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  • anonymous Profile

    Having a partial mastectomy in a week. What am i going to look like when it's done in real patients experiences? How long does it take to recover? Is reconstruction done at the same time recommended by patients? Want a survivors answer not a doctor.

    Asked by anonymous

    stage_1 Patient
    about 4 hours 2 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      I can't speak from a patient having a partial mastectomy as I had mine totally removed. If I were to have had a partial I may have considered reconstruction but at my age chose to do what I did. We aren't doctors on this site just ones who have gone through treatment or currently going through...

      more

      I can't speak from a patient having a partial mastectomy as I had mine totally removed. If I were to have had a partial I may have considered reconstruction but at my age chose to do what I did. We aren't doctors on this site just ones who have gone through treatment or currently going through or family members. I know this didn't really answer your questions but this was my experience and I was told last week, almost 4 years out from surgery my scar is well-healed and looks good.

      3 comments
    • Janet Stitt Profile
      anonymous
      stage_1 Patient

      I had a bilateral mastectomy 9/2016 and they started reconstruction at the same time. It requires 2 different surgeons. The Breast surgeon does the mastectomy and a Plastic surgeon starts the reconstruction. The first 3 days were pretty painful, but on day 4 it started to get much better. ...

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      I had a bilateral mastectomy 9/2016 and they started reconstruction at the same time. It requires 2 different surgeons. The Breast surgeon does the mastectomy and a Plastic surgeon starts the reconstruction. The first 3 days were pretty painful, but on day 4 it started to get much better. You did not mention the ages of your children, but you may need some help for a week if they are small. I was driving and going out within a week, but my children are grown and I could rest if I became tired. Everyone is a little different. I had my final reconstruction after Thanksgiving and it was not at all painful. My scars are healing, and with time they will fade. I am very pleased with the look. It took a couple of weeks for the permanent implants to "fluff", but they look great in clothes. I hope this helps.

      Comment
  • Thumb avatar default

    My mom started chemo and she just can't keep anything down. She keeps throwing up everything she eats. And on top she has nerve disease , so she is on steroids. I don't know what to do. Please help

    Asked by anonymous

    Family Member or Loved One
    about 3 hours 2 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      She really needs to bring this to the attention of her care team NOW. This isn't good and her help will come from them. Some women are just afraid to complain and this is not the time to be stoic, especially when a person can't keep anything down. Have her call her oncologist's office...

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      She really needs to bring this to the attention of her care team NOW. This isn't good and her help will come from them. Some women are just afraid to complain and this is not the time to be stoic, especially when a person can't keep anything down. Have her call her oncologist's office immediately. Take care, Sharon

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      She definitely needs to contact her team as it doesn't do anyone good to get dehydrated. My friend ended up having IV fluids after a couple of her infusions to get some fluids into her system. Some chemo. drugs can cause Neuropathy and that should be addressed also as perhaps her Oncologist can...

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      She definitely needs to contact her team as it doesn't do anyone good to get dehydrated. My friend ended up having IV fluids after a couple of her infusions to get some fluids into her system. Some chemo. drugs can cause Neuropathy and that should be addressed also as perhaps her Oncologist can give her something for that. They do tell one to eat what they can, I ate things that had never tasted good before.

      Comment
  • julie evans Profile

    I have had secondary breast cancer 5 years and now it's stopped responding my choices are more chemotherapy, operation or tablets , any thoughts on the best decision for me to make

    Asked by anonymous

    Learning About Breast Cancer
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      It is difficult to give an off-the-cuff opinion. It takes knowledge of all sorts of facts as they pertain to you. I would be getting some information about clinical trials for your particular cancer. Ultimately, it has to be your decision. What do you want, what makes the most sense to you? ...

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      It is difficult to give an off-the-cuff opinion. It takes knowledge of all sorts of facts as they pertain to you. I would be getting some information about clinical trials for your particular cancer. Ultimately, it has to be your decision. What do you want, what makes the most sense to you? Hang in there, Julie. Take care, Sharon

      1 comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      Gather all the facts both pro and con and make the decision you feel most comfortable with. Everyone would respond differently so you must do it for you.

      1 comment
  • Donabel Dellosa Profile

    Hi anyone experience bone pain with herceptin...

    Asked by anonymous

    Learning About Breast Cancer
    2 days 1 answer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I have a friend who experienced bone pain while on Herceptin. She was told it is one of the possible side effects. Have you discussed it with your doctor and see if there is something that can be used to ease the pain?

      3 comments
  • vicki courange Profile

    Has anyone ever had insurance refuse to pay for femara

    Asked by anonymous

    Learning About Breast Cancer
    4 days 5 answers
    • View all 5 answers
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      If you can't get them to cover it, check into GoodRX.com. You can put the medication in, and it will give you printable coupons for stores near you. They have saved me a ton of money when my insurance won't cover something.

      1 comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Vicki,
      As stupid as it seems.... my insurance would not cover it and it was out of range for me to afford to pay out of pocket at the time. ( I have been out of treatment for 9 years) I bought it out of Canada. The cost here for Femara (Letrozole) was going to be $350 a month. Out of Canada,...

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      Vicki,
      As stupid as it seems.... my insurance would not cover it and it was out of range for me to afford to pay out of pocket at the time. ( I have been out of treatment for 9 years) I bought it out of Canada. The cost here for Femara (Letrozole) was going to be $350 a month. Out of Canada, it was $125 for 3 months. For the years I was on it, I got it routinely out of Canada and never had a problem with it. I had to fax in a prescription to the pharmacy. The cost even covered Registered postage from Germany, Ireland, or India, depending on where the drug was manufactured. Saved my life! Take care, Sharon

      Comment
  • Kim Boehm Profile

    I finished chemo in March last year. My arms get extremely tired. This could be from just holding my mobile. Otherwise I'm not exhausted - it is just my arms...Has anyone experienced this?

    Asked by anonymous

    Learning About Breast Cancer
    7 days 3 answers
    • Betti A Profile
      anonymous
      Survivor since 2013

      Did you have lymph nodes removed? My only guess and I'm not a doctor it could be a start of lymphedema? Are you arms swollen as that's how it manifests? Have you talked with your doctor(s) about it as that is where I would start?

      Comment
    • Trisha Muller Quinn Profile
      anonymous
      Survivor since 2014

      My arm gets sore ,achy and heavy.... I know that my arm is swelling up with fluid and that's when I do my lymphoma excises !!
      If you have had some nodes out with your breast surgery .......check with your breast care nurse / doctor ..it maybe the start of lymphoma.
      A O.T can measure your arm...

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      My arm gets sore ,achy and heavy.... I know that my arm is swelling up with fluid and that's when I do my lymphoma excises !!
      If you have had some nodes out with your breast surgery .......check with your breast care nurse / doctor ..it maybe the start of lymphoma.
      A O.T can measure your arm for a compression sleeve .
      If it's is lymphoma make sure you are careful when working , in the garden and don't carry very heavy stuff !! As with nodes missing it's harder to fight infections.

      But maybe it's because your chatting to much ... maybe put the phone on speaker !! Haha Good luck 🎀🎀

      3 comments
  • Margaret Rockafellow Profile

    Are there any breast cancer retreats

    Asked by anonymous

    Learning About Breast Cancer
    • Betti A Profile
      anonymous
      Survivor since 2013

      I bet if you google breast cancer retreats you will find some in Maryland.

      Comment
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      "Google" is your friend. Bring it up and put in your request, you will get answers. Take care, Sharon

      Comment
  • Margaret Rockafellow Profile

    Are there any organizations in Maryland that help cancer patients with daily needs and any mental issues that go with it

    Asked by anonymous

    Learning About Breast Cancer
    9 days 4 answers
    • View all 4 answers
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      The Red Devils
      Supporting breast cancer families. Organization is located in Maryland & they have connections with everyone

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I would check with your facility and see if they have a nurse navigator as that is what they do, help people find resources. Also the local American Cancer Society was a big help to me as I was alone and they did what the navigator couldn't.

      2 comments
  • Thumb avatar default

    I was recently diagnosed with breast cancer. Now I've learned I tested positive for the BRCA 1 gene mutation. I've decided to have a double mastectomy with reconstruction. I'm going for a sentinel node biopsy in a week. I'm getting scared.

    Asked by anonymous

    stage_1 Patient
    9 days 2 answers
    • Sharon Danielson Profile
      anonymous
      Survivor since 2007

      Going through treatment, I actually tried to find the good in all of it. You have got several GOOD things in your diagnosis.
      This is a Stage 1 (found early)
      You had genetic testing and found you have the BRCA 1 gene mutation. Now, that isn't good news but you have discovered a defect in...

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      Going through treatment, I actually tried to find the good in all of it. You have got several GOOD things in your diagnosis.
      This is a Stage 1 (found early)
      You had genetic testing and found you have the BRCA 1 gene mutation. Now, that isn't good news but you have discovered a defect in your body that could cause some future problems. You NOW have the ability to get out ahead of these problems.... like your decision to have a double mastectomy.
      Yes, it is ALL scary, because this is all unknown territory for you. What you have ahead of you are some procedures. We have all had a variety of procedures but we made it through. The best outcome is you also have the ability to look forward to a good long life. Because these problems have been discovered, you are now aware of information, that gives you a look into the future..... YOU will have a future because of all of this happening right now. Hang in there.... be happy this was all found before this disease took over and took away the ability to have a long life! Take care, Sharon

      1 comment
    • Thumb avatar default
      anonymous
      Learning About Breast Cancer

      I had a double mastectomy with reconstruction (breast implants). The unknown was more scary than the procedures. Pain from implant expanders being filled but nothing I couldn't handle. Radiation was easy breezy. No chemo cancer was stage 0 and non invasive. The drains were a pain but doable....

      more

      I had a double mastectomy with reconstruction (breast implants). The unknown was more scary than the procedures. Pain from implant expanders being filled but nothing I couldn't handle. Radiation was easy breezy. No chemo cancer was stage 0 and non invasive. The drains were a pain but doable. Family & friends & faith in GOD were my everything. My husband assured me all was good & embraced my new look. You can do this.

      2 comments
  • Thumb avatar default

    I been on tamoxifen for about 1 year and experiencing migraines has anyone experienced migraines while on tamoxifen

    Asked by anonymous

    Learning About Breast Cancer
    10 days 2 answers
    • Lou Cam Profile
      anonymous
      Survivor since 2013

      No, but I did on one of the AI's, and had to change to a different one.

      Comment
    • Betti A Profile
      anonymous
      Survivor since 2013

      I wasn't on it but if I were and am having migraines I'd discuss it with my doctor(s) and see if something needs adjusting.

      Comment
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