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Has anyone had a low score on the Oncotype test but still chosen chemo? I had lumpectomy with negative nodes but lymphovascular invasion so I think I want to be as aggressive as possible despite the side effects of chemo, but not sure yet.

Nicole W Profile
Asked by

anonymous

Survivor since 2013 almost 6 years
 
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Nicole, Your Oncologist will give you the long list of side effects from chemotherapy. You are literally take a type of poison which kills both cancer cells and other fast dividing good cells. It's a tough call. After having been through chemo, I would look long and hard at all sides of this. You can't tell if you are going to be the one the chemotherapy does irreparable harm and damage to your body. I came out of it with severe osteoporosis. Other women come out with heart damage that can't be repaired. A woman I worked with and my mother-in-law both died of the heart complication..... not their cancer's. There is no way to advise or describe how you will feel going through chemotherapy. It is a very tough struggle in which you have to depend on others to help get you through it. If you have a job, you may not be able to continue until you are through treatment. If you have children, they are going to be seeing a pretty sick Mommy. On top of that.... you will lose your hair, possibly eyelashes, eyebrows, too..... the worst of all....ugh. Women need to choose the treatment options and be as aggressive as will make them feel they have done what is possible. Despite a low onco score, you really want to feel you have done every treatment available to you. If so, then it is really only up to you. My Onc and I discussed women who, no matter if a treatment is only going to be of 1% benefit to them, they still wanted it. This is your body, your choice, your life and if choosing to go ahead with a more aggressive treatment then it doesn't matter what anybody else advises. I hope more weigh in on your question.... it's a tough one. Take care, and good luck, Sharon
    almost 6 years Flag
  • Susan Green Profile
    anonymous
    Patient
    My onco score was 29 and I decided not to have chemo or radiation. My oncologist wanted me to go through both. She said that it would only increase my chances of cancer returning by 5 percent, and that was not enough for me. I had a mastectomy in Jan. of this year and am doing fine. My cancer was fed by hormones. I had a lump that was 5 cm with negative lymph nodes. I would talk to my oncologist to see how likely your cancer would return without the chemo or radiation. This was my choice. I am on hormone blockers for 5 years, and I felt that if that is what was feeding the cancer, it should be enough as they removed everything! Good luck with whatever you decide and go through!
    almost 6 years Flag
    • L Williams Profile
      anonymous
      Learning About Breast Cancer

      Hi Susan. I just had a bilateral masectomy for BC on the right side only. I have similar characteristics as you. Oncotype score was 25. Clean margins and lymph nodes. However I'm 37 so doctor says to do Tam and Chemo because of my age and because...

      more

      Hi Susan. I just had a bilateral masectomy for BC on the right side only. I have similar characteristics as you. Oncotype score was 25. Clean margins and lymph nodes. However I'm 37 so doctor says to do Tam and Chemo because of my age and because it was 2.4 cm. I'm just curious if you also had a Mammaprint test done or if you had angiolymphatic invasion? Thanks!

      over 2 years Flag
  • Joni Dempsey Profile
    anonymous
    Learning About Breast Cancer
    I had a score of 17, < 2 cm size, neg nodes and clear margins with the lumpectomy. I did not have chemo, just rads. Decided that the risks of chemo did not outweigh the benefits for me. I am 54 and post menopausal. It wasn't an easy choice but I did what my gut told me to do.....
    almost 6 years Comment Flag
  • Paula Byrd Profile
    anonymous
    Survivor since
    I was first told that I had ducal carcinoma insitu, plans were to have lumpectomy followed by radiation treatments, But after the lumpectomy, pathology report showed stage 2 invasive lobular carcinoma, high grade. Because of my Mother having breast cancer I always thought about what I would do if it happened to me , I choose chemo followed by bilateral mastectomy. The side effects from the chemo has been less than desirable , with osteopenia, weak muscles in my legs, weight gain, and a few others. I choose breast reconstruction, and all of it was worth it, because when I look at my husband children and grandchildren I know it was all worth it. My mother had a mastectomy with no chemo and it came back in the other breast 5 years later so she a second mastectomy with no chemo then a few years later it came back in her chest wall she then had radiation, so I do think we benefit from chemo.. I think when we choose our treatment and we talk to others or read about their choices we often wonder is we made the right decision. Being a chemo nurse at the time of my diagnosis and trusting the oncologist that I worked with helped a lot with my decision.
    almost 6 years Comment Flag
  • Jacquie B Profile
    匿名
    了解乳腺癌
    My Onco score was a 10. I had a 2 cm tumor. Stage 2. Non aggressive. I has a microscopic amount of cancer in 1 node, not being positive or negative on the chart. ( not sure how that works but it did.)
    almost 6 years Comment Flag
  • Thumb avatar default
    匿名
    乳癌幸存者从 2012
    I had invasive ductual, stage 2.7 cm tumor, 2A, grade one, ER,PR + Her2 -, DX-15. Clear margins, clear nodes, 16 rads reduced my recurrence by 40% the first 5 years,but wouldn't benefit from chemo but by 1%, so no chemo( the chemo would have done more damage and carry higher risks side effects than cancer),Besides I feel like I would only do the chemo one time so I saved it if I had that dreadful recurrence which I really don't think about. Taking Femara for 5 years. I had a partial mastectomy(looks like a large lumpectomy because of location) but I felt like my surgeon would have really balked at me not doing the radiation with just the lumpectomy. Fight really hard the first round but don't take unnecessay risks. Your team should be able to really help with that info, but do what gives you the best peace of mind. Hugs and courage your way. Jo :-D
    almost 6 years Comment Flag
  • Jacquie B Profile
    anonymous
    Learning About Breast Cancer
    Sorry wasn't finish. I opted out of chemo!! Just wasn't a big enough risk for me. I hope I made the right decision. I start 33 sessions of radiation next week. I'm also on tamoxifen the last few weeks. All is well so far.
    almost 6 years Flag
  • kristina shaughnessy Profile
    匿名
    了解乳腺癌
    Nicole, I had a score of 7, but still had chemo and radiation. I had Stage 2, invasive lobular carcinoma. 3 tumors, 5 cm, 2.1 cm, and 1.5 cm. My nodes were clear.. I had a mastectomy in January and just finished radiation 3 weeks ago. I had 4 cycles of Taxotere and Cytoxan. 3 oncologists agreed that I should have chemo, due to the sizes of my tumors. My chance of avoiding recurrence didn't improve more than 10%, but that was pretty good to me! The chemo was rough, but I did it. I have two young daughters. There was no choice. It was a shock to hear it was recommended. Good luck to you !
    almost 6 years Comment Flag
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