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Have to decide on whether to have a single or double mastectomy. any advice on decision making? hardest decision I have ever had to make :(

judith rowley Profile
Asked by

anonymous

Learning About Breast Cancer about 6 years
 
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I had the same choice, I'm 28 and although it doesn't eliminate your chances of getting cancer in the other side it certainly reduces your chances of getting cancer in the lymph nodes on the other side. I also got it for the cosmetic appearance of having them matching. Im a month out of surgey, still healing and don't regret it at all.
    about 6 years Comment Flag
  • julie s Profile
    anonymous
    Stage 2A Patient
    My plastic surgeon said its easier to make them match with bilateral... For what it's worth. I know these decisions we have to make are very difficult.
    about 6 years Comment Flag
  • Rita Jo Hayes Profile
    anonymous
    Survivor since 2009
    I chose both as doc said there was a40% chance to have it in the left breast. You will find the right choice for you.
    about 6 years Comment Flag
  • vicky kayley Profile
    anonymous
    Learning About Breast Cancer
    I didn't get the choice so had a single mastectomy, so wished I had both off , as body image is low as I have a big bust, didn't go out for six weeks felt uneven and lop sided, not as bad now I have prosthesis but really wish I'd got both off. Take care Vicky x
    about 6 years Comment Flag
  • Bobbi Sidorenkov Profile
    anonymous
    Learning About Breast Cancer
    I did the same as Sarah, I had them take both sides for my piece of mind. If you are having reconstruction, both sides will match better also.
    about 6 years Comment Flag
  • jan bursky Profile
    anonymous
    Learning About Breast Cancer
    I chose bilateral and for me it was a great choice. The sentinel nodes turned up positive so the doc went digging and found a very small tumor that did not show on mammogram. I have lobular cancer, stage 3 on right , stage 2 on left. The most difficult decisions are never easy. Good luck.
    about 6 years Comment Flag
  • janet levy Profile
    anonymous
    Survivor since
    I had stage 2 in right breast and decided with my family and oncologist to do a bilateral. I am in the process of reconstruction and am happy with my choice. It reduces my chance of a recurrence but does not guarantee it of course. The up side is you choose the size of your breasts and they will be even and perky. I try to look at the bright side of things. Best of luck to you.
    about 6 years Comment Flag
  • Elizabeth Castro Profile
    anonymous
    Survivor since 2012
    I had only one side. My plastic surgeon said that b/c of my BMI being high it would increases my risk during surgery. It's a long surgery as it is & your body needs to be able to bounce back. It's def a personal choice. Talk to your plastic surgeon about any quality of life studies that have been done comparing unilateral & bilateral (by choice). Best wishes!
    about 6 years Comment Flag
  • laura  bailey Profile
    anonymous
    Learning About Breast Cancer
    I had a bilateral and reconstruction even though I had cancer only in one. This is tough, but I worry a lot less about reoccurrence.
    about 6 years Comment Flag
  • Traciann brundage Profile
    anonymous
    Learning About Breast Cancer
    I am doing the same as the other 2 . I don't want to have to fear this the rest of my life . I have to much else to give a thought after this .
    about 6 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I had a bilateral and don't regret it. My sister inlaw was diagnosed 9 years ago (lumpectomy). Found out yesterday it is back and now in her lung. Very sad.
    about 6 years Comment Flag
  • Sarah Hailes Profile
    anonymous
    Stage 2A Patient
    I chose bilateral even though I only had cancer on the right side. I'm only 36 and didn't want to spend the rest of my life worried about the left side.
    about 6 years Flag
    • judith rowley Profile
      anonymous
      Learning About Breast Cancer

      Thanks Sarah. I'm 35 and only have it in my left side but am leaning towards a double. Did u have expanders and radiation?

      about 6 years Flag
    • Sarah Hailes Profile
      anonymous
      Stage 2A Patient

      I am in the middle of chemo, radiation should start in October... I'm leaning toward a TRAM-flap reconstruction...

      about 6 years Flag
    • Traciann brundage Profile
      anonymous
      Learning About Breast Cancer

      I am 27 ladies just waiting schedule mine

      about 6 years Flag
    • Melissa Propp Profile
      anonymous
      Learning About Breast Cancer

      I am 36 just finished chemo having a double even though it's only on the right side I have a 70% chance of getting it on the left side. No brained for me. My thought was everything I just went through I don't want to do again. I am also leaning...

      more

      I am 36 just finished chemo having a double even though it's only on the right side I have a 70% chance of getting it on the left side. No brained for me. My thought was everything I just went through I don't want to do again. I am also leaning towards the tram flap reconstruction. I don't want implants!!

      about 6 years Flag
    • Sarah Hailes Profile
      anonymous
      Stage 2A Patient

      Melissa!! Let's keep intouch!

      about 6 years Flag
    • Sarah Hailes Profile
      anonymous
      Stage 2A Patient

      I'm still getting chemo then on to 6 weeks of radiation then tram flap surgery.

      about 6 years Flag
  • Terri Way Profile
    anonymous
    Stage 2B Patient
    I actually went only one side. I had a lumpectomy first, but had to go back. I don't worry or regret anything. I think that no matter what you choose, you have to be comfortable with it. For me, I knew if I did one side, I could always go back for the other side if or when I feel like I need to. Another thing that helped me make my decision is that I haven't had kids yet, and would like robe able to breastfeed them if possible, and I still have one real side for that. It is one of the hardest decisions I think I faced during the entire journey, just take your time and have a medical team you can trust! Good luck!
    about 6 years Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    A very personal decision. I had cancer on the right side and did a lumpectomy. When it came time for reconstruction I opted for a bi lat and I am so glad I did.
    about 6 years Flag
    • julie s Profile
      anonymous
      Stage 2A Patient

      Reconstruction with lumpectomy? Is that an option?!

      about 6 years Flag
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      Yes. When I was in active treatment I chose to concentrate on getting well and get the cancer gone. Then I took 8 months to get well and strong. During that time I researched recontruction and decided what I wanted. I finally chose a DIEP flap ...

      more

      Yes. When I was in active treatment I chose to concentrate on getting well and get the cancer gone. Then I took 8 months to get well and strong. During that time I researched recontruction and decided what I wanted. I finally chose a DIEP flap with a bi- lat mastectwcomy. It has been a long process but I'm very happy I chose to reduce my chances of breast cancer coming back to almost nil. It is very personal choice but I know see breasts that are pretty not a breast and a half that might put me through that fight again.

      about 6 years Flag
    • Marianne R. Profile
      anonymous
      Survivor since 2011

      I forgot to add my insurance did pay. I was careful to stay in my network.

      about 6 years Flag

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