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Doctor thinking chemo is not the answer.. Why? He wants me to have a lumpectomy and 6 weeks of radiation... Should I seek another opinion?

Carla Victor-rawson Profile
Asked by

anonymous

Learning About Breast Cancer over 7 years
 
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    If you are not comfortable go for another opinion. Invasive lobular is a sneeky little devil. I went into surgery stage 1 a lumpectomy and radiation and I would be fine. The first surgery was not enough so the second surgery ended up with clear margins but it was 7.3cm cancer mass. All of a sudden I was stage 3, 6 rounds of chemo, 35 radiation treatments, and 5 years of tamoxifen. Hang in there until you are comfortable. Let us know how it goes. God Bless and I hope your treatment goes well.
    over 7 years Comment Flag
  • Evelyn Heilbrunn Profile
    anonymous
    Survivor since 2012
    Hi again Carla, more from me. Technical problems. Other thoughts: does the doctor know the approximate size of your tumor? All of these issues factor in to why he/she has recommended this course of treatment. Generally, the more aggressive the type of cancer, the larger the tumor, any lymph node involvement, and/or any invasion of the cells into the breast tissue lean toward chemo. It's quite possible you don't have any of these. I've had breast cancer twice. The first time I was stage 1B and I had a mastectomy (my choice -- lumpectomy was recommended) and radiation, only. But for your peace of mind, once you get your own doctor to answer your questions and you still have some doubts, absolutely get a second opinion. The more sets of eyes that look at your situation the more informed you are. Good luck!
    over 7 years Comment Flag
  • Ali S Profile
    anonymous
    Survivor since 2011
    You're in charge of this...don't do anything until you have all the answers and feel comfortable with treatment plan. If another doc says no chemo, I'd say it's prob ok and
    over 7 years Comment Flag
  • Ali S Profile
    anonymous
    Survivor since 2011
    Sorry....your tumor might be small, or still in the duct. If its in the duct, chemo is not always needed. But definitely get a 2nd opinion. Best of luck
    over 7 years Comment Flag
  • Evelyn Heilbrunn Profile
    anonymous
    Survivor since 2012
    Hi Carla, you don't say what type of breast cancer you have. Is it DCIS, invasive ductal, lobular, or something else? Has your doctor told you? My suggestion is that you go see him/her as soon as possible with a list of questions, prior to any surgery or treatment. I'm always in favor of a second opinion, too. In my case a second opinion probably saved my life. Here are some possible questions: What type of cancer do you have? Were they able to stage it from the biopsy? why is he recommending lumpectomy and rads instead of something more aggressive? Have they done an Oncotype of your cancer cells? This is an indicator of the chances of recurrence. What is your age? Is there a history of breast cancer in your family? How does any of that affect your doctor's treatment recommendations?
    over 7 years Flag
    • Carla Victor-rawson Profile
      anonymous
      Learning About Breast Cancer

      I have stage 1 invasive lobular cancer 0.3 mm ( its starting to invade the fatty tissue) but they ( the team ) say its so tiny.... NOT to me!

      over 7 years Flag
    • Carla Victor-rawson Profile
      anonymous
      Learning About Breast Cancer

      This is really freaking me out!

      over 7 years Flag
    • Evelyn Heilbrunn Profile
      anonymous
      Survivor since 2012

      Carla, I'm so sorry it's taken me a month to get back to you. I just discovered that asll of my Notifications have been going to my spam folder.
      how are you doing? Stage 1 is good. It's the least serious of the 4 stages of cancer. Invasive...

      more

      Carla, I'm so sorry it's taken me a month to get back to you. I just discovered that asll of my Notifications have been going to my spam folder.
      how are you doing? Stage 1 is good. It's the least serious of the 4 stages of cancer. Invasive lobular can be very aggressive, and you're so lucky it was found early.
      I'd really love to hear from you and what's happened with regard to diagnosis and treatment.
      All the best!

      over 7 years Flag
    • Carla Victor-rawson Profile
      anonymous
      Learning About Breast Cancer

      Thank u for getting back to me:-) I have since went for a 2nd opinion and the team seemed to catch things that weren't even explained to me. The Onco and his team are having the slides sent to him and will have new pathology done ... They said...

      more

      Thank u for getting back to me:-) I have since went for a 2nd opinion and the team seemed to catch things that weren't even explained to me. The Onco and his team are having the slides sent to him and will have new pathology done ... They said there was a micromet in the node turns it was a macromet 0.6 cm , yeah there seemed to be a few things they picked up on:-( the Radiologist is so odd and totally weird that I actually adore her... She's so passionate about what she does:-) I'm going back this Wednesday for treatment plan..he says everything hinges on the the path slide and my FSH and LH for therapy... Very confused . Are the menopause and post menopause numbers different? The labs said My FSH were 23.3 and LH was 23.1 which either means I'm a fertile 23 year old ( I'm middle age ) or I'm in trouble... No not pregnant. This is why I asked about my numbers . Was told that if I was in menopause my numbers would be 130-140 what about post menopause ? I never thought I would pray to be post menopausal... Thank you for answering me back:-) everyone here has been so helpful! BTW they restaged me at IIa ( preferred being the Ia better)

      over 7 years Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    You have the treatment that gives you the most peace of mind. I didn't need chemo but still chose a bilateral mastectomy and because I did I didn't have to have rads either. Your doctor shouldn't really be telling you what he wants you to have he should be giving all the options and letting you make the decision that is right for you.
    over 7 years Comment Flag
  • Thumb avatar default
    anonymous
    Survivor since 2012
    It sounds like you don't have enough information. What type of cancer, stage, grade do you have? Have you had a biopsy? The OncotypeDX test is performed on the tumor to determine recurrence rates. The biopsy would determine grade. Have your doctor sit down and walk you through the process. I don't think you can stage until the lumpectomy or mastectomy is done . I would begin again with my current doctor to make sure I understood the comparison if I sought a second opinion. Take a little time : a day or two can't hurt you: it can only help you make an informed decision that's right for you as a the special individual you are. Hang in there. Jo
    over 7 years Flag
    • Carla Victor-rawson Profile
      anonymous
      Learning About Breast Cancer

      Thanks Jo,
      I had a stereotactic biopsy last week and it was stage 1 ... Dr said it was very tiny but it was ILC but I intend to call the surgeon tomorrow and the Breast Cancer Center Navigator..I should probably call my GP as well...its just he...

      more

      Thanks Jo,
      I had a stereotactic biopsy last week and it was stage 1 ... Dr said it was very tiny but it was ILC but I intend to call the surgeon tomorrow and the Breast Cancer Center Navigator..I should probably call my GP as well...its just he was confident he could remove everything and the radiation could get any other cell... Feeling so overwhelmed!!!! I dont want to wait to long... Maybe I should just have the masectomy!

      over 7 years Flag
    • L Parker Profile
      anonymous
      Learning About Breast Cancer

      I had the same treatment as your doctor recommends. I am only one year out but cautious about any future breast cancer showing up. I felt very comfortable with my doc's recommendation.

      over 7 years Flag
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    Carla, If you do not feel comfortable with the treatment plan, please get another opinion. You have to feel good with the decisions you make and it is perfectly understandable to get more information. I see for the topic it is "invasive lobular cancer" is that the type you have been diagnosed with? Have they staged it or given you any other information about it? Just as a side bar.... my brother-in-law was diagnosed with invasive ductal carcinoma around Christmas time. He had a mastectomy and also had an OncoDX test which is able to somewhat predict if the cancer will reoccur. The scale is from 0 to 100. His score was "0"... so his doctor recommended nothing else but the mastectomy. I had invasive ductal cancer 2b and had a mastectomy and only 4 rounds of AC chemo. 5 years of hormone blocking drug. All of my pals had 4 rounds of AC plus 5 to 6 rounds of taxol. My oncologist said the taxol would not add much to my overall chances maybe only 1% and he said that was not enough benefit to put me through more chemo. that would definitely be more detrimental. Your oncologist may have good reason to not put you through chemotherapy. You can certainly ask why and see what his reasoning is. If you still feel uneasy about it.... get a second opinion. Take care, Sharon
    over 7 years Flag
    • Carla Victor-rawson Profile
      anonymous
      Learning About Breast Cancer

      I'm stage 1 ... He said I caught it very early... The biopsy I had was stereotactic....

      over 7 years Flag

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