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Can anyone provide links to research statistics about radiation vs no radiation for (Early-stage, Grade 3, HER2+, clear margins, no nodal involvement) invasive BC please. Lumpectomy completed, Chemo underway. Want to base decision on statistics/facts.

Jan Watt Profile
Asked by

anonymous

Learning About Breast Cancer about 3 years
 
  • Lou Cam Profile
    anonymous
    Survivor since 2013
    The standard of care for lumpectomy with invasive breast cancer is to have radiation. From radiologyinfo.org on the subject of breast cancer treatment: Nearly all studies show risk of relapse in the breast is much higher when radiation is not used (20% to 40 #) than when it is (5-10%).
    about 3 years Flag
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Thank you, I didn't realize it was that high.
      Take care, Sharon

      about 3 years Flag
  • Sharon Danielson Profile
    anonymous
    Survivor since 2007
    I think your oncologist could provide you with suggestions for reading the latest on radiation vs. no radiation. I receive a monthly newsletter from Johns Hopkins called "Artemis". It gives very timely information about recent findings and discoveries regarding breast cancer. It has been a huge help to me. You could sign up for it and probably go through archives. I went through treatment 9 years ago. I was given the choice of lumpectomy with radiation and chemo. or mastectomy and chemo but I did not have to have radiation. I chose the latter. The deal breaker in your diagnosis is the grade 3 and Her2+. That indicates it was a particularly aggressive bunch of cells. The purpose of radiation is a clean-up of any cells that may have escaped the main tumor. You can't always rely that chemo will do a local completely clean-up of cells that may have been left behind. Your doctor can also give you statistics between adjunctive treatment of chemo and radiation vs. chemo and no radiation. The latest finding is lumpectomy with radiation/chemo is the gold standard to hopefully ensure staving off a recurrence. I can assure you, having to go through breast cancer brings about a case of PTSD. We all live with the fear of having this happen a second time. Every appointment you have afterward is always accompanied with the worry, they will "Find something". Following the prescribed treatment will buy you a bit of peach of mind later. You are assured you have done every single thing you can to prevent a recurrence from happening in the future. I think it is admirable to educate yourself regarding your treatment BUT to try to second guess your Oncologist and refuse it because you read an article either in print or on the internet isn't the best decision. If you refuse the treatment, I can bet you are buying yourself future worry and self-doubt....."Did I make the right decision in choosing to refuse radiation?" I am no doctor, but belong to this group and an even larger group of women who have had breast cancer (Pink Sisters on Facebook). I have watched the anguish of woman who have been through treatment and are now dealing with a recurrence. It's tough. My opinions are just that.... and 9 years of observations of others. Good luck in making your decision on treatment. Nothing is easy about this disease and it is incredibly sneaky and surprisingly tough opponent. Take care, Sharon
    about 3 years Flag
    • Jan Watt Profile
      anonymous
      Learning About Breast Cancer

      Hello Sharon, Thank you for your information and comments - always welcome from someone with more history with BC than myself. Persisted with getting my 'risk' % today and received it. Onc. just punched in the details of my BC and it popped out...

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      Hello Sharon, Thank you for your information and comments - always welcome from someone with more history with BC than myself. Persisted with getting my 'risk' % today and received it. Onc. just punched in the details of my BC and it popped out percentage rates over 5 and 10 years. mind you it is just a guestimate of course. She couldn't provide any info on radiation vs no radiation survival % but I have since found some today thanks to comments providing links on this side. Lots of info on Hypofractionated RT (HF-WBI) being a shorter course of radiation with higher dosages. Stats suggest no difference in side effects and just as effective as CF-WBI (Conventional RT). So think I will go that direction - get it done with quicker and get back to life ASAP. Thank you for the comments about regretting not doing all I can... that does ring very true - regret is a terrible thing :-) Many thanks. Jan

      about 3 years Flag
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      My mother is elderly and had a small DCIS. She had radiation twice a day for 5 days. I don't remember the name of that radiation .

      about 3 years Flag
  • Thumb avatar default
    anonymous
    Patient
    I would always go with more treatment . It's hard to make a good decision easy to make a dumb one. I Would hate to have any regrets. You have to know you threw the book at breast cancer. I made the decision to have it and it's not bad you can do it . Glad I did it in the long run. I have done all that I can. Yeah it's annoying going everyday but better than the other.
    about 3 years Flag
    • Jan Watt Profile
      anonymous
      Learning About Breast Cancer

      Thank you for your feedback. Much appreciated.
      Jan

      about 3 years Flag
  • Betti A Profile
    anonymous
    Survivor since 2013
    My doctor provided me lots of info. on what was recommended and I don't recall stats as such except if chemo. was needed. Everyone is different as is their cancer so what may be needed by one isn't needed by another.
    about 3 years Flag
    • Jan Watt Profile
      anonymous
      Learning About Breast Cancer

      Thank you for your comments Betti, I hope all is well with you.
      Jan

      about 3 years Flag
    • Betti A Profile
      anonymous
      Survivor since 2013

      I am doing well; I had a unilateral mastectomy, 4 cycles of chemo with a blood boosting shot the day after each one, 28 radiation treatments, and am currently on a hormone blocker for 5 years and I'm almost done with 3 years of it. I still see my...

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      I am doing well; I had a unilateral mastectomy, 4 cycles of chemo with a blood boosting shot the day after each one, 28 radiation treatments, and am currently on a hormone blocker for 5 years and I'm almost done with 3 years of it. I still see my Onc. every 6 months and my RT once a year (for now anyway).

      about 3 years Flag
    • Jan Watt Profile
      anonymous
      Learning About Breast Cancer

      So glad to hear you are doing well Betti :-)

      about 3 years Flag
  • Gillian Ashworth Profile
    anonymous
    Learning About Breast Cancer
    Hi Jan, I had the same cancer, HER2 , grade 3, stage 1. I opted for a double mastectomy with reconstruction (felt right for me), chemo and 5 years of tamoxifen (2 years in). Had I opted for a lumpectomy, my Onc told me they would have 100% wanted to radiate because it's a sneaky, aggressive cancer. We're faced with all of these extremely difficult decisions, with no guarantees. It's a tough process. I followed what felt right for me. I was terrified of chemo and almost opted out, but I couldn't shake the feeling that I needed it. Stay true to your own intuition, that's the best piece of advice that was given to me. Sending a big hug your way!
    about 3 years Flag
    • Jan Watt Profile
      anonymous
      Learning About Breast Cancer

      Thank you Gillian - you have put it well - in not shaking the feeling.... that is how I am feeling... Don't want to but feel I should... must learn to listen to inner voices sometimes. :-) Think I will go hard and fast and get it over with....

      more

      Thank you Gillian - you have put it well - in not shaking the feeling.... that is how I am feeling... Don't want to but feel I should... must learn to listen to inner voices sometimes. :-) Think I will go hard and fast and get it over with. Have started networking for work options today and feel so much more human knowing that there is an end in sight.

      about 3 years Flag
  • anna kaufman Profile
    anonymous
    Learning About Breast Cancer
    You can do it. I was fearful of radiation but it ended up being okay. I had a lumpectomy for my stage 1, HER2neg cancer. With lumpectomies, radiation is always recommended in order to cut down the chance of reoccurrence. I am glad I had it.
    about 3 years Comment Flag

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