up in the kickback money they get for offering chemo. You will be surprised at what you find. Good luck!
    almost 6 years Flag
    • Thumb avatar default
      anonymous
      Stage 2A Patient

      Can I ask what type and grade etc did u have ?? I was thinking no as it was not much %. I was 42

      almost 6 years Flag
    • Thumb avatar default
      anonimamente
      Aprendendo sobre o câncer de mama

      Thank you for this

      over 1 year Flag
  • Thumb avatar default
    anonymous
    Stage 2B Patient
    Thank you for all you answers. I don't pray anymore - so that doesn't help me. As to not doing chemo - one oncologist I saw said : YOU DO NOT NEED CHEMO (but I have 2 lymph nodes involved) - he said I would be over treated and my chance of my cancer recurring are 8%... I got a second opinion. This one said : YOU WILL HAVE A 40% RECURRENCE if you do not do chemo - and even with chemo you will have a 20% chance of it coming back. 2 Drs that are well respected in the community - yet 2 totally different opinions. The only thing they all agree on is 6 weeks radiation and then 5 years Tamoxifen. So - who do I trust???
    almost 6 years Flag
    • julie s Profile
      anonymous
      Stage 2A Patient

      Get a 3rd opinion!

      almost 6 years Flag
  • Thumb avatar default
    anonymous
    Stage 2A Patient
    I presume u have just been told hat this is the best treatment plan. I didn't want it either with everything u hear about it. But I gave my self some time to think and went ahead. I knew in my heart u have to give it a shot and take every treatment that is available. I had a awful first cycle which seems normal while they get the meds right. But they do anything and everything to avoid as many side affects and help u thro it. It lasted about 4 days for me then I got back to normal and has a few weeks gap and I am awaiting next one. I am totally nervous about next one as I don't want to go thro that again. But saying that its a means to an end and its a short while and ur back on form. I'll hopefully experience a better next round as another female sailed thro her next few as they got it right. All I am thinking is next one to tick off. After feeling bad I was so happy to feel so good madness. I am sure u will make the right decision that is best. Good luck
    almost 6 years Comment Flag
  • Jennifer Jones Profile
    anonimamente
    Paciente
    Don't refuse it---just charge through it like a warrior--you'll do fine. I'm praying for you.
    almost 6 years Comment Flag
  • Rosanna Wieder Profile
    anonymous
    Stage 2B Patient
    I never gave it a second thought. If it was going to save my life I would go through hell and back if necessary. I start my treatment next month. Still healing from surgery. Hoping it goes smoothly for us both. But I hear it only last so long. Good luck!!!
    almost 6 years Comment Flag
  • terri best Profile
    anonymous
    Stage 2B Patient
    I meant to say I am ER
    almost 6 years Comment Flag
  • Kansas Girl  Profile
    anonymous
    Stage 1 Patient
    I'm not thrilled about starting chemo next month but I'll do anything if it means I get to spend more time with my husband and kids.
    almost 6 years Comment Flag
  • Patti Lafleur Profile
    anonymous
    Learning About Breast Cancer
    I am 73 years old, xray on Monday shows s two inch mass in my lungs, cat scan scheduled for 5/24/17 I am terrified, afraid my body won't be able to survive Chemo. Jesus help me.
    over 1 year Comment Flag
  • Patti Lafleur Profile
    anonymous
    Learning About Breast Cancer
    Hello is this site active?
    over 1 year Comment Flag

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