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Hello everyone have not been able to login due to phone issues. Anyway today is my birthday and April made 5 years I’m Breast cancer free. I’m just wondering if I should stop taking the armidex. My doctor is giving me the choice

paula gittens Profile
Asked by

anonymous

Survivor since 2013 3 months
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  • Betti A Profile
    anonymous
    Survivor since 2013
    My 5th year was up on 1July on Letrozole. I will be asking my doctor about it in a couple of weeks. If they can give me a good reason to continue another 5 years I will if not I just may go off of it. My PCP has already told me if I'm taken off it he will discontinue the med. I take for Osteopenia, he's already cut the dosage in half since my bone mass has improved.
    3 months Flag
    • paula gittens Profile
      anonymous
      Survivor since 2013

      Betti what did your doc said

      about 2 months Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      She recommended a Breast Cancer Index test; it shows if I can come off of it or go another 5 years. I fit the criteria; early stage (1a) and lymph node negative but my tumor was pretty aggressive so this test will help. They use a piece of the...

      more

      She recommended a Breast Cancer Index test; it shows if I can come off of it or go another 5 years. I fit the criteria; early stage (1a) and lymph node negative but my tumor was pretty aggressive so this test will help. They use a piece of the original tumor (thankfully there is still some since I did the OncoType DX test 5 years ago to see if I needed chemo.) I'll keep you posted and good luck with going off of it.

      about 2 months Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      The test results indicated a very low risk of recurrence (5.7%) and 5 more years would not benefit me so I was taken off the Letrozole.

      2 days Flag
    • paula gittens Profile
      anonymous
      Survivor since 2013

      Oh thanks for following up betti. I’m gonna come off by the end of the year

      2 days Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      Paula, ask your doctor about the Breast Cancer Index test. As my ARNP said it's no guarantee it won't recur but I like my odds against it doing that are in my favor.

      1 day Flag
    • paula gittens Profile
      anonymous
      Survivor since 2013

      I will on the next appt. thanks betti. I will let you know. Since I change my phone I’m getting a lot of difficulty with this site.

      1 day Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      I haven't changed my phone as I do this on my PC but I've had a lot of issues with it lately also.

      1 day Flag
  • Sue Williams Profile
    anonymous
    stage_1 Patient
    Are you having any bad side effects from it?
    about 2 months Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      I haven't had any real side effects from it. I had Osteopenia before my BC diagnosis and it got somewhat worse with the Letrozole but has improved the last couple of years with taking a generic Fosamax.

      about 2 months Flag
    • paula gittens Profile
      anonymous
      Survivor since 2013

      I’m gonna come off in September which will be 5 years of taking it

      about 2 months Flag

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