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  • Stacey Blumberg Profile

    I have cording from my axillary LN incision down my forearm, and it is creating a lot of discomfort. I start PT today. Has anyone had this and do you know how long it typically takes to resolve?

    Asked by anonymous

    Learning About Breast Cancer
    16 days 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I had some mild cording in my axilla post mastectomy and lymph node dissection. I was sent to an OT who specializes in such things. She had me scheduled twice a week for 5 weeks and did some exercises and massaging of the area and showed me what to do at home. I ended up only needing 3- 4...

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      I had some mild cording in my axilla post mastectomy and lymph node dissection. I was sent to an OT who specializes in such things. She had me scheduled twice a week for 5 weeks and did some exercises and massaging of the area and showed me what to do at home. I ended up only needing 3- 4 weeks and haven't had any issues since and mine was only in my axilla not down my arm. Not all PTs know what is needed and that's why I was sent to an OT.

      1 comment
    • Jody F. Profile
      anonymous
      stage_3a Patient

      I had cording . Saw PT that specialized in it. She broke most of it up in one visit, but I still felt it week later and went back. Gone after 2 sessions. She also taught me how to do lymph drainage.

      1 comment
  • Thumb avatar default

    I was just dianosed with ILC that has spread to several lymp nodes. My MD is now wanting me to have chemo first prior to surgery. I am feeling so confused and frustrated right now. Anyone else out there that has gone through somethign similar?

    Asked by anonymous

    Learning About Breast Cancer
    19 days 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      My Oncologist wanted me to have some chemo. prior to surgery but the Surgeon nixed it. They usually order it (I think) to try and shrink the tumor so perhaps a lumpectomy can be done and not a mastectomy (at least that's my understanding). If you're unsure, seek another opinion and see what...

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      My Oncologist wanted me to have some chemo. prior to surgery but the Surgeon nixed it. They usually order it (I think) to try and shrink the tumor so perhaps a lumpectomy can be done and not a mastectomy (at least that's my understanding). If you're unsure, seek another opinion and see what someone else recommends.

      Comment
    • jeanette martin Profile
      anonymous
      Learning About Breast Cancer

      I have Idc stage 3. My doctor wanted my cancer hit with 6 rounds of chemo first. The cancer was large and into my chest muscles, plus a number of nodes were involved. I knew I would have a bilateral mastectomy when the chemo was done. The tumor shrunk so much it could no longer be felt, and it...

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      I have Idc stage 3. My doctor wanted my cancer hit with 6 rounds of chemo first. The cancer was large and into my chest muscles, plus a number of nodes were involved. I knew I would have a bilateral mastectomy when the chemo was done. The tumor shrunk so much it could no longer be felt, and it started out bigger than a golf ball. After the chemo I had the mastectomy, which the doctors were pleased with. There were a few small areas that were then included in the 6 weeks of radiation I had. If I had my surgery first, they would have done much more deep cutting, with poorer results. A second opinion never hurts, but these cancer teams are on the ball and seem to know their business. Good luck over the next year, it will be difficult, but you can do it. Surround yourself by a possitive support team.

      Comment
  • Thumb avatar default

    Has anyone used toremifene for hormone receptor – positive breast cancer? I was taking tamoxifen and my doctor switched me. Just wondering if anybody can provide some feedback? Thanks!!

    Asked by anonymous

    Learning About Breast Cancer
    18 days 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      It must be something new as I've never heard of it and I'm not a doctor. Tamoxifen is generally given to women who haven't gone through menopause. I'd ask my doctor why the switch.

      Comment
    • Trisha Muller Quinn Profile
      anonymous
      Survivor since 2014

      I tried a couple of hormone stoping meds !!! I finally found one that suited me and my body .
      Don't be afraid to try something new ...
      not all meds suits all types of conditions and bodies !!
      Trust your doctor. Don't be afraid to ask questions of them ..
      it's your body and you have the...

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      I tried a couple of hormone stoping meds !!! I finally found one that suited me and my body .
      Don't be afraid to try something new ...
      not all meds suits all types of conditions and bodies !!
      Trust your doctor. Don't be afraid to ask questions of them ..
      it's your body and you have the finally say , about what meds you take .... good luck 🌷

      Comment
  • Latasha Love Profile

    My cycle stop and now since I started taxol on my third treatment my cycle return and it's heavy! Is this normal?

    Asked by anonymous

    Learning About Breast Cancer
    21 days 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      You should discuss it with your doctor(s) as other things may need to be checked.

      Comment
  • Donabel Dellosa Profile

    Hi anyone knows if it safe to use hair color for breast cancer patients... she is still on herceptin...

    Asked by anonymous

    Learning About Breast Cancer
    22 days 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      That sounds like something she needs to ask her doctor. I remember when I went to a place for my first hair trim I asked her to wax my face also. She was a little leery since I was still doing rads. but my doctor saw no problem with it.

      Comment
  • tanya clamon Profile

    Has anyone had DIEP flap reconstruction? I'm afraid to do it I hear and read so much about infection and recovery being so bad. Please help. I have only two choice the flap or no reconstruction.

    Asked by anonymous

    Learning About Breast Cancer
    22 days 2 answers
    • Mary G Profile
      anonymous
      Survivor since 2013

      Hi Tanya, I had a combination of the TRAM and the DIEP. I had a single mastectomy on the left side in the Fall of 2013, breast was reconstructed in Fall of 2014. I was a bit nervous about the process as well but felt very confident with my plastic surgeon. I had a fairly easy time with the...

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      Hi Tanya, I had a combination of the TRAM and the DIEP. I had a single mastectomy on the left side in the Fall of 2013, breast was reconstructed in Fall of 2014. I was a bit nervous about the process as well but felt very confident with my plastic surgeon. I had a fairly easy time with the procedure. It's not easy but you can do it. My surgery was on Monday am and by Wednesday afternoon I was asking for monitors and such to be removed and decreased pain meds to only oral. I was ready to go home the next day but my surgeon made me wait an extra day. Did you have drains with any prior surgery...that is an uncomfortable part of the process as you go home with those. The pain and discomfort was manageable and I was very happy with the results. I had only one breast done and the "healthy" breast was lifted to match about 8 months later. I am 2 1/2 years out from my reconstruction and can say that it was a good decision for me but every journey is different. Educate your self on the procedure, ask as many questions you can about your concerns and get a second opinion if you think it might help. Whatever you decide will be best for you. Best wishes for a calm and peaceful healing. Mary

      Comment
    • Dee Eppard Profile
      anonymous
      Learning About Breast Cancer

      a friend of mine had it done was painful but she was really happy with the breast but one possible side effect is almost like a bulging in the abdomen almost like you think you would have a hernia that's the only thing she was bothered by. I had the latissimus dorsi flap where they take the skin...

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      a friend of mine had it done was painful but she was really happy with the breast but one possible side effect is almost like a bulging in the abdomen almost like you think you would have a hernia that's the only thing she was bothered by. I had the latissimus dorsi flap where they take the skin and tissue and muscle from your back and move it around to the front, that was my only choice I didn't want to be cut from hip to hip with the diep flap.

      Comment
  • Christine Nichols Profile

    The oncologist says it is "looking like stage 2", so do they ever find, after the CT and MRi that it is a more advanced stage?

    Asked by anonymous

    stage_2a Patient
    22 days 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      As far as I know and I'm not a doctor the stage can only be determined by a Pathologist but there are some factors that may be leading him to say "stage 2". I recall the size of the area being one. I had an area they staged as a 3 and a second area was staged 2 but my Oncologist had the...

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      As far as I know and I'm not a doctor the stage can only be determined by a Pathologist but there are some factors that may be leading him to say "stage 2". I recall the size of the area being one. I had an area they staged as a 3 and a second area was staged 2 but my Oncologist had the Pathologist look at the 2nd area again and it was then staged a 1. There are some excellent videos on this site that has one on staging.

      Comment
    • Christine Nichols Profile
      anonymous
      stage_2a Patient

      She was reading the pathology report for the 1st biopsy. Though I cried still, I had some relief because I was thinking the worse.

      Comment
  • Thumb avatar default

    I was diagnosed with invasive ductal carcinoma. Surgery to clear margins came back clear of invasive cancer but says the margins are positive for dcis. The original margins didn't have dcis. I am confused. Anyone ever hear of this? Now what?

    Asked by anonymous

    Learning About Breast Cancer
    23 days 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I had 2 areas right next to each other that when 1 was biopsied showed IDC and I was watching the U/S monitor and he actually captured a small area with one of his passes of the other area that showed DCIS. On surgical specimen after my mastectomy it actually showed a 2nd area of IDC and an area...

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      I had 2 areas right next to each other that when 1 was biopsied showed IDC and I was watching the U/S monitor and he actually captured a small area with one of his passes of the other area that showed DCIS. On surgical specimen after my mastectomy it actually showed a 2nd area of IDC and an area of LCIS. So in my opinion yes it's possible.

      Comment
  • kerrie wilson Profile

    The Mediport is in and I'm ready to begin chemo AC followed by T

    Asked by anonymous

    stage_3c Patient
    22 days 2 answers
    • Mary G Profile
      anonymous
      Survivor since 2013

      Best wishes to you for a safe and calm experience with chemo. I had the same regimen almost 4 years ago. Follow the Docs instructions to avoid side effects, get plenty of rest and eat when/if you can. Try to stay hydrated, eat small meals or snacks if your tummy gets upset. Conserve your...

      more

      Best wishes to you for a safe and calm experience with chemo. I had the same regimen almost 4 years ago. Follow the Docs instructions to avoid side effects, get plenty of rest and eat when/if you can. Try to stay hydrated, eat small meals or snacks if your tummy gets upset. Conserve your energy for the most important tasks of the day (taking a shower, cooking a meal, etc..). I hope you have a good support system. I loved my oncologist and her team and felt very comfortable with the entire process. It will get daunting but stay strong and keep fighting.

      1 comment
    • kerrie wilson Profile
      anonymous
      stage_3c Patient

      My first chemo did not take. My mediport does not work. Got salene and steroids and nausea meds in me. But zero chemo. Getting a STAT dye job now. But no chemo today only a tiny bit got in. Believed to be in atriam not vein. Legs hurt and cold inside. Anyone else have a painful mediport that does...

      more

      My first chemo did not take. My mediport does not work. Got salene and steroids and nausea meds in me. But zero chemo. Getting a STAT dye job now. But no chemo today only a tiny bit got in. Believed to be in atriam not vein. Legs hurt and cold inside. Anyone else have a painful mediport that does not work and got a pic line instead.

      1 comment
  • Thumb avatar default

    My doctor made me take my wig off during pre-radiation appt...anyone else? Should I ask if I can wear my little hat? Nobody told me I couldn't wear it before and when I was on the cat scan table I had to take it off...caught me off guard.

    Asked by anonymous

    Learning About Breast Cancer
    23 days 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Did you ask him why? I wore a cap the entire time I was doing rads. as my hair was just starting to return. I took it off during treatments as it wasn't comfortable with it on the way my head had to be positioned but then it was a ball cap but I was never asked to remove it.

      Comment
    • Jen C Profile
      anonymous
      Learning About Breast Cancer

      Thank you, I 'm going to take my cap with me! I was too shocked to ask why then but he said it was to get the correct mold for the radiation..I understand that but I just wish I had been told so I knew. I lost my hair, I'm OK with that but to whip off my wig in front of strangers felt...

      more

      Thank you, I 'm going to take my cap with me! I was too shocked to ask why then but he said it was to get the correct mold for the radiation..I understand that but I just wish I had been told so I knew. I lost my hair, I'm OK with that but to whip off my wig in front of strangers felt odd...better get used to it huh? LOL

      2 comments
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