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Has anyone had invasive lobular cancer metastasize despite mastectomy and chemo? Stage 3 and loss of lymph nodes are involved. Very scary.

jan bursky Profile
Asked by

anonymous

Learning About Breast Cancer over 6 years
 
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    10 years ago, my best friend had stage 4 Invasive Lobular Breast Cancer. She had 4 rounds of AC before a mastectomy and complete axillary removal of nodes. 17 out of 21 nodes were positive. She was scheduled for different chemo treatments but would only allow radiation. After the radiation, she refused any other treatment. She lived for 5 years until it metastisized to her bone marrow. She passed away just as I found out I had breast cancer. She said she'd lived long enough and died at age 64. It still upsets me that she gave up the fight before she had even begun. It was her life and her decision but her loss left a big hole in the hearts of many people. Sharon
    over 6 years Comment Flag
  • Patricia Stoop Profile
    anonymous
    Learning About Breast Cancer
    Oh prayers for you. Very scary. I had liver masses too and found meditation a great help!
    over 6 years Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    I am stage 3 Invasive Lobular. I had a lumpectomy, chemo, radiation, and now on tomaxifen. This is what we Invasive people fear the most. I am soo sorry. I had a liver scare but the scan said no camcer this time. Lots of good research going on God Bless my prayers warriors have your back. Please stay in touch.
    over 6 years Flag
    • sharon s Profile
      anonymous
      Learning About Breast Cancer

      Marianne how are you these days? Fourth round of AC this week and I'm looking at topics on this support site. have you moved on or moving through health hoops? Wishing you NED days

      over 5 years Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I was diagnoses with stage three lobular cancer, thirteen lymph nodes positive and pet scan showed no mestastises to other parts of the body. I start chemo this coming Monday. I had a left breast skin saving mastectomy and have already started. Reconstruction. As soon as the surgeon got thru the plastic surgeon stepped right in and did an expander placement. You will get thru this!!! I have really just began the journey myself but I'm convinced I will make it. Please don't let being scared and fear get the best of you. Stay positive and believe that the best will happen.:-))
    over 6 years Comment Flag
  • jan bursky Profile
    anonymous
    Learning About Breast Cancer
    Thanks so much for your feedback. I am 1year out of treatment and on tamoxifen for 5years. Had deep procedure on right side and there wasn't enough tissue for the other side so I now have a expander but these fears of metasis keep creeping in.
    over 6 years Comment Flag

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