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  • Thumb avatar default

    Hi just wondered if anyone knew what is involved in an appointment for genetic counselling. I have been referred for genetic testing I.e BRCA gene . Any advice is welcome !

    Asked by anonymous

    about 6 hours 3 answers
    • Beth Marlow Profile
      anonymous
      Learning About Breast Cancer

      I had the genetic testing and you meet with a genetic counselor and you go over your family health history as far back as you can. I had to also do a family health questionnaire before hand. And then afterwards they took vials of blood and then a report was sent to me .

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      Same with me a bunch of ?? & than a blood work up that's sent to a genetic testing lab. It took 3 weeks to get results & my insurance paid in full. My results were inconclusive which is good & bad. Oncologist said there are so many untested genes in the human body which yields my results. I...

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      Same with me a bunch of ?? & than a blood work up that's sent to a genetic testing lab. It took 3 weeks to get results & my insurance paid in full. My results were inconclusive which is good & bad. Oncologist said there are so many untested genes in the human body which yields my results. I figure @ lest I didn't have the known gene for cancer. Prayers

      Comment
  • keri rutledge Profile

    I just finished radiation and I'm overjoyed that part is over, but I'm left with an uneasy feeling about the future and what comes next (apart from tamoxifen). Has anyone else had these feelings?

    Asked by anonymous

    Learning About Breast Cancer
    about 11 hours 3 answers
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I had the same feeling. We all will pray that cancer never comes back but it's something u will think about any every time your body feels different. I use to stress when it was mammogram. My advice live your life as if u were cancer free. Try not to think to much about it & surround yourself...

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      I had the same feeling. We all will pray that cancer never comes back but it's something u will think about any every time your body feels different. I use to stress when it was mammogram. My advice live your life as if u were cancer free. Try not to think to much about it & surround yourself with positive people

      1 comment
    • Keri Underwood Profile
      anonymous
      Learning About Breast Cancer

      Yes. I was fine all through treatment but once that was over I was extremely emotional. It gets better with time and prayer. ☺️. Stay busy and focus on God and his plans for your future. Jeremiah 29:11

      1 comment
  • connie gasmunf Profile

    Has anyone had an ultrasound on that showed 35mm of endometrial thickness while on tamoxifen? I had one episode of spotting and am having a biopsy next week. Would appreciate hearing from anyone who has been through this. Thank you

    Asked by anonymous

    Learning About Breast Cancer
    about 10 hours 1 answer
    • Diana Lai Profile
      anonymous
      Learning About Breast Cancer

      My endometrial thickness has increased to 16mm after taking Tamoxifen for 2 years and 2 months. So, I think 35mm is very thick. I had hysterocopy D&C in October 2013 and luckily the result is fine. After consulting an oncologist, I stopped taking Tamoxifen and now the thickness has decreased to...

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      My endometrial thickness has increased to 16mm after taking Tamoxifen for 2 years and 2 months. So, I think 35mm is very thick. I had hysterocopy D&C in October 2013 and luckily the result is fine. After consulting an oncologist, I stopped taking Tamoxifen and now the thickness has decreased to 3mm. but I don't quite understand what is "episode of spotting". Hope it can give you some help.

      1 comment
  • Thumb avatar default

    I'm really scared i'm diseased i mean i'm only a pre teen, and i'm afraid of death and diseases, i dont think i can tell my parents just yet. I did a research and saw that half the signs are already happening and i'm getting paranoid. Any recommendations?

    Asked by anonymous

    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      I was the same way when I was your age! It is not uncommon and we do get young girls/women coming on this site asking us if they have breast cancer. Our answer is pretty much the same.... talk to your Mom about your fears. If you become really obsessed with fear of death, dying, disease, you...

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      I was the same way when I was your age! It is not uncommon and we do get young girls/women coming on this site asking us if they have breast cancer. Our answer is pretty much the same.... talk to your Mom about your fears. If you become really obsessed with fear of death, dying, disease, you may need to talk to a counselor. At your age, you have your entire life ahead of you and you shouldn't lose precious time to worrying about something unnecessarily. As you grow older, there are health things you do keep an eye on but it shouldn't consume your life. Talk to your Mom or you school counselor, you need to be a happy kid, and not worry so much. I made myself miserable worrying I had all sorts of things when I was growing up. I am 66 now and I did have breast cancer when I was 59 but all my time as an adult, I was never sick with anything horrible. Even having breast cancer, most of the time, you get treatment and you just go on with your life, it doesn't kill you. I am so sorry you are a worrier, it's tough. I hope you can find a way to let go of that behavior. You have your whole wonderful life in front of you. Remember, talk to your Mom, your doctor, or a school councelor. Take care, Sharon

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I'm not sure what you're "diseased" with but can probably make a good guess. You need to talk with your parents or some other trusted adult as you need to see a doctor (no I'm not one) and have yourself checked and if need be have some treatment of some sort.

      Comment
  • Thumb avatar default

    My echo came back and my EF is at 47% We are temporarily stopping Herceptin and redoing echo in 4 weeks. I am about 3/4 way done and been fine. Anyone experience this and any suggestions to improve it outside of any meds? Still need to talk with doc.

    Asked by anonymous

    about 21 hours 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I had an Echo. last August for different reasons on seeing a Cardiologist for a consult due to my blood pressure meds. He indicated I didn't need a stress test due to my activity level being fine without any shortness of breath or other symptoms. Mine came out at 65%, I have a very strong...

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      I had an Echo. last August for different reasons on seeing a Cardiologist for a consult due to my blood pressure meds. He indicated I didn't need a stress test due to my activity level being fine without any shortness of breath or other symptoms. Mine came out at 65%, I have a very strong family history. I did give him my radiation treatment numbers since it was to my left side and he asked about my chemo. meds. and if I were taking anything else. I'm on Letrozole for at least 5 years.

      Comment
  • Inna S Profile

    Tamoxifen? For how long you taking it? And any side effects?

    Asked by anonymous

    Stage 4 Patient
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      No side effects in tamoxifen for me. I couldn't sleep@ first but these ladies advised me to take in the AM & it worked

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I imagine everyone is different in how long they take it. My clinic always gave me printouts when they gave me something different medicine-wise that listed actions, side effects, etc. I made sure I read them to better understand them. My team even gave me printouts of my chemo. drugs with...

      more

      I imagine everyone is different in how long they take it. My clinic always gave me printouts when they gave me something different medicine-wise that listed actions, side effects, etc. I made sure I read them to better understand them. My team even gave me printouts of my chemo. drugs with possible side effects listed and it helped so I could decide if I needed to call their triage line or not.

      Comment
  • Thumb avatar default

    My mom is currently diagnosed with breast cancer probably stage 2b. My problem now is she does not want to undergo surgery (mastectomy). What should I do?

    Asked by anonymous

    • View all 8 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Karen, I think that is perfectly reasonable. She is terrified yet she doesn't have enough information to get her on board with treatment. She needs to let her fears come to the surface and out her mouth so she can gets those questions answered. Go with her to her consultation appointments. SHe...

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      Karen, I think that is perfectly reasonable. She is terrified yet she doesn't have enough information to get her on board with treatment. She needs to let her fears come to the surface and out her mouth so she can gets those questions answered. Go with her to her consultation appointments. SHe may be dealing with a mental picture of the surgery, itself, the fear of pain, the disfigurment. Most of the time, a lumpectomy can be performed and she can keep her breast. She needs more information and support. I did have a mastectomy and for me, it was very easy. She can also have reconstruction too. Hang in there and take care, Sharon

      Comment
    • Keri Underwood Profile
      anonymous
      Learning About Breast Cancer

      I had 2b and went thru chemo rads and lumpectomy. Cancer free 2 years. Tell her to research options and pray about it

      Comment
  • Suzanne  McCool Profile

    I Have stage 4 colon lung cancer , just wandering how should I get a mammogram. I was thinking should only be done by ultra sound so not to squash the tissues I have been getting sore underarm and chest lumps only on the right side

    Asked by anonymous

    Learning About Breast Cancer
    3 days 5 answers
    • View all 5 answers
    • Marianne Robertson Profile
      anonymous
      Learning About Breast Cancer

      I think you should talk to your onc or surgeon. They will know what is best for your case.

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Suzanne, I would suggest a talk with your oncologist. A way around the mammogram might be with an MRI. They don't pick up everything but maybe an MRI plus an ultrasound may be a way that would work. Take care, Sharon

      1 comment
  • Thumb avatar default

    I was diagnosed 4 months ago with BC, 2A, grade 1, going through Chemo, everything is going well; I am consumed with the fear of reoccurrence, everywhere I look there are stories of cancer; it is all I think about, any suggestions on how to move past this

    Asked by anonymous

    3 days 4 answers
    • View all 4 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      We all suffer this same nagging thought. You are so close to the treatment at this point I am not surprised your thought processes are so acutely aware of all the cancer stuff bombarding us. As you get further from your treatment and your Check up visits become less frequent, it will become...

      more

      We all suffer this same nagging thought. You are so close to the treatment at this point I am not surprised your thought processes are so acutely aware of all the cancer stuff bombarding us. As you get further from your treatment and your Check up visits become less frequent, it will become less and less. Unfortunately it won't totally go away. Get yourself busy, it is the easiest way to put your worries on a shelf. Hang in there, Sharon

      Comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      It's funny normally I paid little attention 2 all the tail & commercials about cancer. Now that I'm diagnosed I pay more attention. Yes it's talked about all the time. I just don't think about cancer anymore.

      Comment
  • Thumb avatar default

    I have always had cysts and had an one aspirated in 1992 which turned out to be nothing. I have my mammograms done faithfully every year. This year, however, I was called back by my doctor to schedule an ultrasoud due to denisity. The ultrasound showed

    Asked by anonymous

    4 days 5 answers
    • View all 5 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Dense breast tissue unfortunately can hide tumors. My only suggestion is knowing what I know now, I would ask for a sy and not wait the six months. I pretty much had the same thing you are going through. I also had all the mammograms, a did my self checks. I found a lump that felt like...

      more

      Dense breast tissue unfortunately can hide tumors. My only suggestion is knowing what I know now, I would ask for a sy and not wait the six months. I pretty much had the same thing you are going through. I also had all the mammograms, a did my self checks. I found a lump that felt like cauliflower. Under my skin. I went through treatment and am healthy eight years later. Hang in there and hope you don't join this club. So many of these things are absolutely nothing cancerous. Take care, Sharon

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      You should discuss the report with your doctor as she/hewould be able to give you some answers. We aren't Drs. and could only guess, at least I would be guessing as I used to do mammograms.

      Comment
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