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Has anyone taken any natural alternatives to tamoxifen? If so what are they? I have read about estriol and progesterone. Info needed! Seriously stressed!!! I am estrogen positive and looking for non-synthetic options to block estrogen. Please help!!!

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anonymous

Learning About Breast Cancer almost 6 years
 
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    anonymous
    Learning About Breast Cancer
    First, I agree with where you are headed regarding natural alternatives. Second, I can tell you what I've researched and what I've decided to do or not do; but you must make decisions for yourself, what you are comfortable with, and do lots of research. I am 62, I had stage 1 invasive ductal carcinoma, 1.1 cm, estrogen/progesterone positive, no HER2. No body can tell us what caused our breast cancer, no one knows for sure. Odds can be built against us from what we were/are exposed to all our lives; what we've eaten/inhaled, no pregancies, birth control pills, synthetic hormones (Prempro), diet, cumulative radiation from xrays (mamograms, injuries, dentist, etc.) the list goes on. There also is no doctor who will tell you there is a cancer "cure." All we can do for ourselves are things to hopefully prevent proliferation. I am convinced mammograms made my tumor "invasive." With the mega pressure of mammograms, it could have very likely burst a tumor that would otherwise not have been invasive. I had a lumpectomy (because it was invasive) and one 55 minute intraoperative radiation treatment because I refused the standard 6 weeks, five days a week of rads. I also refused any unnatural followup treatment, i.e., chemo, Tamoxifen/Arimidex. I refuse to put any more "synthetic" pills or medicine in my body. Please research as conventional/oncologists will not tell you about anything natural. I take numerous vitamins, supplements and herbs. Oncologists push conventional rads, chemo, Tamoxifen/Arimidex because they are controlled by big pharma, as are the hospitals they are associated with, and they have nothing else to offer. For example, Tamoxifen, it's only given for five years--why?--because it stops working after five years. All Tamoxifen does is sit on the estradiol receptors to prevent cancer proliferation. However, after five years, and you stop Tamoxifen, the cancer will proliferate if it's prone to do so. So you are "perhaps" just avoiding the inevitable, maybe, maybe not--doctors don't guarantee anything. Has anyone said what all the side effects could be; problems with high blood pressure meds, cataracts, corneal scarring, retinal changes, endometrial cancer, uterine cancer, blood clots, hot flashes, headaches, fatigue, nausea, vomiting, vaginal dryness/itching, vaginal irritation/rash, muscle/joint ache, etc. You are also not told ALL side effects of standard radiation treatment, and don't forget chemo. I prefer and am more comfortable with balancing natural bioidentical hormones. Run from any person or doctor who tells you natural bioidentical hormones are no different that synthetic. Big pharma cannot patent "natural" medication, therefore, doctors do not learn about bioidentical hormones or recommend them. Do not blindly do whatever the conventional doctors tell you, research everything first. I had to decide; do I want to extend my life by several years (maybe) but live it with the side effects of conventional treatment. Since there are no guarantees either way, I chose not to put any more toxins in my system. Please make decisions for yourself but do the research. I have done a lot of research, too much to go into everything here, but I can recommend some starter research for you if you wish; www.mercola.com, read Susan Somers "The Sexy Years" and John R. Lee's "What Your Doctor May Not Tell You About Breast Cancer." I am sure I will get a lot of flack on this website because I have gone against the grain/conventional treatment. I will take the flack as long as they have done tons of research regarding natural alternatives. Yes, there are quacks out there with quack treatments, but there are numerous legitimate "natural" treatments--no absolute cures, but conventional treatment is not an absolute cure either. I don't know your stage of breast cancer, your age, or anything about your personal condition. You may choose to do Tamoxifen, rads, chemo, etc., I absolutely am NOT telling what you should do, but do the research with whatever treatment to choose to go with. Sincerely, L
    almost 6 years Flag
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      anonimamente
      Aprendendo sobre o câncer de mama

      Thank you so much for your response. We just got the book by Dr Lee. Could you tell me more about bio identical hormones? Thank you for stepping out against the masses. Much appreciated!

      almost 6 years Flag
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      anonymous
      Learning About Breast Cancer

      Suzanne Somers book, "The Sexy Years" - goes into detail regarding bioidentical hormones. Dr. Lee's books are excellent, more technical, but very informative--What Your Doctor May Not Tell You About Menopause (more detail about bioidenticals); as...

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      Suzanne Somers book, "The Sexy Years" - goes into detail regarding bioidentical hormones. Dr. Lee's books are excellent, more technical, but very informative--What Your Doctor May Not Tell You About Menopause (more detail about bioidenticals); as well as What Your Doctor May Not Tell You About Breast Cancer. Suzanne's book is an easier read; more our language than from a physician's more technical approach. Bioidentical hormones refer to "natural" hormone balancing of the three main estrogens and progesterone. Testing for balance is done either by blood or saliva. They are prescription creams prepared by compounding pharmacies. Synthetic hormones--Premarin (fake estrogen pills) and Progestin (fake progesterone pills); and Prempro, FemHRT (combination of fake estrogen and progesterone pills) are not natural compositions of hormones and should be avoided. Sincerely, L

      almost 6 years Flag
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Thank you!!!

      almost 6 years Flag
    • Thumb avatar default
      anonymous
      Survivor since 2012

      Thank you for being honest, we don't have enough of that with breast cancer survivors.

      over 4 years Flag
    • anonymous Profile
      anonymous
      Learning About Breast Cancer

      You are welcome. It's been a while since I wrote the above. As of today, so far - so good and pray to remain that way!

      over 4 years Flag
    • Carrie Bacovsky Profile
      anonymous
      Stage 4 Patient

      So agreed. You are wise for thinking for yourself and researching facts. I suffered (and still do) from two years of Tamoxifen. Lord bless you and may you remain in good health.

      almost 4 years Flag
    • Denise Maher Profile
      anonymous
      Patient

      I am so glad I read this. I am being told that I have a 36% of recurrence if I don't do chemo & Tamoxifen. This cannot be my only alternative. After reading this I am bolstered to do more research. I live in the states now but I am moving to...

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      I am so glad I read this. I am being told that I have a 36% of recurrence if I don't do chemo & Tamoxifen. This cannot be my only alternative. After reading this I am bolstered to do more research. I live in the states now but I am moving to Switzerland next month and will take it from there. I will be reevaluated and see their suggestions. The clinic I will visit offers naturopathic treatments as well. You would never find that here in the U. S. I already eat a very strict diet. Thank you for posting all this info. I really appreciate it.

      almost 3 years Flag
    • Jeannette farr Profile
      anonymous
      Learning About Breast Cancer

      Would you mind sharing with me the list of each supplement you take? I declined chemo and I am just beginning to learn about the natural alternatives. I'm looking for a doctor but they are hard to find. What supplements are you taking that maybe I...

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      Would you mind sharing with me the list of each supplement you take? I declined chemo and I am just beginning to learn about the natural alternatives. I'm looking for a doctor but they are hard to find. What supplements are you taking that maybe I can begin to take. I really need guidance?

      over 2 years Flag
    • Helena Petrovich Profile
      anonymous
      Learning About Breast Cancer

      Check out the book "Life Over Cancer" by dr Block- very helpful.

      over 1 year Flag
    • Christine Price Profile
      anonymous
      Learning About Breast Cancer

      I am so glad to read this, I too bad IORT, I did not want any chemo, but was put on Letrozole, in January of this year,my bc surgery was in Dec. I did not like the side effects of this drug which I am to take for 5years ,I am 79, my oncologist...

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      I am so glad to read this, I too bad IORT, I did not want any chemo, but was put on Letrozole, in January of this year,my bc surgery was in Dec. I did not like the side effects of this drug which I am to take for 5years ,I am 79, my oncologist says, that it's a 50 percent chance of the cancer not coming back with that pill, I c h lose to go off the drug for three weeks to see if I still have the side effects, the oncologist said they were not related, which I know is not true, What to do, my legs were so weak, joint pain in hips legs ,my eyesight was affected, still is, and I had swelling of the ankles, not something I usually have, What to do?? What to do?

      11 months Flag
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      anonymous
      Learning About Breast Cancer

      Christine, my mom is experiencing very similar symptoms to yours described above,"my legs were so weak, joint pain In hips and legs". She is also taking tamoxifen. Did these symptoms go away when you stopped taking the tamoxifen???

      9 months Flag
  • Thumb avatar default
    anonymous
    Survivor since 2012
    Agree with Sharon. Never put hormones in your precious body.No experience with tamoxifen but have a friend with Stage 3C operative Ductal Invasive who was given tamoxifen and other hormone suppressors after chemo, surgery and radiation. She's an 8 year survivor who had a very poor prognosis. Had 4 children at home(nursing her little boy, thought she had mastitis-only 42 years old) when she was diagnosed. At her 5th year of cancer free life, she went through reconstructive surgery like a trooper for personal reasons. She chases her 9 year old boy to all his activities and is watching her 3 girls journey through college. She told me last week when I talked to her about the side effects I had with Femara, that all of that was worth it for her to see her children grow up and lead a full life. I say all of this to encourage you to listen to your doctors and try to boot fear in the rear. Cancer is unforgiving and will take up residence in every receptor that is not closed for business. Take heart and care. Jo
    almost 6 years Flag
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      anonymous
      Learning About Breast Cancer

      Thanks for a great post Jo. Its very encouraging. I'm triple negative. No blockers for me. Tc jayme

      almost 6 years Flag
    • jc lin Profile
      anonymous
      Patient

      Thank you for the wonderful post. My days went by fast by watching my children play....I will be going through chemo while my 9 month old twins start crawling and walking, my 3 1/2 years old first Amy at preschool ...that will put a Hugh smile on...

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      Thank you for the wonderful post. My days went by fast by watching my children play....I will be going through chemo while my 9 month old twins start crawling and walking, my 3 1/2 years old first Amy at preschool ...that will put a Hugh smile on my face and I know I will fight this to see my children grow. Julia

      almost 6 years Flag
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      anonymous
      Survivor since 2012

      Wish I could more. Cyber hugs your way. :-D

      almost 6 years Flag
    • Cynthia Clingan Profile
      anonymous
      Learning About Breast Cancer

      I totally agree. I guess my attitude is different since my estrogen positive cancer was not "cured" after double mastectomy & 6 treatments of chemo & 3 years of tamoxifen (classified as a carcinogen). There are many ways to reduce estrogen in...

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      I totally agree. I guess my attitude is different since my estrogen positive cancer was not "cured" after double mastectomy & 6 treatments of chemo & 3 years of tamoxifen (classified as a carcinogen). There are many ways to reduce estrogen in the body naturally. There are many ways to build up our immune system & increase chances our cancer stays under control. Yes, I am treating my cancer as a chronic condition controlled by overdosing on nutrition. I feel better than I have EVER felt. I can't imagine ever allowing my body to be poisoned again. I have had too many friends dying from continued chemo treatments. Has anyone been healed from Pancreatic or colon cancer? Yes, but not by chemo. Check out: http://breastcancerconqueror.com/ & http://www.chrisbeatcancer.com/ There is a "secret society" of cancer thrivers out there in the world who are bravely telling their stories. This site has several: http://healingstrong.com/ Thank you Jo for being brave to realize that WE must take responsibility for our health.

      over 4 years Flag
    • Teresa C. Profile
      anonymous
      Learning About Breast Cancer

      Thank you

      over 3 years Flag
  • Diana Foster Payne Profile
    anonymous
    Stage 4 Patient
    I agree with the other ladies. I was diagnosed with stage 3C bc in may of last year. After much treatment...I am now on Tamoxifen. I have had very little side effects from it and think the benefits far outweigh the side effects. Please think twice before you use something unproven.
    almost 6 years Comment Flag
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    anonymous
    Learning About Breast Cancer
    Regarding my reading reference, Suzanne Somers, "The Sexy Years" - that book is mainly about menopause and bioidentical hormones. Although very informative about bioidenticals, read her book relating to cancer, "Knockout." Sincerely, L
    almost 6 years Comment Flag
  • Carrie  Mann Profile
    anonymes
    Étude du cancer du sein
    I would like to find something else to I'm sick of hearing the side effects out weight the consequence I am 44 yrs old I'm now fat weak with no and I mean no sex life I hate what I have become oh and yes there are many days I would just like to die ..... am I the only one who feels like this .I choose not to take antidepressants because they can. Also make u fatter
    over 2 years Flag
    • Thumb avatar default
      anonymous
      Survivor since 2012

      There are sister drugs, ask your oncologist. Its a brutal drug but always exercise caution with any decision you make.

      about 1 year Flag
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    I admire your desire to go the natural way but both of these compounds you are talking about are both HORMONES!!!! DO NOT TAKE THOSE... you would be adding fuel to any remaining cancer cells you have roaming around your body. I think it would be wonderful to add a combo of treatments.... including natural and standard medical. You have a golden opportunity to stave off a reoccurance with the known drugs available. I am in my 5th year of taking a hormone blocking drug and am thankful for it. Please reconsider and go for a combination of treatment options. Take care, Sharon
    almost 6 years Flag
    • Thumb avatar default
      anonymous
      Survivor since 2012

      That shows you how little you know about these hormones AND the doctors are equally ignorant. Before I started taking tamoxifen I found a hormone doc who took a snap shot of my hormones. It seems that my testosterone was way too high naturally...

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      That shows you how little you know about these hormones AND the doctors are equally ignorant. Before I started taking tamoxifen I found a hormone doc who took a snap shot of my hormones. It seems that my testosterone was way too high naturally and as a result, the excess testosterone was being converted to estrogen, so I had way too much estrogen in my body. His solution would be to balance my testosterone naturally in order to bring the estrogen down, makes sense to me. But nope the oncologists don't do that, and they should that should be their first line of defense, get the hormones under control naturally first then discuss tamoxifen. You need to do your homework.

      over 4 years Flag
  • Lysa Allison Profile
    anonymous
    Learning About Breast Cancer
    I am taking Tamoxifen and agree that the benefits outweigh the risks. Many natural treatments are not regulated by the FDA so they can make all kinds of efficacy claims that are not proven through clinical trials. Best of luck to you!
    almost 6 years Comment Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    check out DIM
    almost 6 years Flag
    • Thumb avatar default
      anonymous
      Survivor since 2012

      Are you taking DIM as a breast cancer patient? Jo

      almost 6 years Flag
    • nancy  wilcox Profile
      anonimamente
      Aprendendo sobre o câncer de mama

      no I am not. My gynie wants me to take it for 2 months to see if it helps with discomfort in my right breast. I had a Mammo x2, then US and the MRI --said it was probably benign ,however that ready need

      almost 6 years Flag
    • nancy  wilcox Profile
      anonymous
      Learning About Breast Cancer

      no I am not. My gynie wants me to take it for 2 months to see if it helps with discomfort in my right breast. I had a Mammo x2, then US and the MRI --said it was probably benign ,however that ready nee

      almost 6 years Flag
    • nancy  wilcox Profile
      anonimamente
      Aprendendo sobre o câncer de mama

      exams need to be done - so go back in 6 mths. So far I think it is a little better, but there is still some discomfort.

      almost 6 years Flag
    • nancy  wilcox Profile
      anonimamente
      Aprendendo sobre o câncer de mama

      I definitely think that if I was diagnosed with breast cancer that I would definitely seek medical attention and not just turn to alternative or supplemental medication- but this D I M is relatively new and that's why my gynecologist wanted me to...

      mais

      I definitely think that if I was diagnosed with breast cancer that I would definitely seek medical attention and not just turn to alternative or supplemental medication- but this D I M is relatively new and that's why my gynecologist wanted me to try it.

      almost 6 years Flag
    • Thumb avatar default
      anonimamente
      Sobrevivente desde 2012

      I did some reading on it last night. It talked about metabolizing the estrogen. For me, I don't want to metabolize it, I just want it gone. Cancer Center of America seems to be using it in trials for advanced and late statge Triple Neg. If I...

      mais

      I did some reading on it last night. It talked about metabolizing the estrogen. For me, I don't want to metabolize it, I just want it gone. Cancer Center of America seems to be using it in trials for advanced and late statge Triple Neg. If I didn't have anything to loose, I might try it along with conventional treatment. MD Anderson talks about it in studies but inconclusive on benefits. Something to follow though. Jo

      almost 6 years Flag
    • nancy  wilcox Profile
      anonymous
      Learning About Breast Cancer

      thanks Jo for the research! I am hoping that this helps and will let you know of my progress etc. Take care and I sure hope the best for all the women ( and men) with bc.

      almost 6 years Flag
  • Thumb avatar default
    anonymous
    Survivor since 2012
    I'm taking Tamoxifen, going on 1 year now and other than plummeting depression during PMS, I was coping. Hot flashes weren't a big deal, just this depression was killer. Well that's changed now, and I have depression all the time, hopelessness, despair, I can't function most of the month, I feel like my ovaries are going to explode. Yes I could go on anti depressants but its all hormonal, not sure anti depressants are a wise choice, oncologist sure didn't suggest it. So instead of saying to each other suck it up and take your Tamoxifen, side effects are worth it, we need to start saying, what exactly are we taking here? Maybe this drug is on the right track but not quite perfected yet. I wouldn't be surprised if they stop administering this drug to women in 10-15 years. We women are just stupid sometimes, and we put up and shut up without seriously questioning what we're taking and asking the question, is this drug ready? I don't think so, I think they side effects are so severe that they need to go back to the lab and get this one under control. I'm leaning myself towards balancing my hormones naturally because as it stands, my hormone doc said my testosterone was too high, and the excess was being converted to estrogen by my body. I'm going to say it, we women are stupid, and we suck it up instead of demanding something better because we convince ourselves we'll die otherwise.
    over 4 years Flag
    • Amy Diaz Profile
      anonymous
      Learning About Breast Cancer

      Have you found a suitable alternative to Tamoxifen? I've been on it since July 2016, and my experience is very similar to yours. I'm feeling hopeless from all the side effects. I was a very positive person my whole life and throughout my entire...

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      Have you found a suitable alternative to Tamoxifen? I've been on it since July 2016, and my experience is very similar to yours. I'm feeling hopeless from all the side effects. I was a very positive person my whole life and throughout my entire treatment. Since starting Tamoxifen I can't seem to function. My moods are terrible and I feel terribly down most days. It isn't any way of living a happy life.

      about 1 year Flag
    • Thumb avatar default
      匿名
      乳癌幸存者从 2012

      There are apparently sister drugs to Tamoxifen that do not carry the same side effects, so please speak with your oncologist and insist on exploring the options. I myself was not given this information, mostly because I didn't know they existed. ...

      更多

      There are apparently sister drugs to Tamoxifen that do not carry the same side effects, so please speak with your oncologist and insist on exploring the options. I myself was not given this information, mostly because I didn't know they existed. Even though I pleaded with my oncologist, she failed to help me with my side effects, and simply chalked it up to my 'age' and hormones, which was crass to say the least. I stopped seeing that oncologist and have left her a very bad review on ratemd.com. I then discontinued using Tamoxifen a mere 11 months after starting it in year 1 of my recovery. I am coming up to year 5 this year, and grateful I discontinued use but I highly recommend everyone not follow my approach but their own, and do what feels right for you, and please speak with your oncologist.

      about 1 year Flag
  • Carrie  Mann Profile
    anonymous
    Learning About Breast Cancer
    I wish I knew of one
    over 2 years Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    I'm with JC on
    almost 6 years Comment Flag
  • Christine Price Profile
    anonymous
    Learning About Breast Cancer
    Me too, I need an estr o gen blocker, which is more natural, Letrozole was not good for my health!
    11 months Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    I'm with J C on this one. I avoid every food that is close to estrogen. I don't want cancer any reason to come back
    almost 6 years Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    I'm with J C on this one. I avoid every food that is close to estrogen. I don't want cancer any reason to come back.
    almost 6 years Comment Flag
  • jc lin Profile
    anonymous
    Patient
    I am estrogen and progesterone positive and have been on tamoxifen for few month. I am taking tamoxifen and I am also avoid foods producing estrogen, you can get list of food contain estrogen from the Internet. Yam family should be avoid... Good luck.
    almost 6 years Comment Flag

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