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Triple negative cancer reoccurrence after 5years

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anonymous

Survivor since 2012 4 months
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  • Misty Powers Profile
    anonymous
    Learning About Breast Cancer
    I was also diagnosed as having a triple negative cancer and because of that, I had a bilateral mastectomy in March. My lymph nodes were clear, was ever so thankful. I wanted to eliminate as much of the risk of reoccurrence as I could. My cancer was not estrogen fed but because I found out thru genetic testing that I'm also a BRCA1 carrier, I will also be having a hysterectomy in the near future. Trying to be as proactive as possible.
    4 months Flag
    • Tisha Zirbes  Profile
      anonymous
      Learning About Breast Cancer

      I too am BRCA1 and triple negative. I opted for a double mastectomy and thank God I did. I went from stage 0 DCIS to them finding another area with a 6 mm, grade 3, metastatic tumor that was not showing anywhere. It was a hidden blessing. 3 more...

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      I too am BRCA1 and triple negative. I opted for a double mastectomy and thank God I did. I went from stage 0 DCIS to them finding another area with a 6 mm, grade 3, metastatic tumor that was not showing anywhere. It was a hidden blessing. 3 more AC treatments to go and then I will have my ovaries removed since I've already had a hysterectomy. Good luck to you. We will get through this.

      4 months Flag
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    anonymous
    Learning About Breast Cancer
    You mean your cancer came back after 5 yrs? I'm also TNBC and I'm 1 year out of chemo.
    4 months Flag
    • Barbara Klingele Profile
      anonymous
      Survivor since 2012

      NO. I'm concerned and my question was IF anyone has been faced with this .

      4 months Flag
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I have 2 friends with TNBC. One lady her cancer came back after 3 yrs to her brain and back. And another her cancer came by at 5 yrs to her brain.

      4 months Flag
    • Tisha Zirbes  Profile
      anonymous
      Learning About Breast Cancer

      I met a lady at MD Anderson and she had a reoccurrence after 3 years in her brain also. Reading up on TNBC the brain has the highest reoccurrence rate. This scares me. I hope I don't get it again. That would stink.

      4 months Flag
  • Tisha Zirbes  Profile
    anonymous
    Learning About Breast Cancer
    I am triple negative and have been reading up a lot on the subject. Triple negative does seem to have a higher chance of reoccurrence with in 5 years. I have also read that it is highly usual to recover in the brain or spine. I am going to try a diet that is suppose to help lessen your chance of reoccurrence. Unfortunately, I'll have to give up some of my favorite foods, such as; peanut butter, shellfish, and cheese. Our chance diminishes after 5 years.
    4 months Flag
    • Misty Powers Profile
      anonymous
      Learning About Breast Cancer

      Tisha- Can I ask what kind of cancer yours was? Mine was an extremely rare kind, less than 5% of all breast cancers out there, called Invasive Medullary Carcinoma. This kind is not known to metastasize anywhere else other than the breast tissue,...

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      Tisha- Can I ask what kind of cancer yours was? Mine was an extremely rare kind, less than 5% of all breast cancers out there, called Invasive Medullary Carcinoma. This kind is not known to metastasize anywhere else other than the breast tissue, but it doesn't mean it can't. Two rounds of chemo left. Ready to be done.

      3 months Flag
    • Misty Powers Profile
      anonymous
      Learning About Breast Cancer

      What kind of diet are you going on?

      3 months Flag
    • Tisha Zirbes  Profile
      anonymous
      Learning About Breast Cancer

      Invasive ductal carcinoma. Grade 3. I have 3 rounds of AC chemo left. I've read up that a high alkaline diet with little red meat is good to keep from reoccurrence. Good luck!

      3 months Flag

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